Zobrazeno 1 - 10
of 66
pro vyhledávání: '"Jori F, Bogetz"'
Autor:
Mikhaila N. Layshock, Amy S. Porter, Jori F. Bogetz, Lydia McLachlan, Sydney Weill, Abby Rosenberg, Joseph G. Winger, Amy Houtrow, Robert B. Noll, Yael Schenker, Justin A. Yu
Publikováno v:
Children, Vol 11, Iss 9, p 1151 (2024)
Objective: To better understand the strategies family caregivers of children with medical complexity (CMC) utilize to deal with the stress and challenges associated with caregiving. Methods: We conducted a cross-sectional qualitative study among fami
Externí odkaz:
https://doaj.org/article/00faa84fbd9b412db3c97ba40335f7ee
Autor:
Jackelyn Y. Boyden, Jori F. Bogetz, Emily E. Johnston, Rachel Thienprayoon, Conrad S.P. Williams, Michael J. McNeil, Arika Patneaude, Kimberley A. Widger, Abby R. Rosenberg, Prasanna Ananth
Publikováno v:
Journal of Pain and Symptom Management. 65:e483-e495
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::24524c98414131a55b576b938668e19e
https://doi.org/10.1016/j.jpainsymman.2023.01.021
https://doi.org/10.1016/j.jpainsymman.2023.01.021
Autor:
Jori F. Bogetz, Monica E. Lemmon
Publikováno v:
Pediatric Neurology. 144:104-106
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::bd34d34c3e8dc85658c05d11884a1169
https://doi.org/10.1016/j.pediatrneurol.2023.04.022
https://doi.org/10.1016/j.pediatrneurol.2023.04.022
Publikováno v:
Journal of palliative medicine. 25(9)
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::36a2df85bf3c8e6a8af28acd6b14c835
https://pubmed.ncbi.nlm.nih.gov/35593900
https://pubmed.ncbi.nlm.nih.gov/35593900
Autor:
Maggie C. Root, Jane Koo, Griffin Collins, Neela L. Penumarthy, Michelle Hermiston, Jori F. Bogetz
Publikováno v:
Journal of Pediatric Hematology/Oncology Nursing. 40:170-177
Background: Children with relapsed/refractory cancer have a myriad of palliative care needs. While pediatric oncology clinicians meet many of these needs, studies suggest that these children often have distressing symptoms and that families feel unpr
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::1b97c7591ce776c49bee091b4337b437
https://doi.org/10.1177/27527530221140069
https://doi.org/10.1177/27527530221140069
Autor:
Jori F. Bogetz, Emily Johnston, Prasanna Ananth, Arika Patneaude, Rachel Thienprayoon, Abby R. Rosenberg
Publikováno v:
Journal of Pain and Symptom Management. 64:e123-e131
Children with serious illness deserve high-quality pediatric palliative care (PPC). With expansion of PPC provision, it is important to understand the quality improvement (QI) activities of PPC clinicians and programs.To describe the 1) background, e
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::8d880648f72297c23314bb33e5db94f5
https://doi.org/10.1016/j.jpainsymman.2022.04.182
https://doi.org/10.1016/j.jpainsymman.2022.04.182
Publikováno v:
Hospital Pediatrics. 12:832-842
OBJECTIVE Children with complex chronic conditions (CCCs) and their parents benefit from supportive serious illness care when their conditions are severe and impact their quality of life and stress. This includes not only expert medical care but also
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::d76e63bc2cf526d680b955348d0c90ed
https://doi.org/10.1542/hpeds.2022-006596
https://doi.org/10.1542/hpeds.2022-006596
Publikováno v:
Global Pediatric Health, Vol 6 (2019)
Perinatal loss, including fetal and infant death, is a devastating experience for parents, resulting in long-term adverse physical and psychosocial outcomes. However, little is known about what services might best support grieving parents. We aimed t
Externí odkaz:
https://doaj.org/article/61b4411daddf4fefa1d3885dfebc1646
Autor:
Jori F, Bogetz, Amy, Trowbridge, Hannah, Lewis, Danielle, Jonas, Julie, Hauer, Abby R, Rosenberg
Publikováno v:
Hospital Pediatrics. 12:282-292
OBJECTIVES Care for children with severe neurologic impairment (SNI) often involves complex medical decision-making where therapeutic alliance between clinicians and families is essential. Yet, existing data suggest that communication and alliance ar
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::78a824af23bbc2282da7ba7f4398a9f9
https://doi.org/10.1542/hpeds.2021-006316
https://doi.org/10.1542/hpeds.2021-006316
Publikováno v:
J Palliat Med
Background: Many children with complex chronic conditions (CCCs) are supported by medical technologies. Objective: The aim of this study was to understand bereaved parent perspectives on technology assistance among this unique population. Design: Mix
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::7773bd892a383a174a8504830ad0d8ea
https://doi.org/10.1089/jpm.2021.0221
https://doi.org/10.1089/jpm.2021.0221