The Perspectives of Adolescents and Young Adults on Adherence to Prophylaxis in Hemophilia: A Qualitative Study

Autor: Hoefnagels JW, Kars MC, Fischer K, Schutgens REG, Schrijvers LH

Publikováno v: Patient Preference and Adherence, Vol Volume 14, Pp 163-171 (2020)

JW Hoefnagels,1 MC Kars,2 K Fischer,1 REG Schutgens,1 LH Schrijvers1,3 1Van Creveldkliniek, University Medical Center Utrecht, Utrecht, the Netherlands; 2Department of General Practice, Julius Center for Health Sciences and Primary Care, University M

Externí odkaz: https://doaj.org/article/de2ccae6fc0342878ae9b146c29866b1

Parental experience at the end-of-life in children with cancer: 'preservation' and 'letting go' in relation to loss.

Autor: Kars MC, Grypdonck MH, de Korte-Verhoef MC, Kamps WA, Meijer-van den Bergh EM, Verkerk MA, van Delden JJ, Kars, Marijke C, Grypdonck, Mieke H F, de Korte-Verhoef, Maria C, Kamps, Willem A, Meijer-van den Bergh, Esther M M, Verkerk, Marian A, van Delden, Johannes J M

Publikováno v: Supportive Care in Cancer; Jan2011, Vol. 19 Issue 1, p27-35, 9p

Recording diagnostic conversations for communication research purposes in pediatric leukemia.

Autor: Buursma P; Princess Máxima Center for Pediatric Oncology, Utrecht, The Netherlands., Schepers SA; Princess Máxima Center for Pediatric Oncology, Utrecht, The Netherlands., Kars MC; University Medical Center Utrecht, Utrecht, The Netherlands., van den Bergh EMM; Princess Máxima Center for Pediatric Oncology, Utrecht, The Netherlands., Dors N; Princess Máxima Center for Pediatric Oncology, Utrecht, The Netherlands., Grootenhuis MA; Princess Máxima Center for Pediatric Oncology, Utrecht, The Netherlands., Hoogerbrugge PM; Princess Máxima Center for Pediatric Oncology, Utrecht, The Netherlands.

Publikováno v: Pediatric blood & cancer [Pediatr Blood Cancer] 2024 Oct 27, pp. e31395. Date of Electronic Publication: 2024 Oct 27.

The Spiritual Dimension of Parents' Experiences Caring for a Seriously Ill Child: An Interview Study.

Autor: Brouwer MA; Julius Center for Health Sciences and Primary Care, (M.A.B, M.E, S.C.C.M.T, M.C.K), Center of Expertise in Palliative Care Utrecht, Department of General Practice and Nursing Science, University Medical Center Utrecht, Utrecht, The Netherlands., Engel M; Julius Center for Health Sciences and Primary Care, (M.A.B, M.E, S.C.C.M.T, M.C.K), Center of Expertise in Palliative Care Utrecht, Department of General Practice and Nursing Science, University Medical Center Utrecht, Utrecht, The Netherlands.. Electronic address: m.engel-5@umcutrecht.nl., Teunissen SCCM; Julius Center for Health Sciences and Primary Care, (M.A.B, M.E, S.C.C.M.T, M.C.K), Center of Expertise in Palliative Care Utrecht, Department of General Practice and Nursing Science, University Medical Center Utrecht, Utrecht, The Netherlands., Leget C; Department of Care Ethics, (C.L), University of Humanistic Studies, Utrecht, The Netherlands., Kars MC; Julius Center for Health Sciences and Primary Care, (M.A.B, M.E, S.C.C.M.T, M.C.K), Center of Expertise in Palliative Care Utrecht, Department of General Practice and Nursing Science, University Medical Center Utrecht, Utrecht, The Netherlands.

Publikováno v: Journal of pain and symptom management [J Pain Symptom Manage] 2024 Oct; Vol. 68 (4), pp. 360-368.e3. Date of Electronic Publication: 2024 Jul 02.

The Practical Application of the Individual Care Plan for Pediatric Palliative Care: A Mixed-Method Study.

Autor: Joren CY; University of Groningen, University Medical Center Groningen, Beatrix Children's Hospital, Hanzeplein 1, 9713 GZ Groningen, The Netherlands., Aris-Meijer JL; University of Groningen, University Medical Center Groningen, Beatrix Children's Hospital, Hanzeplein 1, 9713 GZ Groningen, The Netherlands., Kremer LCM; Princess Maxima Centre for Pediatric Oncology, Heidelberglaaan 25, 3584 CS Utrecht, The Netherlands., Hofman SC; University Medical Center Utrecht, Wilhelmina Children's Hospital, Lundlaan 6, 3584 EA Utrecht, The Netherlands., Rippen-Wagner H; Dutch Foundation Child and Hospital, 3527 GV Utrecht, The Netherlands., Slingerland-Blom R; Dutch Centre of Expertise in Children's Palliative Care, Mercatorlaan 1200, 3528 BL Utrecht, The Netherlands., van der Velden C; Dutch Centre of Expertise in Children's Palliative Care, Mercatorlaan 1200, 3528 BL Utrecht, The Netherlands., Schuiling-Otten MA; Dutch Centre of Expertise in Children's Palliative Care, Mercatorlaan 1200, 3528 BL Utrecht, The Netherlands., Project Team Icp; University Medical Center Groningen, Beatrix Children's Hospital, Hanzeplein 1, 9713 GZ Groningen, The Netherlands., Verhagen AAE; University of Groningen, University Medical Center Groningen, Beatrix Children's Hospital, Hanzeplein 1, 9713 GZ Groningen, The Netherlands., Kars MC; Center of Expertise in Palliative Care Utrecht, Julius Center of Health and Primary Care, UMC Utrecht, Universiteitsweg 100, 3584 CG Utrecht, The Netherlands.

Publikováno v: Children (Basel, Switzerland) [Children (Basel)] 2024 Aug 11; Vol. 11 (8). Date of Electronic Publication: 2024 Aug 11.