The Scleroderma Patient-centered Intervention Network Self-Management (SPIN-SELF) Program: protocol for a two-arm parallel partially nested randomized controlled feasibility trial with progression to full-scale trial.

Autor: Nordlund J; Lady Davis Institute of the Jewish General Hospital, 3755 Côte-Sainte-Catherine Road, Montreal, Quebec, H3T 1E2, Canada., Henry RS; Lady Davis Institute of the Jewish General Hospital, 3755 Côte-Sainte-Catherine Road, Montreal, Quebec, H3T 1E2, Canada.; Department of Psychiatry, McGill University, Montreal, Quebec, Canada., Kwakkenbos L; Department of Clinical Psychology, Radboud University, Nijmegen, The Netherlands.; Department of Medical Psychology, Radboud Institute for Health Sciences, Radboud University Medical Center, Nijmegen, The Netherlands., Carrier ME; Lady Davis Institute of the Jewish General Hospital, 3755 Côte-Sainte-Catherine Road, Montreal, Quebec, H3T 1E2, Canada., Levis B; Centre for Prognosis Research, School of Medicine, Keele University, Keele, Staffordshire, UK., Nielson WR; St. Joseph's Health Care, London, Ontario, Canada., Bartlett SJ; Department of Medicine, McGill University, Montreal, Quebec, Canada.; Centre for Outcomes Research and Evaluation, Research Institute of the McGill University Health Centre, Montreal, Quebec, Canada., Dyas L; Scleroderma Foundation, Michigan Chapter, Southfield, MI, USA., Tao L; Lady Davis Institute of the Jewish General Hospital, 3755 Côte-Sainte-Catherine Road, Montreal, Quebec, H3T 1E2, Canada., Fedoruk C; Lady Davis Institute of the Jewish General Hospital, 3755 Côte-Sainte-Catherine Road, Montreal, Quebec, H3T 1E2, Canada., Nielsen K; Scleroderma Society of Ontario, Hamilton, Ontario, Canada., Hudson M; Lady Davis Institute of the Jewish General Hospital, 3755 Côte-Sainte-Catherine Road, Montreal, Quebec, H3T 1E2, Canada.; Department of Medicine, McGill University, Montreal, Quebec, Canada., Pope J; Department of Medicine, University of Western Ontario, London, Ontario, Canada., Frech T; Department of Internal Medicine, University of Utah, Salt Lake City, UT, USA., Gholizadeh S; California School of Professional Psychology/Alliant, Los Angeles, CA, USA., Johnson SR; Toronto Scleroderma Program, Mount Sinai Hospital & Toronto Western Hospital, Toronto, Ontario, Canada.; Institute of Health Policy, Management, and Evaluation, University of Toronto, Toronto, Ontario, Canada., Piotrowski P; Private practice - Nutrition, Milton, Ontario, Canada., Jewett LR; Department of Psychology, Jewish General Hospital, Montreal, Quebec, Canada., Gordon J; Department of Medicine, Hospital for Special Surgery, New York City, NY, USA., Chung L; Department of Medicine, Stanford University, Palo Alto, CA, USA.; Department of Medicine, Palo Alto VA Health Care System, Palo Alto, CA, USA., Bilsker D; Faculty of Health Sciences, Simon Fraser University, Burnaby, British Columbia, Canada.; Department of Psychiatry, University of British Columbia, Vancouver, British Columbia, Canada., Levis AW; Department of Biostatistics, Harvard T. H. Chan School of Public Health, Boston, MA, USA., Turner KA; Lady Davis Institute of the Jewish General Hospital, 3755 Côte-Sainte-Catherine Road, Montreal, Quebec, H3T 1E2, Canada., Cumin J; Lady Davis Institute of the Jewish General Hospital, 3755 Côte-Sainte-Catherine Road, Montreal, Quebec, H3T 1E2, Canada., Welling J; NVLE Dutch patient organization for systemic autoimmune diseases, Utrecht, The Netherlands., Fortuné C; Ottawa Scleroderma Support Group, Ottawa, Ontario, Canada., Leite C; University of Minho, Braga, Portugal., Gottesman K; Scleroderma Foundation, Los Angeles, CA, USA., Sauve M; Scleroderma Society of Ontario, Hamilton, Ontario, Canada.; Scleroderma Canada, Hamilton, Ontario, Canada., Rodríguez-Reyna TS; Instituto Nacional de Ciencias Médicas y Nutrición Salvador Zubirán, Mexico City, Mexico., Larche M; Department of Health Research Methods, Evidence and Impact, McMaster University, Hamilton, Ontario, Canada., van Breda W; Faculty of Behavioural and Movement Sciences, VU University, Amsterdam, The Netherlands., Suarez-Almazor ME; Department of General Internal Medicine, University of Texas MD Anderson Cancer Center, Houston, TX, USA., Wurz A; School of Kinesiology, University of the Fraser Valley, Chilliwack, British Columbia, Canada., Culos-Reed N; Faculty of Kinesiology, University of Calgary, Calgary, Alberta, Canada.; Department of Oncology, Cumming School of Medicine, Calgary, Canada.; Department of Psychosocial Resources, Tom Baker Cancer Centre, Alberta Health Services, Calgary, Alberta, Canada., Malcarne VL; Department of Psychology, San Diego State University, San Diego, CA, USA.; Joint Doctoral Program in Clinical Psychology, San Diego State University/University of California San Diego, San Diego, CA, USA., Mayes MD; Department of Internal Medicine, University of Texas McGovern School of Medicine, Houston, TX, USA., Boutron I; Université de Paris, Centre of Research Epidemiology and Statistics (CRESS), Inserm, INRA, Paris, France.; Centre d'Épidémiologie Clinique, Assistance Publique-Hôpitaux de Paris (AP-HP), Hôpital Hôtel Dieu, Paris, France., Mouthon L; Service de Médecine Interne, Centre de Référence Maladies Autoimmunes Systémiques Rares d'Ile de France, Hôpital Cochin, Assistance Publique-Hôpitaux de Paris (AP-HP), Paris, France.; APHP-CUP, Hôpital Cochin, Université de Paris, F-75014, Paris, France., Benedetti A; Department of Medicine, McGill University, Montreal, Quebec, Canada.; Department of Epidemiology, Biostatistics, and Occupational Health, McGill University, Montreal, Quebec, Canada.; Respiratory Epidemiology and Clinical Research Unit, McGill University Health Centre, Montreal, Quebec, Canada., Thombs BD; Lady Davis Institute of the Jewish General Hospital, 3755 Côte-Sainte-Catherine Road, Montreal, Quebec, H3T 1E2, Canada. brett.thombs@mcgill.ca.; Department of Psychiatry, McGill University, Montreal, Quebec, Canada. brett.thombs@mcgill.ca.; Department of Medicine, McGill University, Montreal, Quebec, Canada. brett.thombs@mcgill.ca.; Department of Epidemiology, Biostatistics, and Occupational Health, McGill University, Montreal, Quebec, Canada. brett.thombs@mcgill.ca.; Respiratory Epidemiology and Clinical Research Unit, McGill University Health Centre, Montreal, Quebec, Canada. brett.thombs@mcgill.ca.; Department of Psychology, McGill University, Montreal, Quebec, Canada. brett.thombs@mcgill.ca.; Department of Educational and Counselling Psychology, McGill University, Montreal, Quebec, Canada. brett.thombs@mcgill.ca.; Biomedical Ethics Unit, McGill University, Montreal, Quebec, Canada. brett.thombs@mcgill.ca.

Publikováno v: Trials [Trials] 2021 Nov 27; Vol. 22 (1), pp. 856. Date of Electronic Publication: 2021 Nov 27.

Reliability and Validity of Three Versions of the Brief Fear of Negative Evaluation Scale in Patients With Systemic Sclerosis: A Scleroderma Patient-Centered Intervention Network Cohort Study.

Autor: Fox RS; Northwestern University Feinberg School of Medicine, Chicago, Illinois, and San Diego State University/University of California, San Diego Joint Doctoral Program in Clinical Psychology, San Diego., Kwakkenbos L; Lady Davis Institute for Medical Research, Jewish General Hospital, and McGill University, Montreal, Quebec, Canada, and Radboud University, Nijmegen, The Netherlands., Carrier ME; Lady Davis Institute for Medical Research, Jewish General Hospital, Montreal, Quebec, Canada., Mills SD; San Diego State University/University of California San Diego Joint Doctoral Program in Clinical Psychology, San Diego., Gholizadeh S; San Diego State University/University of California San Diego Joint Doctoral Program in Clinical Psychology, San Diego., Jewett LR; Lady Davis Institute for Medical Research, Jewish General Hospital, and McGill University, Montreal, Quebec, Canada., Roesch SC; San Diego State University/University of California San Diego Joint Doctoral Program in Clinical Psychology, and San Diego State University, San Diego., Merz EL; California State University Dominguez Hills, Carson., Assassi S; University of Texas McGovern Medical School, Houston., Furst DE; Geffen School of Medicine at the University of California, Los Angeles., Gottesman K; Scleroderma Foundation, Danvers, Massachusetts., Mayes MD; University of Texas McGovern Medical School, Houston., Thombs BD; Lady Davis Institute for Medical Research, Jewish General Hospital, and McGill University, Montreal, Quebec, Canada., Malcarne VL; San Diego State University/University of California San Diego Joint Doctoral Program in Clinical Psychology, and San Diego State University, San Diego.

Publikováno v: Arthritis care & research [Arthritis Care Res (Hoboken)] 2018 Nov; Vol. 70 (11), pp. 1646-1652.

Drip and ship versus direct to endovascular thrombectomy: The impact of treatment times on transport decision-making.

Autor: Holodinsky JK; Department of Community Health Sciences, University of Calgary, Calgary, Alberta, Canada.; Hotchkiss Brain Institute, University of Calgary, Calgary, Alberta, Canada., Patel AB; Department of Community Health Sciences, University of Calgary, Calgary, Alberta, Canada.; O'Brien Institute for Public Health, University of Calgary, Calgary, Alberta, Canada., Thornton J; Department of Neuroradiology, Royal College of Surgeons in Ireland, Dublin, Ireland.; Beaumont Hospital, Dublin, Ireland., Kamal N; Department of Clinical Neurosciences, University of Calgary, Calgary, Alberta, Canada., Jewett LR; Department of Geography, University of Calgary, Calgary, Alberta, Canada., Kelly PJ; Neurovascular Unit for Translational and Therapeutics Research, Mater Misericordiae University Hospital/University College Dublin, Dublin, Ireland., Murphy S; Department of Geriatric and Stroke Medicine, Royal College of Surgeons in Ireland, Dublin, Ireland.; Mater Misericordiae University Hospital, Dublin, Ireland., Collins R; Department of Geriatric and Stroke Medicine, Tallaght Hospital, Dublin, Ireland., Walsh T; 12Department of Stroke and Geriatric Medicine, Galway University Hospital, Galway, Ireland., Cronin S; Cork NeuroScience Centre, University College Cork, Cork, Ireland.; Department of Neurology, Cork University Hospital, Cork, Ireland., Power S; 15Department of Neuroradiology, Beaumont Hospital, Dublin, Ireland., Brennan P; 15Department of Neuroradiology, Beaumont Hospital, Dublin, Ireland., O'hare A; 15Department of Neuroradiology, Beaumont Hospital, Dublin, Ireland., McCabe DJ; 16Department of Neurology, Stroke Service, and Vascular Neurology Research Foundation, The Adelaide and Meath Hospital (incorporating the National Children's Hospital), Dublin, Ireland.; Department of Clinical Neurosciences, UCL Institute of Neurology, London, UK.; Academic Unit of Neurology, School of Medicine, Trinity College Dublin, Dublin, Ireland., Moynihan B; 19Department of Geriatric and Stroke Medicine, Beaumont Hospital, Dublin, Ireland., Looby S; 15Department of Neuroradiology, Beaumont Hospital, Dublin, Ireland., Wyse G; Department of Neuroradiology, Cork University Hospital, Cork, Ireland., McCormack J; Faculty of Science and Health, Dublin City University, Dublin, Ireland., Marsden P; Department of Public Health, Health Services Executive, Tulamore, Ireland., Harbison J; Department of Medical Gerontology, Trinity College Dublin, Dublin, Ireland., Hill MD; Department of Community Health Sciences, University of Calgary, Calgary, Alberta, Canada.; Hotchkiss Brain Institute, University of Calgary, Calgary, Alberta, Canada.; Department of Clinical Neurosciences, University of Calgary, Calgary, Alberta, Canada.; Department of Radiology, University of Calgary, Calgary, Alberta, Canada.; Department of Medicine, University of Calgary, Calgary, Alberta, Canada.; Calgary Stroke Program, University of Calgary, Calgary, Alberta, Canada., Williams D; Beaumont Hospital, Dublin, Ireland.; Department of Geriatric and Stroke Medicine, Royal College of Surgeons in Ireland, Dublin, Ireland.

Publikováno v: European stroke journal [Eur Stroke J] 2018 Jun; Vol. 3 (2), pp. 126-135. Date of Electronic Publication: 2018 Feb 14.

Factor structure and convergent validity of the Derriford Appearance Scale-24 using standard scoring versus treating 'not applicable' responses as missing data: a Scleroderma Patient-centered Intervention Network (SPIN) cohort study.

Autor: Merz EL; Department of Psychology, California State University, Dominguez Hills, Carson, California, USA., Kwakkenbos L; Lady Davis Institute for Medical Research, Jewish General Hospital, Montreal, Quebec, Canada.; Department of Psychiatry, McGill University, Montreal, Quebec, Canada.; Behavioral Science Institute, Clinical Psychology, Radboud University, Nijmegen, The Netherlands., Carrier ME; Lady Davis Institute for Medical Research, Jewish General Hospital, Montreal, Quebec, Canada., Gholizadeh S; San Diego State University/University of California San Diego Joint Doctoral Program in Clinical Psychology, San Diego, California, USA., Mills SD; San Diego State University/University of California San Diego Joint Doctoral Program in Clinical Psychology, San Diego, California, USA., Fox RS; San Diego State University/University of California San Diego Joint Doctoral Program in Clinical Psychology, San Diego, California, USA.; Department of Medical Social Sciences, Northwestern University Feinberg School of Medicine, Chicago, Illinois, USA., Jewett LR; Lady Davis Institute for Medical Research, Jewish General Hospital, Montreal, Quebec, Canada.; Department of Educational and Counseling Psychology, McGill University, Montreal, Quebec, Canada., Williamson H; Centre for Appearance Research, Faculty of Health and Life Science, University of the West of England, Bristol, UK., Harcourt D; Centre for Appearance Research, Faculty of Health and Life Science, University of the West of England, Bristol, UK., Assassi S; Department of Internal Medicine, Division of Rheumatology, University of Texas McGovern Medical School, Houston, Texas, USA., Furst DE; Division of Rheumatology, Geffen School of Medicine at the University of California, Los Angeles, California, USA., Gottesman K; Scleroderma Foundation, Los Angeles, California, USA., Mayes MD; Department of Internal Medicine, Division of Rheumatology, University of Texas McGovern Medical School, Houston, Texas, USA., Moss TP; Centre for Appearance Research, Faculty of Health and Life Science, University of the West of England, Bristol, UK., Thombs BD; Lady Davis Institute for Medical Research, Jewish General Hospital, Montreal, Quebec, Canada.; Department of Psychiatry, McGill University, Montreal, Quebec, Canada.; Department of Educational and Counseling Psychology, McGill University, Montreal, Quebec, Canada.; Department of Epidemiology, Biostatistics, and Occupational Health, McGill University, Montreal, Quebec, Canada.; Department of Medicine, McGill University, Montreal, Quebec, Canada., Malcarne VL; San Diego State University/University of California San Diego Joint Doctoral Program in Clinical Psychology, San Diego, California, USA.; Department of Psychology, San Diego State University, San Diego, California, USA.

Publikováno v: BMJ open [BMJ Open] 2018 Mar 06; Vol. 8 (3), pp. e018641. Date of Electronic Publication: 2018 Mar 06.

Reasons for Not Participating in Scleroderma Patient Support Groups: A Cross-Sectional Study.

Autor: Gumuchian ST; Lady Davis Institute of the Jewish General Hospital and McGill University, Montreal, Quebec, Canada., Delisle VC; Lady Davis Institute of the Jewish General Hospital and McGill University, Montreal, Quebec, Canada., Peláez S; Lady Davis Institute of the Jewish General Hospital and McGill University, Montreal, Quebec, Canada., Malcarne VL; San Diego Joint Doctoral Program in Clinical Psychology, San Diego State University/University of California, San Diego., El-Baalbaki G; University of Quebec at Montreal, Montreal, Quebec, Canada., Kwakkenbos L; Lady Davis Institute of the Jewish General Hospital and McGill University, Montreal, Quebec, Canada, and Behavioural Science Institute, Clinical Psychology, Radboud University, Nijmegen, The Netherlands., Jewett LR; Lady Davis Institute of the Jewish General Hospital and McGill University, Montreal, Quebec, Canada., Carrier ME; Lady Davis Institute of the Jewish General Hospital, Montreal, Quebec, Canada., Pépin M; Lady Davis Institute of the Jewish General Hospital, Montreal, Quebec, Canada., Thombs BD; Lady Davis Institute of the Jewish General Hospital and McGill University, Montreal, Quebec, Canada.

Publikováno v: Arthritis care & research [Arthritis Care Res (Hoboken)] 2018 Feb; Vol. 70 (2), pp. 275-283. Date of Electronic Publication: 2018 Jan 11.