Zobrazeno 1 - 10
of 15
pro vyhledávání: '"Johannes JM van Delden"'
Publikováno v:
BMC Medical Ethics, Vol 25, Iss 1, Pp 1-5 (2024)
Abstract Certain organoid subtypes are particularly sensitive. We explore whether moral intuitions about the heartbeat warrant unique moral consideration for newly advanced contracting cardiac organoids. Despite the heartbeat’s moral significance i
Externí odkaz:
https://doaj.org/article/04aed670977a4fa0a27021049393026c
Autor:
Juno HK Bergers, Hester Wessels-Wynia, Tatjana Seute, Astrid Janssens, Johannes JM van Delden
Publikováno v:
Journal of Participatory Medicine, Vol 16, p e48573 (2024)
BackgroundPerson-centered care (PCC) encourages patients to actively participate in health care, thus facilitating care that fits the life of the patient. Therefore, health care professionals (HCPs) need to know the patient. As part of a broad policy
Externí odkaz:
https://doaj.org/article/beaca28f51fe42a88a2e8c75445021f2
Autor:
Madelon T Heijltjes, Ghislaine JMW van Thiel, Judith AC Rietjens, Agnes van der Heide, Geeske Hendriksen, Johannes JM van Delden
Publikováno v:
BMC Palliative Care, Vol 22, Iss 1, Pp 1-7 (2023)
Abstract Background Continuous deep sedation (CDS) can be used for patients at the end of life who suffer intolerably from severe symptoms that cannot be relieved otherwise. In the Netherlands, the use of CDS is guided by an national guideline since
Externí odkaz:
https://doaj.org/article/c6d90db54ae3403db85a2b9dcd785448
Publikováno v:
BMC Medical Ethics, Vol 24, Iss 1, Pp 1-9 (2023)
Abstract Background Pregnant people have been overlooked or excluded from clinical research, resulting in a lack of scientific knowledge on medication safety and efficacy during pregnancy. Thus far, both the opportunities to generate evidence-based k
Externí odkaz:
https://doaj.org/article/f5adf731242f4b00adfb1a14e364e7e7
Publikováno v:
Digital Health, Vol 9 (2023)
Dynamic consent forms a comprehensive, tailored approach for interacting with research participants. We conducted a survey study to inquire how research participants evaluate the elements of consent, information provision, communication and return of
Externí odkaz:
https://doaj.org/article/2cdb8ac6fac54a9d9d0e9409f1273395
Autor:
Sally Okun, Morgan Hanger, Letitia Browne-James, Tara Montgomery, Gary Rafaloff, Johannes JM van Delden
Publikováno v:
Journal of Medical Internet Research, Vol 25, p e41095 (2023)
BackgroundPersonal information, including health-related data, may be used in ways we did not intend when it was originally shared. However, the organizations that collect these data do not always have the necessary social license to use and share it
Externí odkaz:
https://doaj.org/article/af35ecc7c0754dd9b48a8cf4deb40be3
Autor:
Sam HA Muller, Menno Mostert, Johannes JM van Delden, Thomas Schillemans, Ghislaine JMW van Thiel
Publikováno v:
Big Data & Society, Vol 9 (2022)
Current challenges to sustaining public support for health data research have directed attention to the governance of data-intensive health research networks. Accountability is hailed as an important element of trustworthy governance frameworks for d
Externí odkaz:
https://doaj.org/article/d4d0c09f84174e0ab5c0fea933d79390
Autor:
Ida J Korfage, Suzanne Polinder, Nancy Preston, Johannes JM van Delden, Sandra (A)JLM Geraerds, Lesley Dunleavy, Kristof Faes, Guido Miccinesi, Giulia Carreras, Caroline Moeller Arnfeldt, Marijke C Kars, Giuseppe Lippi, Urska Lunder, Ceu Mateus, Kristian Pollock, Luc Deliens, Mogens Groenvold, Agnes van der Heide, Judith AC Rietjens
Publikováno v:
Palliative Medicine, 37(5), 707-718. SAGE Publications Ltd
PALLIATIVE MEDICINE
Korfage, I J, Polinder, S, Preston, N, van Delden, J J, Geraerds, S A J, Dunleavy, L, Faes, K, Miccinesi, G, Carreras, G, Moeller Arnfeldt, C, Kars, M C, Lippi, G, Lunder, U, Mateus, C, Pollock, K, Deliens, L, Groenvold, M, van der Heide, A & Rietjens, J A 2023, ' Healthcare use and healthcare costs for patients with advanced cancer; the international ACTION cluster-randomised trial on advance care planning ', Palliative Medicine, vol. 37, no. 5, pp. 707-718 . https://doi.org/10.1177/02692163221142950
PALLIATIVE MEDICINE
Korfage, I J, Polinder, S, Preston, N, van Delden, J J, Geraerds, S A J, Dunleavy, L, Faes, K, Miccinesi, G, Carreras, G, Moeller Arnfeldt, C, Kars, M C, Lippi, G, Lunder, U, Mateus, C, Pollock, K, Deliens, L, Groenvold, M, van der Heide, A & Rietjens, J A 2023, ' Healthcare use and healthcare costs for patients with advanced cancer; the international ACTION cluster-randomised trial on advance care planning ', Palliative Medicine, vol. 37, no. 5, pp. 707-718 . https://doi.org/10.1177/02692163221142950
Background: Advance care planning supports patients to reflect on and discuss preferences for future treatment and care. Studies of the impact of advance care planning on healthcare use and healthcare costs are scarce. Aim: To determine the impact on
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::7355b0451270daabe8a8f4e384011388
https://pure.eur.nl/en/publications/22dc577d-b009-449f-836b-eb13d4a50610
https://pure.eur.nl/en/publications/22dc577d-b009-449f-836b-eb13d4a50610
Autor:
Sally Okun, Morgan Hanger, Letitia Browne-James, Tara Montgomery, Gary Rafaloff, Johannes JM van Delden
BACKGROUND Personal information, including health-related data, may be used in ways we did not intend when it was originally shared. However, the organizations that collect these data do not always have the necessary social license to use and share i
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::a8b1787d838322ff05fe87ef13cc241d
https://doi.org/10.2196/preprints.41095
https://doi.org/10.2196/preprints.41095
Autor:
Eline VTJ van Lummel, Larissa Ietswaard, Nicolaas PA Zuithoff, Dave HT Tjan, Johannes JM van Delden
Publikováno v:
Palliative medicine. 36(7)
Background: The surprise question is widely used to identify patients nearing the last phase of life. Potential differences in accuracy between timeframe, patient subgroups and type of healthcare professionals answering the surprise question have bee
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::9fb3b1541b99032deb8c7c9edf31e369
https://pubmed.ncbi.nlm.nih.gov/36068701
https://pubmed.ncbi.nlm.nih.gov/36068701