Zobrazeno 1 - 10
of 39
pro vyhledávání: '"Kathi Kinnett"'
Autor:
Christopher F Spurney, Lawrence Charnas, Linda Cripe, Kan Hor, Nicholas King, Kathi Kinnett, Elizabeth M McNally, John-Michael Sauer, Lee Sweeney, Chet Villa, Larry W Markham
Publikováno v:
Open Heart, Vol 8, Iss 1 (2021)
Cardiac disease is now the leading cause of death in Duchenne muscular dystrophy (DMD). Clinical evaluations over time have demonstrated asymptomatic cardiac troponin elevations and acute elevations are associated with symptoms and cardiac dysfunctio
Externí odkaz:
https://doaj.org/article/fe6ebdacbf0c47549115ec21cf90fdee
Publikováno v:
Orphanet Journal of Rare Diseases, Vol 14, Iss 1, Pp 1-10 (2019)
Abstract Background Clinical care guidelines are typically developed by clinicians and researchers. Including patient and caregiver voices in guideline development may help create guidelines that are more useful for patients and consequently improve
Externí odkaz:
https://doaj.org/article/0114357ce3fd4705b296a28c20758f01
Publikováno v:
Neuromuscular Disorders. 32:935-944
Autor:
Chet Villa, Scott R. Auerbach, Neha Bansal, Brian F. Birnbaum, Jennifer Conway, Paul Esteso, Katheryn Gambetta, E. Kevin Hall, Beth D. Kaufman, Sonya Kirmani, Ashwin K. Lal, Hugo R. Martinez, Deipanjan Nandi, Matthew J. O’Connor, John J. Parent, Frank J. Raucci, Renata Shih, Svetlana Shugh, Jonathan H. Soslow, Hari Tunuguntla, Carol A. Wittlieb-Weber, Kathi Kinnett, Linda Cripe
Publikováno v:
Pediatric Cardiology
Cardiac disease has emerged as a leading cause of mortality in Duchenne muscular dystrophy in the current era. This survey sought to identify the diagnostic and therapeutic approach to DMD among pediatric cardiologists in Advanced Cardiac Therapies I
Autor:
Brenda L. Wong, May Ling Mah, Joe N. Kornegay, Jamie L. Jackson, Dongsheng Duan, Kathi Kinnett, Linda H. Cripe, Susan D. Apkon, Mena Scavina, Vamshi Rao, Stanley F. Nelson, Kevin M. Flanigan
Publikováno v:
Journal of Neuromuscular Diseases. 8:315-322
Autor:
Holly L. Peay, Barbara T. Do, Neil Khosla, Pangaja Paramsothy, Stephen W. Erickson, Molly M. Lamb, Nedra Whitehead, Deborah J. Fox, Shree Pandya, Kathi Kinnett, Jodi Wolff, James F. Howard
Publikováno v:
J Neuromuscul Dis
Background: Youth with Duchenne and Becker muscular dystrophy (DBMD) experience challenges in attaining adult roles, which may impact quality of life. New interventions and treatments may facilitate adult role attainment through improved function. Hi
Autor:
Holly L. Peay, Christine Chen, Sean Grant, Glen Hazlewood, Natalie Street, Ian D. Coulter, Kathi Kinnett, Marika Booth, Dmitry Khodyakov, Courtney Armstrong, Emily Dao, Ann Martin, Brian Denger
Publikováno v:
Medical Decision Making
Purpose. To determine the patient-centeredness of endocrine and bone health Duchenne muscular dystrophy (DMD) care considerations using the RAND/PPMD Patient-Centeredness Method (RPM), which is a novel, online, modified-Delphi approach to engaging pa
Autor:
Courtney, Armstrong, Sean, Grant, Kathi, Kinnett, Brian, Denger, Ann, Martin, Ian, Coulter, Marika, Booth, Dmitry, Khodyakov
Publikováno v:
Eur J Pers Cent Healthc
BACKGROUND: Patient engagement in clinical practice guideline (CPG) development has increased significantly in recent years. However, only a few patients and caregivers join CPG development groups. OBJECTIVE: To describe participant experiences with
Autor:
Holly L. Peay, Ian D. Coulter, Sean Grant, Kathi Kinnett, Ann Martin, Dmitry Khodyakov, Brian Denger
Publikováno v:
The Patient
Patients and caregivers are increasingly recognized as key stakeholders in developing clinical practice guidelines (CPGs). Online engagement approaches offer the promise of a rigorous, scalable, and convenient engagement method. This paper illustrate
Publikováno v:
Therapeutic Innovation & Regulatory Science. 53:154-163
Recent increases in the number and breadth of clinical trials for patients with Duchenne muscular dystrophy (DMD) have engendered hope for a better future. Despite the overall enthusiasm by the DMD community for these trials, however, the burdens and