Evaluation of a web-based registry of inherited bleeding disorders: a descriptive study of the Brazilian experience with HEMOVIDAweb Coagulopatias

Autor: Suely Meireles, Rezende, Silvia Helena Lacerda, Rodrigues, Kelly Neves Pinheiro, Brito, Diego Lima Quintino, da Silva, Marcos Lázaro, Santo, Bárbara de Jesus, Simões, Guilherme, Genovez, Helder Teixeira, Melo, João Paulo Baccara, Araújo, Danila Augusta Accioly Varella, Barca, Walquíria Lima, de Almeida

Publikováno v: Repositório Institucional da UFMG
Universidade Federal de Minas Gerais (UFMG)
instacron:UFMG
Orphanet Journal of Rare Diseases

Inherited bleeding disorders (IBD) consist of a group of rare heterogeneous diseases, which require treatment for life. Management of these disorders is complex and costly. Therefore, good quality data of the affected population is crucial to guide p

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::14483770cb78c3043592610c8db429b4
https://doi.org/10.1186/s13023-016-0560-6