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Publikováno v:
Developmental Medicine & Child Neurology. 32:1078-1086
Ventilator assistance is offered to patients with Duchenne muscular dystrophy as an option to extend life. This paper discusses the effect of respiratory difficulties and the subsequent quality of life for 17 patients and 14 family members living in
Autor:
Susan Maria Peltier, Thomas Kline, Jay Portnow, Marilyn A. Daly, Carol Chin, Jessica Robins Miller
Publikováno v:
Clinics in Geriatric Medicine. 7:695-706
The home is the most natural setting for rehabilitation. At home, the patient and family become active team members and the plan of care is created and carried out in the environment in which the patient will live. Home rehabilitation enhances the pa
Publikováno v:
Developmental medicine and child neurology. 30(2)
SUMMARY The question of extending the lives of patients with progressive neuromuscular disease by means of ventilator support is controversial. It has been documented that ventilators can prolong the lives of patients with Duchenne muscular dystrophy