Comparative analysis of educational needs of patients with rheumatic diseases selected based on the Polish version of the Educational Needs Assessment Tool (Pol-ENAT)

Autor: Matylda Sierakowska, Stanisław Sierakowski, Justyna Sierakowska, Elżbieta Krajewska-Kułak

Publikováno v: Rheumatology, Vol 54, Iss 4, Pp 153-160 (2016)

Objectives: Chronic rheumatic diseases, which have a progressive course, lead to large deficits in physical, mental and social functioning. In the process of the planned and systematic education of patients/families, it is extremely important to iden

Externí odkaz: https://doaj.org/article/b31262455e6f45de90a4ddcc5ba01c2d

Common measure of quality of life for people with systemic sclerosis across seven European countries: a cross-sectional study

Autor: Stanslaw Sierakowski, Roger Hesselstrand, Mwidimi Ndosi, Silvia Garcia-Diaz, Matylda Sierakowska, Francesco Del Galdo, Yannick Allanore, Begonya Alcacer-Pitarch, Gunnel Sandqvist, Marc Frerix, Ulf Mueller-Ladner, Anthony C. Redmond, Marco Matucci-Cerinic, Christine Kendall, Vicenç Torrente-Segarra, Justyna Sierakowska, T. Schmeiser

Publikováno v: Annals of the Rheumatic Diseases

ObjectivesThe aim of this study was to adapt the Systemic Sclerosis Quality of Life Questionnaire (SScQoL) into six European cultures and validate it as a common measure of quality of life in systemic sclerosis (SSc).MethodsThis was a seven-country (

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::299643a9f1eec4d14c83130a37b33c42
https://doi.org/10.1136/annrheumdis-2017-212412

Pain, fatigue and functional disability are associated with higher educational needs in systemic sclerosis:a cross-sectional study

Autor: Stanisław Sierakowski, Elżbieta Krajewska-Kułak, Matylda Sierakowska, Justyna Sierakowska, Mwidimi Ndosi

Publikováno v: Sierakowska, M, Sierakowski, S, Sierakowska, J, Krajewska-Kułak, E & Ndosi, M 2018, ' Pain, fatigue and functional disability are associated with higher educational needs in systemic sclerosis : a cross-sectional study ', Rheumatology International, vol. 38, no. 8, pp. 1471-1478 . https://doi.org/10.1007/s00296-018-3998-0
Rheumatology International

In the process of the planned and systematic education of patients/families, it is extremely important to identify patients’ health problems as well as their needs and expectations. The objective of this study was to determine the relationship betw

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::fb65c412c76ccc436fd169dc30500136
https://research-information.bris.ac.uk/en/publications/8c1b399c-c750-4ecf-a9d4-928d2427cab4

Assessment of education requirements for patients with rheumatoid arthritis, based on the Polish version of the Educational Needs Assessment Tool (Pol-ENAT), in the light of some health problems - A cross-sectional study

Autor: Piotr Leszczyński, Katarzyna Pawlak-Buś, Matylda Sierakowska, Justyna Sierakowska, Stanisław Sierakowski, Mwidimi Ndosi, Małgorzata Klepacka, Sławomir Jeka, Wojciech Romanowski, Małgorzata Bykowska-Sochacka, Marzena Olesińska, Maria Majdan, Elżbieta Krajewska-Kułak

Publikováno v: Annals of Agricultural and Environmental Medicine, Vol 23, Iss 2, Pp 361-367 (2016)

Introduction Patients with chronic rheumatoid arthritis (RA) need advice in order to face the problems of everyday life, as well as suffering associated with the disease. Health professionals should attempt to raise the level of resourcefulness and i

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::d99f6d72291ecb0bb554660bdf4d82ab
https://pubmed.ncbi.nlm.nih.gov/27294648

FRI0627-HPR Relationship Between Educational Needs and Health Problems in People With Systemic Sclerosis: A Cross-Sectional Study

Autor: Stanisław Sierakowski, Maria Majdan, Marzena Olesińska, Katarzyna Pawlak-Buś, Wojciech Romanowski, Piotr Leszczyński, Małgorzata Bykowska-Sochacka, Elżbieta Krajewska-Kułak, Matylda Sierakowska, Mwidimi Ndosi, Justyna Sierakowska

Publikováno v: Annals of the Rheumatic Diseases. 74:1328.2-1328

Background Systemic sclerosis (SSc) affects patients9 functioning, quality of life and diminishes their life expectancy. More importantly the chronic progressive nature of the disease threatens the patients9 life. In planning patient education in peo

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_________::67fd139e169ff16557c6cfa2fdd39430
https://doi.org/10.1136/annrheumdis-2015-eular.1844