Výsledky vyhledávání - "Joana E, Matos"

Akademický článek

Quantifying the impact of symptomatic acute hepatic porphyria on well‐being via patient‐reported outcomes: Results from the Porphyria Worldwide Patient Experience Research (POWER) study

Autor: Amy Dickey, Kristen Wheeden, Desiree Lyon, Sue Burrell, Sean Hegarty, Rocco Falchetto, Edrin R. Williams, Jasmin Barman‐Aksözen, Marc DeCongelio, Alison Bulkley, Joana E. Matos, Tarek Mnif, Jordanna Mora, John J. Ko, Stephen Meninger, Stephen Lombardelli, Danielle Nance

Publikováno v: JIMD Reports, Vol 64, Iss 1, Pp 104-113 (2023)

Abstract Acute hepatic porphyria (AHP) is a group of rare genetic diseases of heme biosynthesis resulting in severe neurovisceral attacks and chronic complications that negatively impact patients' well‐being. This study evaluated the impacts of AHP

Externí odkaz: https://doaj.org/article/887c80c7c03843749b79f3357324015a

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Akademický článek

The burden of illness of patients with paroxysmal nocturnal haemoglobinuria receiving C5 inhibitors: clinical outcomes and medical encounters from the patient perspective

Autor: Flore Sicre de Fontbrune, Pascale Burmester, Maria Piggin, Joana E. Matos, Halley Costantino, Koo Wilson, Zalmai Hakimi, Jameel Nazir, Renaud Desgraz, Jesse Fishman, Emmelie Persson, Jens Panse

Publikováno v: Hematology, Vol 27, Iss 1, Pp 1140-1151 (2022)

Objectives: To assess the clinical and healthcare resource burden among C5 inhibitor (C5i)-treated patients with paroxysmal nocturnal haemoglobinuria (PNH), using patient-reported data.Methods: This web-based, cross-sectional survey (01FEB2021–31MA

Externí odkaz: https://doaj.org/article/13e3821e9c2a412cab0f9cfc7f7a30c6

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Akademický článek

Preference for Contraceptive Implant Among Women 18?44 years old

Autor: Joana E. Matos, Bridget L. Balkaran, Jillian Rooney, Simone Crespi

Publikováno v: Women's Health Reports, Vol 2, Iss 1, Pp 622-632 (2021)

Introduction: This study aimed to understand women's preferences regarding the subdermal contraceptive implant and to assess the proportion of women who would be underserved (with increased unintended pregnancies as the consequence) by not providing

Externí odkaz: https://doaj.org/article/e8fff769ae4b42a48214de4aad0f4a41

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Akademický článek

Understanding the Burdens Associated with Huntington’s Disease in Manifest Patients and Care Partners–Comparing to Parkinson’s Disease and the General Population

Autor: Alex Exuzides, Joana E. Matos, Anisha M. Patel, Ashley A. Martin, Bryan Ricker, Danny Bega

Publikováno v: Brain Sciences, Vol 12, Iss 2, p 161 (2022)

Background: The study provides real-world data on the impact of Huntington’s disease (HD) from the perspective of individuals with HD (IHD) and care partners (HD-CP) and contextualizes these results relative to Parkinson’s disease (PD) and the ge

Externí odkaz: https://doaj.org/article/b018a17f3d834ae49328c33fc6ff88ab

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The burden of illness in patients with paroxysmal nocturnal hemoglobinuria receiving treatment with the C5-inhibitors eculizumab or ravulizumab: results from a US patient survey

Autor: David Dingli, Joana E. Matos, Kerri Lehrhaupt, Sangeeta Krishnan, Michael Yeh, Jesse Fishman, Sujata P. Sarda, Scott B. Baver

Publikováno v: Annals of Hematology

Paroxysmal nocturnal hemoglobinuria (PNH) is a rare and life-threatening disease with symptoms of hemolysis and thrombosis. Current therapies for this complement-mediated disease rely predominantly on inhibition of the C5 complement protein. However,

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::22cbf05f538f76dee01e531cb7847dea
http://europepmc.org/articles/PMC8720163

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Association between red blood cell transfusion dependence and burden in patients with myelodysplastic syndromes: A systematic literature review and meta‐analysis

Autor: Thomas Schroeder, Austin G. Kulasekararaj, Derek Tang, Joana E. Matos, Mayra Braga Lemos, Sarah Ramalho Rodrigues

Publikováno v: European Journal of Haematology. 107:3-23

Myelodysplastic syndromes (MDS) are a group of malignant hematologic diseases characterized by ineffective hematopoiesis, which may lead to chronic anemia and transfusion dependency, with up to 30% of patients progressing to acute myeloid leukemia (A

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::2a9c00478adfd2c7a94d8919944d1e74
https://doi.org/10.1111/ejh.13619

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Factors associated with the discontinuation of dipeptidyl peptidase-4 inhibitors (DPP-4is) after initiation of insulin

Autor: Dena H. Jaffe, Lingfeng Yang, Joana E. Matos, Gail Fernandes, Kristy Iglay, Ira Gantz, Grace Dibonaventura Beyer, Swapnil Rajpathak

Publikováno v: Current Medical Research and Opinion. 36:377-386

Objective: Type 2 diabetes (T2D) is a prevalent health problem. Oral agents, with the exception of metformin, are often discontinued with the initiation of insulin. The objective was to understand ...

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::586fb5ff630aa1e75e95a946bc8ff687
https://doi.org/10.1080/03007995.2019.1698416

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