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pro vyhledávání: '"Jennifer R. Fishman"'
Autor:
Jennifer R. Fishman
Publikováno v:
Medicating Modern America ISBN: 9780814784426
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::2473932284641b793406c459c1a428d6
https://doi.org/10.18574/nyu/9780814784426.003.0011
https://doi.org/10.18574/nyu/9780814784426.003.0011
Autor:
Michelle L McGowan, Jennifer R Fishman, Richard A Settersten, Marcie A Lambrix, Eric T Juengst
Publikováno v:
PLoS ONE, Vol 9, Iss 9, p e108484 (2014)
Many commentators on "direct-to-consumer" genetic risk information have raised concerns that giving results to individuals with insufficient knowledge and training in genomics may harm consumers, the health care system, and society. In response, seve
Externí odkaz:
https://doaj.org/article/1450ad3c1bea4672865da3f356e4ec33
Publikováno v:
Social Science & Medicine. 289:114366
Authorities within the field of palliative care frequently espouse that assisted death is - and must remain - separate from palliative care. This fault line, between palliative care and assisted death, has important implications for how we enact end-
Publikováno v:
Annual Review of Genomics and Human Genetics. 18:357-367
Participatory approaches to genomic research manifest along a continuum from bottom-up citizen-science initiatives designed to liberate scientific inquiry from the constraints of traditional research institutional contexts and professional practices
Autor:
Eric T. Juengst, Karen M. Meagher, Michelle L. McGowan, Richard A. Settersten, Jennifer R. Fishman
Publikováno v:
Annual Review of Genomics and Human Genetics. 18:369-387
In addition to genetic data, precision medicine research gathers information about three factors that modulate gene expression: lifestyles, environments, and communities. The relevant research tools—epidemiology, environmental assessment, and socio
Autor:
Jennifer R. Fishman, Marcie Lambrix, Eric T. Juengst, Michelle L. McGowan, Suparna Choudhury, Richard A. Settersten
Publikováno v:
BioSocieties. 12:494-519
This paper investigates how groups of ‘citizen scientists’ in non-traditional settings and primarily online networks claim to be challenging conventional genomic research processes and norms. Although these groups are highly diverse, they all dis
Autor:
Katrina Karkazis, Jennifer R. Fishman
Publikováno v:
The American Journal of Bioethics. 17:45-60
Professional sport in the United States has widely adopted biometric technologies, dramatically expanding the monitoring of players' biodata. These technologies have the potential to prevent injuries, improve performance, and extend athletes' careers
Publikováno v:
Social Science & Medicine. 170:188-196
‘Suffering’ is a central discursive trope for the right-to-die movement. In this article, we ask how proponents of physician-assisted dying (PAD) articulate suffering with the role of medicine at the end of life within the context of a decriminal
Publikováno v:
Hastings Center Report. 46:21-33
Since the late 1980s, the human genetics and genomics research community has been promising to usher in a "new paradigm for health care"-one that uses molecular profiling to identify human genetic variants implicated in multifactorial health risks. A
Publikováno v:
Mortality. 22:45-59
Since the 1990s, there has been a growing global movement to legalise the controversial practice of physician-assisted dying (PAD). In the last twenty years, 13 jurisdictions have decriminalised or legalised PAD which, in turn, have produced new know