Adult congenital cardiac life-long needs evaluation in a low-middle income country, Pakistan

Autor: Laila Akbar Ladak, Disty Pearson, Kathy Jenkins, Muneer Amanullah, Waris Ahmad, Kaitlin Doherty Schmeck, Amy Verstappen, Babar Sultan Hasan

Publikováno v: Journal of the Pakistan Medical Association (2020)

Abstract Objective: Adult congenital heart diseases (ACHD) have distinct health care needs that require life-long care. Limited data is available from low-middle income countries (LMIC). This descriptive study conducted in Pakistan aimed to assess

Externí odkaz: https://doaj.org/article/7335d6135d6c4c15bc099539d31848cc

Adult congenital cardiac life-long needs evaluation in a low-middle income country, Pakistan

Autor: Babar Hasan, Kaitlin Doherty Schmeck, Laila Akbar Ladak, Muneer Amanullah, Amy Verstappen, Kathy J. Jenkins, Waris Ahmad, Disty Pearson

Publikováno v: Journal of the Pakistan Medical Association. :1-16

Adult congenital heart diseases (ACHD) have distinct health care needs that require life-long care. Limited data is available from low-middle income countries (LMIC). This descriptive study conducted in Pakistan, aimed to assess patients and health c

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::e7e039621b1f812c78090e2e51ff87ed
https://doi.org/10.47391/jpma.013

Pulmonary Vein Stenosis: A Rare Disease with a Global Reach

Autor: Sivakumar Sivalingam, Jennifer Schramm, Kathy J. Jenkins, Dinh Quang Le Thanh, Kaitlin Doherty-Schmeck, Kimberlee Gauvreau, Guillermo E Moreno

Publikováno v: Children, Vol 8, Iss 198, p 198 (2021)
Children
Volume 8
Issue 3

Pulmonary vein stenosis (PVS) is a rare, but high mortality and resource intensive disease caused by mechanical obstruction or intraluminal myofibroproliferation, which can be post-surgical or idiopathic. There are increasing options for management i

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::510226aa3efa468340c181f448ca36b2
https://www.mdpi.com/2227-9067/8/3/198

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Databases for Congenital Heart Defect Public Health Studies Across the Lifespan

Autor: Tiffany J. Riehle‐Colarusso, Lisa Bergersen, Craig S. Broberg, Cynthia H. Cassell, Darryl T. Gray, Scott D. Grosse, Jeffrey P. Jacobs, Marshall L. Jacobs, Russell S. Kirby, Lazaros Kochilas, Asha Krishnaswamy, Arianne Marelli, Sara K. Pasquali, Thalia Wood, Matthew E. Oster, Ginnie Lee Abarbanell, Faith Adams, Steven W. Allen, Sydney Allen, Anand Ambrose, Carl Lewis Backer, Andrea Baer, Carissa Marie Baker‐Smith, Mona Barmash, Amy Basken, Cassandra Bates, Sarosh Percy Batlivala, Robert H. Beekman, John William Belmont, Joshua Benke, Stuart Berger, JR Bockerstette, Jeffrey R. Boris, Lorenzo Botto, Jackie Boucher, Dana Brock Hageman, Cheryl Brosig Soto, Kristin Marie Burns, Lenore Cameron, Robert M. Campbell, Steven E. Colan, Lynn Colegrove, Christina Coleman, Angie Colson, Adolfo Correa, Pamela Costa, Chris Couser, Melissa Lynnn Crenshaw, Tessa Crume, Rachel Daskalov, Mark D. Del Monte, Lindsay DeSantis, Kaitlin Doherty, Kenneth Dooley, Charles (Wes) Duke, Pirooz Eghtesady, Saiza Elayda, Alison Ellison, Tim Elsner, Cori Erntz, Michelle Z. Esquivel, Bethany Evans, Lloyd Robert Feit, Marcia Feldkamp, William Foley, Elyse Foster, Wayne Franklin, Bridget Freeley, Frank M. Galioto, Mary George, Michael H. Gewitz, Katja Michelle Gist, Thomas Glenn, Melissa (Jill) Glidewell, Lorraine A. Gore, Johanna Gray, Hannah Green, Michelle Z. Gurvitz, Sonia Handa, Melissa Harvey, Emilie Heath, Danielle Hile, John Smith Hokanson, Margaret (Peggy) Honein, Marius M. Hubbell, Jeff Hudson, Kelly Huhn, Dawn Ilardi, Dawn C. Jacobs, Robert Douglas Benjamin Jaquiss, Kathy J. Jenkins, Anitha John, Patrick Johnson, Shakila Johnson, Emily Jones, Antonios P. Jossif, Jonathan Ross Kaltman, David Kasnic, Alex R. Kemper, Natalie Kenny, Paul Khairy, Valerie King, Donna Knapp, Daisuke Kobayashi, Adrienne Kovacs, James Kucik, Karen S. Kuehl, Alexandra Kuznetsov, Scott Leezer, Jodi Lemacks, Patty Libby, Paul H. Lipkin, Michele Ann Lloyd‐Puryear, Keila Natilde Lopez, Nicolas L. Madsen, Cara Mai, Monica Mann, Bradley Marino, Gerard Robert Martin, G. Paul Matherne, Phillip Mauller, Susan May, Edward R. B. McCabe, Nancy McCabe, Michelle McCardle, Ty McCathran, Amy McCathran, Michael E. McConnell, Kristine Brite McCormick, Eric Melsom, William Kelly Milionis, Paula Miller, Erika Miller, Stephanie Mitchell, Cynthia A. Moore, Laura Morris, Angela Murray, Kathleen Mussatto, Steven R. Neish, Sue Nelson, Jane W. Newburger, Jeremy Nicolarsen, Autumn Niggles, Jacqueline Anne Noonan, Gail Ober, Lori O'Keefe, Marc Overcash, Jennifer Page, Matthew Vaughn Park, Mehul D. Patel, Jasmin Patel, Gail Denise Pearson, Cindy Pellegrini, Corrie Pierce, Nelangi M. Pinto, Kara Polen, Jose Alcides Quinones, Carol Raimondi, Pat Richter, Michelle Rintamaki, Elisa Robles, Geoffrey L. Rosenthal, Grahame Rush, Laura Russell, Annamarie Saarinen, Craig Andrew Sable, Joel Saltz, Terri Schaefer, Kathryn Schubert, Vida Schwartz, Stuart K. Shapira, Kathleen Sheehan, Brenda Silverman, Regina Simeone, Juanita Smith, Kimberly E. Smith, Kristina Smith, Marci Sontag, Shubhika Srivastava, Corrie Stassen, Corey Stiver, Kathryn Taubert, Judy Thibadeau, John P. Thomas, Dena Thomas, Vivian Baldassari Thorne, Linda Tiernan, Susan Timmins, Colby Tiner, Natalie Torentinos, Glenn Tringali, James S. Tweddell, Lisa M. Vasquez, Amy Verstappen, Janice Ware, Caron Watkins, Catherine L. Webb, Ellen Weiss, Marina Weiss, Gil Wernovsky, Gretchen Whitehurst, Herbert Whitley, Jennifer Witten, Austin Henry Wong, Matthew Wright, Robert Wynbrant, Bistra Zheleva

Publikováno v: Journal of the American Heart Association: Cardiovascular and Cerebrovascular Disease

In a 2012 meeting at the Centers for Disease Control and Prevention (CDC), key experts and stakeholders identified public health knowledge gaps about congenital heart defects (CHDs), namely prevalence of CHDs across the life span, long‐term outcome

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::5264db1f746990eb21195b85e29068d9
https://doi.org/10.1161/jaha.116.004148