Co‐Designing a Palliative Dementia Care Framework to Support Holistic Assessment and Decision Making: The EMBED‐Care Framework

Autor: Nathan Davies, Elizabeth L. Sampson, Jesutofunmi Aworinde, Juliet Gillam, Charlotte Kenten, Kirsten Moore, Bethan Phillips, Catherine Harvey, Janet Anderson, Jane Ward, Catherine J. Evans, Clare Ellis‐Smith, EMBED‐Care Team

Publikováno v: Health Expectations, Vol 27, Iss 5, Pp n/a-n/a (2024)

ABSTRACT Background People with dementia have complex palliative care needs that are often unmet, including physical and psycho‐social needs. It is essential to empower people with dementia, family carers and professionals to better assess and mana

Externí odkaz: https://doaj.org/article/ca0121a509704b5fb66b791a9f91910c

Co-design of a theory-based implementation plan for a holistic eHealth assessment and decision support framework for people with dementia in care homes

Autor: Juliet Gillam, Catherine Evans, Jesutofunmi Aworinde, Clare Ellis-Smith, Jamie Ross, Nathan Davies

Publikováno v: Digital Health, Vol 9 (2023)

Background Despite positive findings around the use of eHealth in dementia care, it is rarely translated into routine practice. This can be facilitated by early involvement of end-users in the development of an implementation plan. This study aimed t

Externí odkaz: https://doaj.org/article/d861e36924b74dab8989a42f822531dc

Implementation of eHealth to Support Assessment and Decision-making for Residents With Dementia in Long-term Care: Systematic Review

Autor: Juliet Gillam, Nathan Davies, Jesutofunmi Aworinde, Emel Yorganci, Janet E Anderson, Catherine Evans

Publikováno v: Journal of Medical Internet Research, Vol 24, Iss 2, p e29837 (2022)

BackgroundAs dementia progresses, symptoms and concerns increase, causing considerable distress for the person and their caregiver. The integration of care between care homes and health care services is vital to meet increasing care needs and maintai

Externí odkaz: https://doaj.org/article/799408b9f06c41aa8c6e4770b983c5cb

Priorities and opportunities for palliative and end of life care in United Kingdom health policies: a national documentary analysis

Autor: Janet Anderson, Katherine E Sleeman, Juliet Gillam, Richard Harding, Anna Timms, Catherine J Evans, Elizabeth L Sampson

Publikováno v: BMC Palliative Care, Vol 20, Iss 1, Pp 1-10 (2021)
BMC Palliative Care
Sleeman, K E, Timms, A, Gillam, J, Anderson, J E, Harding, R, Sampson, E L & Evans, C J 2021, ' Priorities and opportunities for palliative and end of life care in United Kingdom health policies : a national documentary analysis ', BMC Palliative Care, vol. 20, no. 1, 108 . https://doi.org/10.1186/s12904-021-00802-6

BackgroundAccess to high-quality palliative care is inadequate for most people living and dying with serious illness. Policies aimed at optimising delivery of palliative and end of life care are an important mechanism to improve quality of care for t

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::4f02b4fa50163e75ea0ab885044fc6c3
https://doaj.org/article/0a6434c00014422284e5cbf6bf2c9156

Quality indicators for dementia and older people nearing the end of life: A systematic review

Autor: Jesutofunmi Aworinde, Robert Stewart, Javiera Leniz, Rachel L. Cripps, Juliet Gillam, Lesley E. Williamson, Emel Yorganci, Katherine E Sleeman, Elizabeth L Sampson

Publikováno v: Journal of the American Geriatrics SocietyREFERENCES. 69(12)

Background Robust quality indicators (QIs) are essential for monitoring and improving the quality of care and learning from good practice. We aimed to identify and assess QIs for the care of older people and people with dementia who are nearing the e

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::a7ace566cdfb23ff8c64727421596b80
https://pubmed.ncbi.nlm.nih.gov/34331704