Whole-genome sequencing for TB source investigations: principles of ethical precision public health.

Autor: van Rie, A., de Viedma, D.G., Meehan, Conor J., Comas, I., Heupink, T.H., De Vos, E., de Onate, W.A., Mathys, V., Ceyssens, P-J., Groenen, G., González-Candelas, F., Forier, A., Juengst, E.

Yes
BACKGROUND: Whole-genome sequencing (WGS) of Mycobacterium tuberculosis allows rapid, accurate inferences about the sources, location and timing of transmission. However, in an era of heightened concern for personal privacy and science distr

Externí odkaz: http://hdl.handle.net/10454/18526

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Including all voices in international data-sharing governance

Autor: Kaye, J, Terry, SF, Juengst, E, Coy, S, Harris, JR, Chalmers, D, Dove, ES, Budin-Ljøsne, I, Adebamowo, C, Ogbe, E, Bezuidenhout, LM, Morrison, M, Minion, JT, Murtagh, MJ, Minari, J, Teare, H, Isasi, R, Kato, K, Rial-Sebbag, E, Marshall, P, Koenig, B, Cambon-Thomsen, A

Publikováno v: HUMAN GENOMICS
Human Genomics
Kaye, J, Terry, S F, Juengst, E, Coy, S, Harris, J R, Chalmers, D, Dove, E S, Budin-Ljøsne, I, Adebamowo, C, Ogbe, E, Bezuidenhout, L, Morrison, M, Minion, J T, Murtagh, M J, Minari, J, Teare, H, Isasi, R, Kato, K, Rial-Sebbag, E, Marshall, P, Koenig, B & Cambon-Thomsen, A 2018, ' Including all voices in international data-sharing governance ', Human genomics, vol. 12, no. 13, pp. 1-6 . https://doi.org/10.1186/s40246-018-0143-9
Human Genomics, Vol 12, Iss 1, Pp 1-6 (2018)

Background Governments, funding bodies, institutions, and publishers have developed a number of strategies to encourage researchers to facilitate access to datasets. The rationale behind this approach is that this will bring a number of benefits and

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=pmid_dedup__::ba30bd4242e9273cddadeaf757a354a2
https://hdl.handle.net/1854/LU-8557886

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Human genome research and the public interest: progress notes from an American science policy experiment

Autor: Juengst, E. T.

This essay reviews the efforts of the U.S. Human Genome Project to anticipate and address the ethical, legal, and social implications of new advances in human genetics. Since 1990, approximately $10 million has been awarded by the National Institutes

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=pmid________::11deb45943f1de784a59194cef7ab4f0
https://europepmc.org/articles/PMC1918076/