Impact of a transition education program on health-related quality of life in pediatric patients with congenital heart disease: study design for a randomised controlled trial

Autor: Oscar Werner, Charlene Bredy, Kathleen Lavastre, Sophie Guillaumont, Gregoire De La Villeon, Marie Vincenti, Cristelle Gerl, Yves Dulac, Nathalie Souletie, Philippe Acar, Laurence Pages, Marie-Christine Picot, Gerard Bourrel, Agnes Oude Engberink, Elodie Million, Hamouda Abassi, Pascal Amedro

Publikováno v: Health and Quality of Life Outcomes, Vol 19, Iss 1, Pp 1-7 (2021)

Abstract Background Recent advances in the field of congenital heart disease (CHD) led to an improved prognosis of the patients and in consequence the growth of a new population: the grown up with congenital heart disease. Until recently, more than 5

Externí odkaz: https://doaj.org/article/cabcafa6c6a4480b81a71ae992a527b5

Impact of Sophrology on cardiopulmonary fitness in teenagers and young adults with a congenital heart disease: The SOPHROCARE study rationale, design and methods

Autor: Johan Moreau, Kathleen Lavastre, Huguette Romieu, Françoise Charbonnier, Sophie Guillaumont, Charlene Bredy, Hamouda Abassi, Oscar Werner, Gregoire De La Villeon, Anne Requirand, Annie Auer, Stefan Matecki, Clement Karsenty, Aitor Guitarte, Khaled Hadeed, Yves Dulac, Nathalie Souletie, Philippe Acar, Fanny Bajolle, Damien Bonnet, Laurence Negre-Pages, Thibault Mura, Maria Mounier, Pierre-Emmanuel Seguela, Julie Thomas, Xavier Iriart, Jean-Benoit-Thambo, Pascal Amedro

Publikováno v: International Journal of Cardiology: Heart & Vasculature, Vol 27, Iss , Pp - (2020)

Background: Recent advances in the field of congenital heart disease (CHD) have significantly improved the overall prognosis. Now more attention is being given to health-related quality of life (HRQoL) and promotion of physical activity. Non-invasive

Externí odkaz: https://doaj.org/article/2b82624a1478444084ec4940fb20dd1a

Health-related quality of life correlates with time in therapeutic range in children on anticoagulants with International Normalised Ratio self-monitoring

Autor: Sophie Guillaumont, Damien Bonnet, Amandine Marquina, Pascal Amedro, Oscar Werner, Hamouda Abassi, Annie Auer, Kathleen Lavastre, Thibault Mura, Pascal Auquier, Fanny Bajolle, Federico Manna

Publikováno v: Archives of cardiovascular diseases
Archives of cardiovascular diseases, 2020, ⟨10.1016/j.acvd.2020.05.022⟩
Archives of cardiovascular diseases, Elsevier/French Society of Cardiology, 2020, ⟨10.1016/j.acvd.2020.05.022⟩

Summary Background Managing oral anticoagulant therapy with vitamin K antagonists remains challenging in paediatric medicine. Aims This study aimed to assess the correlation between time in therapeutic range and quality of life in children participat

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::88be0e4d23c59f860fe2c277d78e6a75
https://doi.org/10.1016/j.acvd.2020.05.022

Health-related quality of life and physical activity in children with inherited cardiac arrhythmia or inherited cardiomyopathy: the prospective multicentre controlled QUALIMYORYTHM study rationale, design and methods

Autor: Constance Beyler, Victor Pommier, Marie Vincenti, Isabelle Denjoy-Urbain, Luc Souilla, Gregoire De La Villeon, Stefan Matecki, Sylvie Di Filippo, Alain Lacampagne, Pascal Amedro, Johanna Calderon, Jean-Benoit Thambo, Christophe Delclaux, Sophie Guillaumont, Vincent Probst, Aitor Guitarte, Oscar Werner, Marie-Christine Picot, Alban-Elouen Baruteau, Kathleen Lavastre, Yves Dulac, Philippe Charron, Aymeric Boisson, Damien Bonnet, Jean-Luc Pasquié, Hamouda Abassi, Anne Requirand, Philippe Chevalier

Publikováno v: Health and Quality of Life Outcomes
Health and Quality of Life Outcomes, BioMed Central, 2021, 19 (1), ⟨10.1186/s12955-021-01825-6⟩
Health and Quality of Life Outcomes, 2021, 19 (1), pp.187. ⟨10.1186/s12955-021-01825-6⟩
Health and Quality of Life Outcomes, Vol 19, Iss 1, Pp 1-9 (2021)

BackgroundAdvances in paediatric cardiology have improved the prognosis of children with inherited cardiac disorders. However, health-related quality of life (QoL) and physical activity have been scarcely analysed in children with inherited cardiac a

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::03f81fe6edf246e44334de2828fb7a92
https://hal.archives-ouvertes.fr/hal-03310460

Impact of a transition education program on health-related quality of life in pediatric patients with congenital heart disease: study design for a randomised controlled trial

Autor: Agnès Oude Engberink, Elodie Million, Sophie Guillaumont, Cristelle Gerl, Oscar Werner, Gregoire De La Villeon, Laurence Pages, Gérard Bourrel, Pascal Amedro, Marie Vincenti, Philippe Acar, Charlene Bredy, Yves Dulac, Hamouda Abassi, Nathalie Souletie, Kathleen Lavastre, Marie-Christine Picot

Publikováno v: Health and Quality of Life Outcomes, Vol 19, Iss 1, Pp 1-7 (2021)
Health and Quality of Life Outcomes

BackgroundRecent advances in the field of congenital heart disease (CHD) led to an improved prognosis of the patients and in consequence the growth of a new population: the grown up with congenital heart disease. Until recently, more than 50% of thes

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::a0d933fc5eddec78f6f6f84ba9ec64a9
https://doi.org/10.1186/s12955-021-01668-1