Zobrazeno 1 - 10
of 18
pro vyhledávání: '"Joanne, Odenkirchen"'
Autor:
Susan T. Iannaccone, Robin Feldman, Katherine D. Mathews, Michael W. Lawlor, Joanne Odenkirchen, Sherita Alai-Hansen, Francesco Muntoni
Publikováno v:
Journal of Neuromuscular Diseases. 5:75-84
Background A Congenital Muscular Dystrophy (CMD) Working Group (WG) consisting of international experts reviewed common data elements (CDEs) previously developed for other neuromuscular diseases (NMDs) and made recommendations for all types of studie
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::2a8fa17d2848ac2f09705a5ba77e667b
https://doi.org/10.3233/jnd-170248
https://doi.org/10.3233/jnd-170248
Autor:
David D. Limbrick, Sherita Ala'i, John D. Heiss, Allison E. Ashley-Koch, Dorothy. J. Poppe, Robert Riddle, Kaitlyn M Esposito, Joy Esterlitz, Bryn A. Martin, Joanne Odenkirchen, Ulrich Batzdorf, Brandon G. Rocque, Robin Feldman, Roger W. Kula, Cormac O. Maher, Kristen Joseph, Paolo A. Bolognese, Mark G. Luciano
Publikováno v:
Neurosurgery
The management of Chiari I malformation (CMI) is controversial because treatment methods vary and treatment decisions rest on incomplete understanding of its complex symptom patterns, etiologies, and natural history. Validity of studies that attempt
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::a3c322642b7377c984a7778de4cb1b6b
https://europepmc.org/articles/PMC7054710/
https://europepmc.org/articles/PMC7054710/
Autor:
Liz Amos, Joy Esterlitz, Christophe Ludet, Sherita Ala'i, Muniza Sheikh, Joanne Odenkirchen, Jose I. Suarez
Publikováno v:
Stroke. 48
Introduction: The National Institute of Neurological Disorders and Stroke (NINDS) and the National Library of Medicine (NLM) initiated development of cerebral aneurysms and subarachnoid hemorrhage (SAH)-specific Common Data Elements (CDEs) in 2015 as
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::710aca667a6c52decb561f46cef78776
https://doi.org/10.1161/str.48.suppl_1.tp419
https://doi.org/10.1161/str.48.suppl_1.tp419
Autor:
Jörg B. Schulz, Kristy Miller, Robert E. Shaddy, Petra Kaufmann, Massimo Pandolfo, Martin B. Delatycki, Kenneth H. Fischbeck, Joanne Odenkirchen, David A. Lynch, Paul F. Kantor, Lisa Hunegs, Subha V. Raman, Susan Perlman, Jennifer M. Farmer, R. Mark Payne
Publikováno v:
Movement Disorders. 28:190-195
To reduce study start-up time, increase data sharing, and assist investigators conducting clinical studies, the National Institute of Neurological Disorders and Stroke embarked on an initiative to create common data elements for neuroscience clinical
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::2fdbfe47cbd2d2b281b5c01c1f2fa274
https://doi.org/10.1002/mds.25201
https://doi.org/10.1002/mds.25201
Autor:
Charles Mohan, Jerry Vockley, Melissa A. Parisi, Amy Goldstein, Joanne Odenkirchen, Steven Yannicelli, Andrew E. Mulberg, Philip E. Yeske, Erin L. MacLeod, Katrina Gwinn, Grainne S. Gorman, Amel Karaa, Kathryn M. Camp, Lynne A. Wolfe, Bruce H. Cohen, Shawne K. Suggs-Anderson, Rashmi Gopal-Srivastava, Freddie Ann Hoffman, Gregory M. Enns, W.H. Wilson Tang, Sumit Parikh, Christine S. Cox, Michio Hirano, Paul M. Coates, Marni J. Falk, Stephen P. Hersh, Robert McFarland, Danuta Krotoski, Patricia J. Rutherford
Publikováno v:
Molecular genetics and metabolism. 119(3)
In December 2014, a workshop entitled "Nutritional Interventions in Primary Mitochondrial Disorders: Developing an Evidence Base" was convened at the NIH with the goals of exploring the use of nutritional interventions in primary mitochondrial disord
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::a2328c8f39f9ad8d432de9460568f66e
https://pubmed.ncbi.nlm.nih.gov/27665271
https://pubmed.ncbi.nlm.nih.gov/27665271
Autor:
C. Calhoun Thielen, Anke Scheel-Sailer, Ellen Merete Hagen, Lyn B. Jakeman, Erin H. Kelly, Rebecca Martin, Marika Augutis, Juan Carlos Arango-Lasprilla, E Garner, Kathy Zebracki, Heather B. Taylor, M Sheikh, Mary Jane Mulcahey, L C Vogel, Joanne Odenkirchen, Jennifer Schottler
Publikováno v:
Spinal cord. 55(4)
In 2014, the adult spinal cord injury (SCI) common data element (CDE) recommendations were made available. This project was a review of the adult SCI CDE for relevance to children and youth with SCI. The objective of this study was to review the Nati
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::131398f768a9612f70aff0da0087ec5b
https://pubmed.ncbi.nlm.nih.gov/27845358
https://pubmed.ncbi.nlm.nih.gov/27845358
Autor:
Teresa Buracchio, Elsa Shapiro, Florian Eichler, Peter Como, Andrew E. Mulberg, Alison Skrinar, Melissa A. Parisi, Susan E. Waisbren, Sarrit Kovacs, Joanne Odenkirchen, Jessica Bernstein, Melissa Hogan, Ann J. Barbier, Jonathan W. Mink, Jonathan Goldsmith, Heather R. Adams, Kathleen A. Delaney
Well-defined and reliable clinical outcome assessments are essential for determining whether a drug provides clinically meaningful treatment benefit for patients. In 2015, FDA convened a workshop, "Assessing Neurocognitive Outcomes in Inborn Errors o
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::f9b81d563520db10784a7dc42076de48
https://europepmc.org/articles/PMC4895194/
https://europepmc.org/articles/PMC4895194/
Autor:
Joy R Esterlitz, Jeffrey L Saver, Steven Warach, Thomas G Brott, Ralph L Sacco, Muniza Sheikh, Sherita Ala'i, Joanne Odenkirchen
Publikováno v:
Stroke. 47
Introduction: In order to increase the efficiency and effectiveness of neurovascular clinical research studies, increase data quality, facilitate data sharing, help educate new clinical investigators and reduce study start-up time, the National Insti
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::fd08060b68c74b8097454cb9daa3bb04
https://doi.org/10.1161/str.47.suppl_1.wp332
https://doi.org/10.1161/str.47.suppl_1.wp332
Autor:
Oscar R. Benavente, Joseph P. Broderick, Steven Warach, Lee H. Schwamm, Alexander W. Dromerick, Joanne Odenkirchen, Mitchell S.V. Elkind, Kyra J. Becker, Scott Janis, Pamela W. Duncan, Karen C. Johnston, James F. Meschia, Chelsea S. Kidwell, Jeffrey L. Saver
Publikováno v:
Stroke. 43:967-973
Background and Purpose— The National Institute of Neurological Disorders and Stroke initiated development of stroke-specific Common Data Elements (CDEs) as part of a project to develop data standards for funded clinical research in all fields of ne
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::60e032dea049a8997a7ff35a8cbbba44
https://doi.org/10.1161/strokeaha.111.634352
https://doi.org/10.1161/strokeaha.111.634352
Publikováno v:
Journal of Neurotrauma. 29:634-638
Traumatic brain injury (TBI) is a significant global health problem, with a notably high incidence in children and adolescents. Despite the prevalence of TBI and the disabilities that often follow, research on which to base effective treatment is lim
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::f3b731817d55f196021a7d3db511cffa
https://doi.org/10.1089/neu.2011.1932
https://doi.org/10.1089/neu.2011.1932