Výsledky vyhledávání - "Johnson, Ramsey"

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Additional file 4 of A prospective short-term study to evaluate methodologies for the assessment of disease extent, impact, and wound evolution in patients with dystrophic epidermolysis bullosa

Autor: Paller, Amy S., Pope, Elena, Rudin, Dan, Malyala, Anna, Ramsdell, Deborah, Johnson, Ramsey, Landy, Hal, Murrell, Dedee F.

Additional file 4. Disease-related questionnaires and instruments by age group. Shows distribution of disease-related questionnaire and instrument scores by age group.

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::5acffc6ad0bfb7978ccceaabb28fdc90

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Additional file 2 of A prospective short-term study to evaluate methodologies for the assessment of disease extent, impact, and wound evolution in patients with dystrophic epidermolysis bullosa

Autor: Paller, Amy S., Pope, Elena, Rudin, Dan, Malyala, Anna, Ramsdell, Deborah, Johnson, Ramsey, Landy, Hal, Murrell, Dedee F.

Additional file 2. Baseline characteristics of wounds that were healed, recurrent, or still present at week 2 and week 4. Lists baseline wound characteristics by wound status at week 2 and week 4.

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::1fba9e78101d482beb0ac6b2ca9a306b

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Additional file 1 of A prospective short-term study to evaluate methodologies for the assessment of disease extent, impact, and wound evolution in patients with dystrophic epidermolysis bullosa

Autor: Paller, Amy S., Pope, Elena, Rudin, Dan, Malyala, Anna, Ramsdell, Deborah, Johnson, Ramsey, Landy, Hal, Murrell, Dedee F.

Additional file 1. Investigators and central readers. List of investigators and central readers who participated in this study.

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::1e462838d2a3a85bd310aca377c4af4e

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Additional file 3 of A prospective short-term study to evaluate methodologies for the assessment of disease extent, impact, and wound evolution in patients with dystrophic epidermolysis bullosa

Autor: Paller, Amy S., Pope, Elena, Rudin, Dan, Malyala, Anna, Ramsdell, Deborah, Johnson, Ramsey, Landy, Hal, Murrell, Dedee F.

Additional file 3. Distribution of impact on quality of life by skin involvement. Lists distribution of impact on quality of life as assessed by QOLEB, DLQI, and CDLQI by skin involvement.

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::12a3daf999f8ad2b3a3fe8e3cce8185f

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Additional file 5 of A prospective short-term study to evaluate methodologies for the assessment of disease extent, impact, and wound evolution in patients with dystrophic epidermolysis bullosa

Autor: Paller, Amy S., Pope, Elena, Rudin, Dan, Malyala, Anna, Ramsdell, Deborah, Johnson, Ramsey, Landy, Hal, Murrell, Dedee F.

Additional file 5. Additional methods. Includes additional information on scales used in this study.

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::14c7ce1889eba7886f9b1eeeffa95cad

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MOESM2 of Natural history of X-linked hypohidrotic ectodermal dysplasia: a 5-year follow-up study

Autor: Wohlfart, Sigrun, Meiller, Ralph, Hammersen, Johanna, Park, Jung, Menzel-Severing, Johannes, Melichar, Volker, Huttner, Kenneth, Johnson, Ramsey, Porte, Florence, Schneider, Holm

Additional file 2. ED-related medical history. Reported abnormalities.

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::854461b6cf3ad842d8f392bc817cde53

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