Zobrazeno 1 - 10
of 121
pro vyhledávání: '"Jenny, Lam"'
Autor:
Jessica Keeley, Aysha Stroobach, Meg Huston, Andrew Wilson, Jenny Lam, Adelaide Withers, Cornelia van Veldhuisen, Gareth Baynam, Jenny Downs
Publikováno v:
Rare, Vol 2, Iss , Pp 100039- (2024)
People living with rare diseases had a high risk of negative health outcomes due to COVID-19. Pandemic preparedness will ensure best practice procedures and optimal outcomes during future pandemic events. This paper sought to understand the needs of
Externí odkaz:
https://doaj.org/article/637ce87cd5384d2f967dad04862a7fd9
Autor:
Jenny Lam, Sophie Stoppa-Vaucher, Maria Cristina Antoniou, Thérèse Bouthors, Inge Ruiz, Nicole Sekarski, Tobias Rutz, Sophie Fries, Pierre Alain Binz, Florence Niel Bütschi, Nicolas Vulliemoz, Aneta Gawlik, Nelly Pitteloud, Michael Hauschild, Kanetee Busiah
Publikováno v:
Frontiers in Endocrinology, Vol 14 (2023)
IntroductionTurner syndrome association with multi-organ system comorbidities highlights the need for effective implementation of follow-up guidelines. We aimed to assess the adequacy of care with international guidelines published in 2007 and 2017 a
Externí odkaz:
https://doaj.org/article/34ae3e2c350445a98a05891762642c8b
Autor:
David Waterhouse, Jenny Lam, Keith A. Betts, Lei Yin, Sophie Gao, Yong Yuan, John Hartman, Sumati Rao, Solomon Lubinga, David Stenehjem
Publikováno v:
Data in Brief, Vol 37, Iss , Pp 107195- (2021)
While results from clinical trials are important in determining the efficacy of treatment, restrictive eligibility criteria may limit generalizability to patient populations in the real-world setting. Real-world analyses can therefore identify subgro
Externí odkaz:
https://doaj.org/article/a764dbdf6af741ba9f3f84cc2b459a8f
Publikováno v:
Journal of Sleep Medicine. 20:11-18
Objectives: To explore how respiratory health and sleep problems affect mental health in children and adolescents with neuromuscular disorders (NMDs).Methods: A qualitative descriptive study was carried out with content analysis of in-depth interview
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::0765648c6ec9fda4f46c39acf34d120d
https://doi.org/10.13078/jsm.220026
https://doi.org/10.13078/jsm.220026
Publikováno v:
Alzheimer’s & Dementia: Diagnosis, Assessment & Disease Monitoring, Vol 13, Iss 1, Pp n/a-n/a (2021)
Abstract Introduction The approval of a disease‐modifying Alzheimer's disease (AD) treatment could provide relief to US state budgets that were hit hard by the COVID‐19 pandemic, as mostly Medicare would cover treatment cost, whereas Medicaid wou
Externí odkaz:
https://doaj.org/article/04c7d0671c1f4e90a131bde9ca8e77b5
Publikováno v:
BJPsych Open, Vol 6 (2020)
BackgroundUnplanned readmissions rates are an important indicator of the quality of care provided in a psychiatric unit. However, there is no validated risk model to predict this outcome in patients with psychotic spectrum disorders.AimsThis paper ai
Externí odkaz:
https://doaj.org/article/abab09438fcf4c818184c0a759d5c6ea
Autor:
Anna-Lena Neehus, Jenny Lam, Kathrin Haake, Sylvia Merkert, Nico Schmidt, Adele Mucci, Mania Ackermann, Madline Schubert, Christine Happle, Mark Philipp Kühnel, Patrick Blank, Friederike Philipp, Ralph Goethe, Danny Jonigk, Ulrich Martin, Ulrich Kalinke, Ulrich Baumann, Axel Schambach, Joachim Roesler, Nico Lachmann
Publikováno v:
Stem Cell Reports, Vol 10, Iss 1, Pp 7-16 (2018)
Summary: Mendelian susceptibility to mycobacterial disease (MSMD) is caused by inborn errors of interferon gamma (IFNγ) immunity and is characterized by severe infections by weakly virulent mycobacteria. Although IFNγ is the macrophage-activating f
Externí odkaz:
https://doaj.org/article/5ff42fcd6204401ca253decebf56355d
Publikováno v:
Developmental Medicine & Child Neurology. 65:664-673
This study explored how children and adolescents with a neuromuscular disorder (NMD) and their parents experienced barriers and enablers to the child's participation.This was a qualitative descriptive design. Fourteen semi-structured interviews were
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::cdb9db8d2b4235f7c7991d2842195c32
https://doi.org/10.1111/dmcn.15437
https://doi.org/10.1111/dmcn.15437
Autor:
Ewa Galaj, Guo-Hua Bi, Benjamin Klein, Briana Hempel, Anver Basha Shaik, Emma S. Gogarnoiu, Jacob Friedman, Jenny Lam, Rana Rais, John F. Reed, Shelley H. Bloom, Tracy L. Swanson, Jennifer L. Schmachtenberg, Amy J. Eshleman, Aaron Janowsky, Zheng-Xiong Xi, Amy Hauck Newman
Publikováno v:
Neuropsychopharmacology. 47:2309-2318
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::0d8581437ec2390de249cb8d99bc1090
https://doi.org/10.1038/s41386-022-01379-1
https://doi.org/10.1038/s41386-022-01379-1
Feasibility of Routine Quality of Life Measurement for People Living With Dementia in Long-Term Care
Autor:
Kyle Corbett, Hannah M O'Rourke, Kelli I. Stajduhar, Anna Song Beeber, Shovana Shrestha, Emily Dymchuk, Ian Simons, Carole A. Estabrooks, Matthias Hoben, Laura J Hughes, Rashmi Devkota, Jenny Lam, Sube Banerjee, Stephanie A. Chamberlain
Publikováno v:
Journal of the American Medical Directors Association. 23:1221-1226
OBJECTIVES Maximizing quality of life (QoL) is the ultimate goal of long-term dementia care. However, routine QoL measurement is rare in nursing home (NH) and assisted living (AL) facilities. Routine QoL measurement might lead to improvements in resi
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::5c6368ddbd67c9ff7fcdf3506da40b45
https://doi.org/10.1016/j.jamda.2021.07.018
https://doi.org/10.1016/j.jamda.2021.07.018