Zobrazeno 1 - 10
of 96
pro vyhledávání: '"Kathleen J Sawin"'
Autor:
Michele Polfuss, Kathryn Smith, Betsy Hopson, Andrea Moosreiner, Chiang-Ching Huang, Michele N Ravelli, Dan Ding, Zijian Huang, Brandon G Rocque, Rosemary White-Traut, Alexander Van Speybroeck, Kathleen J Sawin
Publikováno v:
JMIR Research Protocols, Vol 13, p e52779 (2024)
BackgroundObesity prevalence in youth with spina bifida is higher than in their typically developing peers. Obesity is associated with lifelong medical, psychological, and economic burdens. Successful prevention or treatment of obesity in individuals
Externí odkaz:
https://doaj.org/article/27c84e35410747058c51ac299602ae45
Publikováno v:
Health Care Transitions, Vol 2, Iss , Pp 100080- (2024)
Background: Emerging adults with spina bifida have complex developmental and health care needs. Improvement in healthcare means there is greater interest in understanding and supporting the transition needs of children with spina bifida to adulthood.
Externí odkaz:
https://doaj.org/article/73ba1e40a92249048ae768c55d259977
Autor:
Michele Polfuss, Linda G. Bandini, Michele N. Ravelli, Zijian Huang, Andrea Moosreiner, Dale A. Schoeller, Chiang-Ching Huang, Dan Ding, Cristen Berry, Emma Marston, Azeem Hussain, Timothy C. Shriver, Kathleen J. Sawin
Publikováno v:
Frontiers in Pediatrics, Vol 11 (2023)
BackgroundThe consequences of obesity are ominous, yet healthcare professionals are not adequately preventing or treating obesity in youth with Down syndrome (DS). Total daily energy expenditure (TDEE) is the energy expended in 24 h through physical
Externí odkaz:
https://doaj.org/article/f408a87acfd447d9936de7a8bb350f58
Publikováno v:
Journal of Pediatric Health Care. 37:106-116
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::dd7c9065568fa5c81d8c84b85b176e59
https://doi.org/10.1016/j.pedhc.2022.09.009
https://doi.org/10.1016/j.pedhc.2022.09.009
Publikováno v:
Child Care Health Dev
AIM: The purpose of this study was to examine the trajectories of condition and independent living self-management in youth with spina bifida. METHODS: A diverse sample of adolescents and young adults (AYA) with spina bifida (SB) completed the Adoles
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::d5f5570a381c2177be003dfe9a64e15f
https://doi.org/10.1111/cch.13065
https://doi.org/10.1111/cch.13065
Autor:
Kathleen J. Sawin, Adrien M. Winning, Colleen Stiles-Shields, Grayson N. Holmbeck, Monique M. Ridosh, Alexa Stern, Lara Anderson
Publikováno v:
Journal of Pediatric Rehabilitation Medicine. 14:583-596
PURPOSE: The purpose of this longitudinal study was to evaluate the internal consistency reliability and construct validity of the Adolescent/Young Adult Self-Management and Independence Scale-II (AMIS-II), an interview-based measure of self-manageme
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::97735f711a635212bc428ed97886f686
https://doi.org/10.3233/prm-200679
https://doi.org/10.3233/prm-200679
Autor:
Kathleen J. Sawin, Teresa Jerofke-Owen, Alissa V. Fial, Natalie S. McAndrew, Karen Gralton, Joan P. Totka, Marianne E. Weiss
Publikováno v:
Journal of Family Nursing. 28:151-171
This scoping review was conducted to examine the range, nature, and extent of the published family engagement literature specific to the pediatric acute care setting to highlight future research and practice development opportunities. Included studie
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::6b0b1e7fc9021355a35f4f8d6883fcfa
https://doi.org/10.1177/10748407211048894
https://doi.org/10.1177/10748407211048894
Autor:
Benjamin J. Best, Erwin T. Cabacungan, Susan S. Cohen, Irene Kim, Eileen C. Sherburne, Kathleen J. Sawin, Audrey Roach, Andrew B. Foy
Publikováno v:
Child's Nervous System.
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::d55191cc64f59614a7ba6f281f08390b
https://doi.org/10.1007/s00381-022-05704-3
https://doi.org/10.1007/s00381-022-05704-3
Autor:
Michele Polfuss, Tiebin Liu, Kathryn Smith, Pamela S. Murphy, Elisabeth Ward, Judy Thibadeau, Nienke P. Dosa, Yinding Wang, Kathleen J. Sawin
Publikováno v:
Pediatrics. 150(6)
Objectives Describe the distribution of weight status categories and determine factors associated with overweight and obesity (OW/OB) in children and adolescents with spina bifida (SB) using the National Spina Bifida Patient Registry. Methods Demogra
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::aa5ffd808f74440837259508f6d30c2b
https://pubmed.ncbi.nlm.nih.gov/36416007
https://pubmed.ncbi.nlm.nih.gov/36416007
Publikováno v:
Journal of Pediatric Rehabilitation Medicine
Quality of Life (QOL) and Health-Related Quality of Life (HRQOL) are important concepts across the life span for those with spina bifida (SB). This article discusses the SB Quality of Life Healthcare Guidelines from the 2018 Spina Bifida Association
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::708b5157c07cc6c6e4d931e1a44a600c
http://europepmc.org/articles/PMC7838993
http://europepmc.org/articles/PMC7838993