Zobrazeno 1 - 8
of 8
pro vyhledávání: '"Julien Patris"'
Publikováno v:
Orphanet Journal of Rare Diseases, Vol 16, Iss 1, Pp 1-8 (2021)
Abstract Background Acute hepatic porphyria (AHP) is a rare, debilitating disease characterized by potentially life-threatening attacks often resulting in chronic symptoms that negatively impact daily functioning and quality of life. Symptoms of AHP
Externí odkaz:
https://doaj.org/article/c4145e5a7061439eb60f1ef7dcd05641
Publikováno v:
Orphanet Journal of Rare Diseases, Vol 14, Iss 1, Pp 1-9 (2019)
Abstract Background A wide range of rare diseases can have fiscal impacts on government finances that extend beyond expected healthcare costs. Conditions preventing people from achieving national lifetime work averages will influence lifetime taxes p
Externí odkaz:
https://doaj.org/article/8884604d64b3467cb5facdca412a1ccd
Publikováno v:
Orphanet Journal of Rare Diseases, Vol 16, Iss 1, Pp 1-8 (2021)
Orphanet journal of rare diseases, 16(1):346. BMC
Orphanet Journal of Rare Diseases
Orphanet journal of rare diseases, 16(1):346. BMC
Orphanet Journal of Rare Diseases
Background Acute hepatic porphyria (AHP) is a rare, debilitating disease characterized by potentially life-threatening attacks often resulting in chronic symptoms that negatively impact daily functioning and quality of life. Symptoms of AHP prevent m
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::a58f792882509aa58638d0f17822c45a
https://doaj.org/article/c4145e5a7061439eb60f1ef7dcd05641
https://doaj.org/article/c4145e5a7061439eb60f1ef7dcd05641
Autor:
Amanda Whittal, Claudio Jommi, Gérard De Pouvourville, David Taylor, Lieven Annemans, Lies Schoonaert, Sebastian Vermeersch, Adam Hutchings, Julien Patris
Publikováno v:
International journal of technology assessment in health care. 38(1)
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::409675e013477ad59ae72c95577c635b
https://pubmed.ncbi.nlm.nih.gov/35274602
https://pubmed.ncbi.nlm.nih.gov/35274602
Background Acute hepatic porphyria (AHP) is a rare, debilitating disease characterized by potentially life-threatening attacks often resulting in chronic symptoms that negatively impact daily functioning and quality of life. Symptoms of AHP prevent m
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::d547dae79a07180962961ed8a0f4e33e
https://doi.org/10.21203/rs.3.rs-362734/v1
https://doi.org/10.21203/rs.3.rs-362734/v1
Publikováno v:
Orphanet Journal of Rare Diseases
Orphanet journal of rare diseases, 14(1):220. BMC
Orphanet Journal of Rare Diseases, Vol 14, Iss 1, Pp 1-9 (2019)
Orphanet journal of rare diseases, 14(1):220. BMC
Orphanet Journal of Rare Diseases, Vol 14, Iss 1, Pp 1-9 (2019)
Background A wide range of rare diseases can have fiscal impacts on government finances that extend beyond expected healthcare costs. Conditions preventing people from achieving national lifetime work averages will influence lifetime taxes paid and i
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::69c7057bb26e974e749a2e70b2876ff3
https://pubmed.ncbi.nlm.nih.gov/31533773
https://pubmed.ncbi.nlm.nih.gov/31533773
Autor:
Matthias Schwenkglenks, Julien Patris, Patricia R. Blank, Thomas D. Szucs, Christelle Saint Sardos
Publikováno v:
Vaccine. 31:2862-2867
Time from registration to population access to new vaccines can take considerable time in European countries. Reasons might be found in the regulatory framework, decision-making processes or the assessment of vaccines by evaluating bodies. The aim of
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::0d14ce2210b6edd8435a84671f513a41
https://doi.org/10.1016/j.vaccine.2013.04.039
https://doi.org/10.1016/j.vaccine.2013.04.039
Publikováno v:
Orphanet Journal of Rare Diseases
The European Orphan Medicinal Products (OMP) Regulation has successfully encouraged research to develop treatments for rare diseases resulting in the authorisation of new OMPs in Europe. While decisions on OMP designation and marketing authorisation
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::87d6c0e7019ea7621041611dd45e14eb
https://doi.org/10.1186/s13023-015-0269-y
https://doi.org/10.1186/s13023-015-0269-y