Zobrazeno 1 - 10
of 47
pro vyhledávání: '"Julie Bolen"'
Publikováno v:
Preventing Chronic Disease, Vol 13 (2016)
The mission of public health has been succinctly stated as “the fulfillment of society’s interest in assuring conditions in which people can be healthy” (1). Public and private institutions charged with this mission monitor population health an
Externí odkaz:
https://doaj.org/article/f61287e048df41389afeff8f407f9251
Autor:
Douglas Shenson, MD, MPH, MS, Julie Bolen, PhD, MPH, Laura Seeff, MD, Donald Blackman, PhD, Mary Adams, MPH
Publikováno v:
Preventing Chronic Disease, Vol 2, Iss 3 (2005)
Introduction Public health organizations in the United States emphasize the importance of providing routine screening for breast cancer, cervical cancer, and colorectal cancer, as well as vaccinations against influenza and pneumococcal disease among
Externí odkaz:
https://doaj.org/article/a30a45b353c647b9b83866738dec9c5f
Autor:
Rieza Soelaeman, Kathi Kinnett, Natalie Street, Jennifer S. Bain, Lauren Webb, Ann Martin, Julie Bolen, Katherine Ong, Christina Westfield
Publikováno v:
Pediatrics. 142:S118-S128
Care Considerations for Duchenne Muscular Dystrophy were published in 2010. However, little is known about the extent to which these considerations were implemented after publication. With this article, we provide direction on evaluating the uptake o
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::5fb8f11d6989a465928e31971ad7d1f5
https://doi.org/10.1542/peds.2018-0333n
https://doi.org/10.1542/peds.2018-0333n
Autor:
Christopher Cunniff, Christina Westfield, Julie Bolen, Joyce Oleszek, Deborah J. Fox, Paul A. Romitti, Melissa M. Adams, Jennifer Donnelly, Richard O Weinert, Natalie Street, ThuyQuynh N Do
Publikováno v:
Birth Defects Research. 110:1404-1411
Background For 10 years, the Muscular Dystrophy Surveillance, Tracking, and Research Network (MD STARnet) conducted surveillance for Duchenne and Becker muscular dystrophy (DBMD). We piloted expanding surveillance to other MDs that vary in severity,
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::a8f0ba6a560501af7a653603f4bed982
https://doi.org/10.1002/bdr2.1371
https://doi.org/10.1002/bdr2.1371
Autor:
Natalie Street, John W. Day, Julie Bolen, Kathi Kinnett, Hoda Abdel-Hamid, Anne M. Connolly, Samiah Al-Zaidy, Annie Kennedy, Jerry R. Mendell, Jennifer M. Kwon, Valerie Cwik
Publikováno v:
Muscle & Nerve. 54:186-191
New developments in the rapid diagnosis and treatment of boys with Duchenne muscular dystrophy (DMD) have led to growing enthusiasm for instituting DMD newborn screening (NBS) in the United States. Our group has been interested in developing clinical
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::c61573c18e8fd782391e388c471ecd73
https://doi.org/10.1002/mus.25185
https://doi.org/10.1002/mus.25185
Autor:
Laurie Gutmann, Nicholas E. Johnson, Julie Bolen, Natalie Street, Yinding Wang, Rodolfo Valdez, Lijing Ouyang
Publikováno v:
Muscle Nerve
INTRODUCTION In this study we examined gender differences in adult hospitalizations with myotonic dystrophy (DM). METHODS From the Nationwide Inpatient Sample (NIS) 2010-2014, we identified 1,891 adult hospitalizations with a DM diagnosis and constru
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::6944c0367ecdc306ebf83b54acb8d9cd
https://pubmed.ncbi.nlm.nih.gov/30575975
https://pubmed.ncbi.nlm.nih.gov/30575975
Autor:
Judy Thibadeau, Lijing Ouyang, Rodolfo Valdez, Patricia Beierwaltes, Yinding Wang, Brad E. Dicianno, Julie Bolen
Publikováno v:
Archives of physical medicine and rehabilitation. 100(8)
Objective To estimate differences in the length of stay and costs for comparable hospitalizations of patients with spina bifida (SB) with and without pressure injuries. Design Retrospective, cross-sectional, observational study. Setting Nationwide In
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::c1f9665d5410d25877935deb0435efb2
https://pubmed.ncbi.nlm.nih.gov/30684491
https://pubmed.ncbi.nlm.nih.gov/30684491
Autor:
David J. Birnkrant, Katharine Bushby, Leanne M Ward, Stasia Hadjiyannakis, Carla M. Bann, Susan D. Apkon, Benjamin A. Alman, Julie Bolen, Linda H. Cripe, Aaron K Olson, Laura E. Case, Daniel W. Sheehan, David R. Weber, Angela Blackwell
A coordinated, multidisciplinary approach to care is essential for optimum management of the primary manifestations and secondary complications of Duchenne muscular dystrophy (DMD). Contemporary care has been shaped by the availability of more sensit
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::94d4704dd76832aa7bbfadc0817bcc86
https://europepmc.org/articles/PMC5889091/
https://europepmc.org/articles/PMC5889091/
Autor:
Sarah K. Nabukera, Charlotte M. Druschel, Deborah J. Fox, Jennifer Andrews, Dennis J. Matthews, Emma Ciafaloni, Yong Zhu, Paul A. Romitti, Julie Bolen, Kristin M Conway, Katherine D. Mathews, F. John Meaney, Gideon K. D. Zamba, Soman Puzhankara, Melissa M. Adams, Katherine A. James, Natalie Street, Christopher Cunniff
Publikováno v:
Pediatrics. 135:513-521
OBJECTIVE:To estimate prevalence of childhood-onset Duchenne and Becker muscular dystrophies (DBMD) in 6 sites in the United States by race/ethnicity and phenotype (Duchenne muscular dystrophy [DMD] or Becker muscular dystrophy [BMD]).METHODS:In 2002
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::4a50c5eefe5b1863c0d919dc9b6a3049
https://doi.org/10.1542/peds.2014-2044
https://doi.org/10.1542/peds.2014-2044
* Abbreviations: ASD — : autism spectrum disorder CDC — : Centers for Disease Control and Prevention FMR1 — : fragile x mental retardation 1 FMRP — : fragile X mental retardation protein FXD — : fragile X–associated disorder FXS — : fra
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::fad40c9bdadd486c877bf0bee5023207
https://europepmc.org/articles/PMC5592737/
https://europepmc.org/articles/PMC5592737/