Expanding the boundaries of previously obtained informed consent in research: Views from participants in the Personalised Risk‐based Mammascreening study

Autor: Jennifer E. Lutomski, Linda Rainey, Milou deJong, Peggy Manders, Mireille J. M. Broeders

Publikováno v: Health Expectations, Vol 26, Iss 3, Pp 1308-1317 (2023)

Abstract Introduction Understanding participants' concerns and information needs regarding broadened consent is crucial to ensure transparency and participant autonomy. Our study qualitatively examined these issues in women participating in the Perso

Externí odkaz: https://doaj.org/article/e01a7bcf02ad48b8a5783e531d59e39f

The Radboud Biobank: A Central Facility for Disease-Based Biobanks to Optimise Use and Distribution of Biomaterial for Scientific Research in the Radboud University Medical Center, Nijmegen

Autor: Peggy Manders, Jennifer E. Lutomski, Cees Smit, Dorine W. Swinkels, Gerhard A. Zielhuis

Publikováno v: Open Journal of Bioresources, Vol 5, p 2 (2018)

The Radboud Biobank offers disease-based biobanks a centralized facility to optimize the use and distribution of biomaterial for scientific research. Notably, two population biobanks are also included in this collection. All collections are professio

Externí odkaz: https://doaj.org/article/7bdb33bf82444231806b4854ec6a609f

FAIR data sharing: An international perspective on why medical researchers are lagging behind

Autor: Linda Rainey, Jennifer E Lutomski, Mireille JM Broeders

Publikováno v: Big Data & Society, 10, 1
Big Data & Society, 10

FAIR data, that is, Findable, Accessible, Interoperable, and Reusable data, and Big Data intersect across issues related to data storage, access, and processing. The solution-oriented FAIR principles serve an integral role in improving Big Data; yet

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::8a5bac147f80838753363e58d57e3bb3

What women want: Exploring pregnant women’s preferences for alternative models of maternity care

Autor: Christopher G. Fawsitt, Jane Bourke, Rosemary Murphy, Sarah Meaney, Jennifer E. Lutomski, Richard A. Greene, Brendan McElroy

Publikováno v: Fawsitt, C G, Bourke, J, Lutomski, J E, Meaney, S, McElroy, B, Murphy, R & Greene, R A 2017, ' What women want : Exploring pregnant women's preferences for alternative models of maternity care ', Health Policy, vol. 121, no. 1, pp. 66-74 . https://doi.org/10.1016/j.healthpol.2016.10.010

Depending on obstetric risk, maternity care may be provided in one of two locations at hospital level: a consultant-led unit (CLU) or a midwifery-led unit (MLU). Care in a MLU is sparsely provided in Ireland, comprising as few as two units out of a t

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::66daad6d78b1aba09b656205beba1266
https://doi.org/10.1016/j.healthpol.2016.10.010

Reliability and Validity of the International Dementia Alliance Schedule for the Assessment and Staging of Care in Ireland

Autor: Brian A. Lawlor, Mirjam Schepens, Irene Bruce, Marcel G. M. Olde Rikkert, Jennifer E. Lutomski

Publikováno v: American Journal of Geriatric Psychiatry, 24, 297-300
American Journal of Geriatric Psychiatry, 24, 4, pp. 297-300

Item does not contain fulltext OBJECTIVE: To independently assess the inter-rater reliability of the International Dementia Alliance (IDEAL) schedule in Ireland and to examine criterion validity for cognitive functioning and caregiver distress. METHO

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::3d92573e8ec8217789b9b900deb4b5a3
https://doi.org/10.1016/j.jagp.2015.10.002