Zobrazeno 1 - 10
of 13
pro vyhledávání: '"K. M. Mayre-Chilton"'
Autor:
K. Martin, S. Geuens, J. K. Asche, R. Bodan, F. Browne, A. Downe, N. García García, G. Jaega, B. Kennedy, P. J. Mauritz, F. Pérez, K. Soon, V. Zmazek, K. M. Mayre-Chilton
Publikováno v:
Orphanet Journal of Rare Diseases, Vol 14, Iss 1, Pp 1-21 (2019)
Abstract Epidermolysis Bullosa (EB) is a group of rare genetic disorders resulting in skin fragility and other symptoms. Commissioned by DEBRA International and funded by DEBRA Norway, this evidence-bases guideline provides recommendations to optimis
Externí odkaz:
https://doaj.org/article/7348f2b52f4c44d4b0b09e02b78d5b6b
Autor:
K. M. Mayre-Chilton, E I Pillay, K. Snelson, Anja Diem, M. Torres Pradilla, R. Saad, C. Knight, Danielle Greenblatt, M. Werkentoft, Jemima E. Mellerio, Dedee F. Murrell, N. Azzopardi, Zena Moore, K. Thompson, D. Patton, S. Widhiati
Publikováno v:
The British journal of dermatology. 186(4)
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::50b0f47763514f4e49be491a1cdfd9c5
https://pubmed.ncbi.nlm.nih.gov/34687549
https://pubmed.ncbi.nlm.nih.gov/34687549
Autor:
L.D. Hubbard, R. Fawkes, B. Faitli, M. O'Sullivan, K. M. Mayre-Chilton, Jemima E. Mellerio, M.T. Khan, L. James, Adam G. Harris, M. Fitzpatrick, L. Iacobaccio, L. Brains, T. Vlahovic, M. Wood
Publikováno v:
British Journal of Dermatology. 182:593-604
This guideline was designed to provide service providers and users with an evidence-based set of current best practice guidelines for people and their families and carers, living with epidermolysis bullosa (EB). A systematic literature review relatin
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::39aede663b38ee465cfbc33ff6b0212e
https://doi.org/10.1111/bjd.18381
https://doi.org/10.1111/bjd.18381
Autor:
Florencia Pérez, K. Martin, B. Kennedy, Petra J. Mauritz, Kristina Soon, J. K. Asche, G. Jaega, F. Browne, K. M. Mayre-Chilton, Rebecca Cross Bodán, S. Geuens, N. García García, V. Zmazek, A. Downe
Publikováno v:
Orphanet Journal of Rare Diseases, Vol 14, Iss 1, Pp 1-21 (2019)
Orphanet Journal of Rare Diseases
Orphanet Journal of Rare Diseases
Epidermolysis Bullosa (EB) is a group of rare genetic disorders resulting in skin fragility and other symptoms. Commissioned by DEBRA International and funded by DEBRA Norway, this evidence-bases guideline provides recommendations to optimise psychos
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::b6bb01696b770950e0a1835bd6ede188
http://link.springer.com/article/10.1186/s13023-019-1086-5
http://link.springer.com/article/10.1186/s13023-019-1086-5
Autor:
L. James, Adam G. Harris, L.D. Hubbard, M. Wood, M. Fitzpatrick, L. Brains, L. Iacobaccio, M.T. Khan, T. Vlahovic, K. M. Mayre-Chilton, B. Faitli, M. O'Sullivan, Jemima E. Mellerio, R. Fawkes
Publikováno v:
British Journal of Dermatology. 182
Epidermolysis bullosa (EB) is a complex rare condition that affects the skin and many parts of the body. Those born with EB have skin so fragile they are called 'butterfly children', their skin is quite simply as fragile as the wing of a butterfly. I
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::df68ca5e57e0c68fa33c3f9b8b60cab6
https://doi.org/10.1111/bjd.18820
https://doi.org/10.1111/bjd.18820
Autor:
Adam G. Harris, M. Wood, K. M. Mayre-Chilton, L. James, L. Brains, T. Vlahovic, L. Iacobaccio, M. O'Sullivan, M.T. Khan, Jemima E. Mellerio, B. Faitli, L.D. Hubbard, M. Fitzpatrick, R. Fawkes
Publikováno v:
British Journal of Dermatology. 182
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::225ca10321fc00f7a07c7ab4862a24bc
https://doi.org/10.1111/bjd.18833
https://doi.org/10.1111/bjd.18833
Autor:
Lynne D. Hubbard, K. M. Mayre-Chilton
Publikováno v:
Clinical Case Reports
Epidermolysis bullosa (EB) is a group of inherited disorders characterized by blistering of the skin and mucous membranes following mechanical trauma. Four main sub‐types are based on the location of blistering in the skin: EB simplex, junctional E
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::b76d8beef956c7fd8964ff3b7b2a9978
https://doi.org/10.1002/ccr3.1898
https://doi.org/10.1002/ccr3.1898
Autor:
K. M. Mayre-Chilton, Lynne D. Hubbard
Publikováno v:
Qualitative Health Research. 25:310-319
Epidermolysis bullosa (EB) is a rare genetic condition characterized by blistering to the skin and internal mucous membranes arising from mild mechanical trauma. The impact on those affected can be significant. They might have increased nutritional r
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::79445fe6ce067b8c6937a226678e677f
https://doi.org/10.1177/1049732314549029
https://doi.org/10.1177/1049732314549029
Publikováno v:
Journal of Human Nutrition and Dietetics. 24:449-459
Background: Gastrostomy feeding in head and neck cancer patients is recognised standard practice in some cancer centres with beneficial effects on outcomes for appropriately selected patients. However, the impact on patients and care-givers needs con
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::885d246defa1b437e10779086ef1b70a
https://doi.org/10.1111/j.1365-277x.2011.01165.x
https://doi.org/10.1111/j.1365-277x.2011.01165.x
Publikováno v:
Journal of human nutrition and dietetics : the official journal of the British Dietetic Association. 24(5)
Gastrostomy feeding in head and neck cancer patients is recognised standard practice in some cancer centres with beneficial effects on outcomes for appropriately selected patients. However, the impact on patients and care-givers needs consideration.
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=pmid________::6e06db7a670f8fcd2fea45c66fe6e0da
https://pubmed.ncbi.nlm.nih.gov/21649745
https://pubmed.ncbi.nlm.nih.gov/21649745