Zobrazeno 1 - 10
of 12
pro vyhledávání: '"Julie, Panepinto"'
Publikováno v:
Blood Cancer Journal, Vol 11, Iss 2, Pp 1-8 (2021)
Abstract We conducted a prospective cohort study in newly diagnosed systemic light chain (AL) amyloidosis patients (N = 59) to study patient-reported outcomes (PROs) through the first year. The median age was 68 years with 42% female, 8% Black, and 7
Externí odkaz:
https://doaj.org/article/6fd6ee4de57f4a57831f2b039df9d612
Autor:
Ann T. Farrell, Julie Panepinto, Ankit A. Desai, Adetola A. Kassim, Jeffrey Lebensburger, Mark C. Walters, Daniel E. Bauer, Rae M. Blaylark, Donna M. DiMichele, Mark T. Gladwin, Nancy S. Green, Kathryn Hassell, Gregory J. Kato, Elizabeth S. Klings, Donald B. Kohn, Lakshmanan Krishnamurti, Jane Little, Julie Makani, Punam Malik, Patrick T. McGann, Caterina Minniti, Claudia R. Morris, Isaac Odame, Patricia Ann Oneal, Rosanna Setse, Poornima Sharma, Shalini Shenoy
Publikováno v:
Blood Advances, Vol 3, Iss 23, Pp 4002-4020 (2019)
Abstract: To address the global burden of sickle cell disease and the need for novel therapies, the American Society of Hematology partnered with the US Food and Drug Administration to engage the work of 7 panels of clinicians, investigators, and pat
Externí odkaz:
https://doaj.org/article/06caa969e3bd4e5b84bcc4cdd2e86f79
Autor:
Ann T. Farrell, Julie Panepinto, C. Patrick Carroll, Deepika S. Darbari, Ankit A. Desai, Allison A. King, Robert J. Adams, Tabitha D. Barber, Amanda M. Brandow, Michael R. DeBaun, Manus J. Donahue, Kalpna Gupta, Jane S. Hankins, Michelle Kameka, Fenella J. Kirkham, Harvey Luksenburg, Shirley Miller, Patricia Ann Oneal, David C. Rees, Rosanna Setse, Vivien A. Sheehan, John Strouse, Cheryl L. Stucky, Ellen M. Werner, John C. Wood, William T. Zempsky
Publikováno v:
Blood Advances, Vol 3, Iss 23, Pp 3982-4001 (2019)
Abstract: To address the global burden of sickle cell disease (SCD) and the need for novel therapies, the American Society of Hematology partnered with the US Food and Drug Administration to engage the work of 7 panels of clinicians, investigators, a
Externí odkaz:
https://doaj.org/article/94dcc43affc1405aa07a25c3738bac96
Publikováno v:
BMC Pediatrics, Vol 18, Iss 1, Pp 1-9 (2018)
Abstract Background Measuring adolescents’ preferences for health states can play an important role in evaluating the delivery of pediatric healthcare. However, formal evaluation of the common direct preference elicitation methods for health states
Externí odkaz:
https://doaj.org/article/cc34b35a55c847eea540187393d5ff14
Publikováno v:
Cancer Medicine, Vol 7, Iss 5, Pp 1680-1688 (2018)
Abstract Little is known about the impact of cancer on family relationships from the perspective of the pediatric cancer patient and their sibling(s). This study assessed and compared children's experiences of family relationships in patients receivi
Externí odkaz:
https://doaj.org/article/254b2522d315483989c5fec3f7b59670
Publikováno v:
Journal of Clinical and Translational Science, Vol 3, Pp 141-142 (2019)
OBJECTIVES/SPECIFIC AIMS: Objectives: To examine the differences in health outcomes of adolescents and young adults treated for malignancy at a pediatric cancer center compared to an adult cancer center. To determine the differences in receipt of sup
Externí odkaz:
https://doaj.org/article/3f727ee224ba4b91a45b9443629c7d16
Autor:
Anita D'Souza, Judith Myers, Rachel Cusatis, Angela Dispenzieri, Muriel Finkel, Julie Panepinto, Kathryn E Flynn
Background Light chain (AL) amyloidosis is a plasma cell neoplasm associated with high early mortality and severe morbidity that can cause severe disability. We explored the impact of AL amyloidosis on symptoms and well-being from the perspectives of
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::edd00fe37b4d2b04cf1bab7e37ea3e0e
https://doi.org/10.21203/rs.3.rs-272559/v1
https://doi.org/10.21203/rs.3.rs-272559/v1
Autor:
Sarah, Dobrozsi, Julie, Panepinto
Publikováno v:
Pediatric bloodcancer. 64(10)
Patient-reported outcome measures (PROs) generate reproducible, objective measures of patient functioning and symptoms. Clinical PRO use has proven benefits. Parent and child preferences for the graphical display of PRO data are not known. We conduct
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=pmid________::931e29fdc2c291517b16866f52f7a9f0
https://pubmed.ncbi.nlm.nih.gov/28409886
https://pubmed.ncbi.nlm.nih.gov/28409886
Publikováno v:
Pediatric bloodcancer. 64(4)
Changes in patient function and factors affecting pediatric patients with cancer during treatment are largely unknown. The purpose of this study was to measure patient-reported outcomes (PROs) in children during the initial 6 months of therapy to cha
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=pmid________::9aa0dba29a86c6caa5da6a69b34f62a3
https://pubmed.ncbi.nlm.nih.gov/27808460
https://pubmed.ncbi.nlm.nih.gov/27808460
Publikováno v:
Pediatric bloodcancer. 61(4)
Vitamin B12 deficiency is rare in children, with nonspecific symptoms including failure to thrive, vomiting, anorexia, and neurologic changes with or without hematologic disturbances. The neuropathy can be severe and irreversible. We report four case
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=pmid________::9b0711adb54981abefea8b79ede8ab78
https://pubmed.ncbi.nlm.nih.gov/24115632
https://pubmed.ncbi.nlm.nih.gov/24115632