Cancer data quality and harmonization in Europe: the experience of the BENCHISTA Project – international benchmarking of childhood cancer survival by stage

Autor: Angela Lopez-Cortes, Fabio Didonè, Laura Botta, Lisa L. Hjalgrim, Zsuzsanna Jakab, Adela Cañete Nieto, Charles Stiller, Bernward Zeller, Gemma Gatta, Kathy Pritchard-Jones, The BENCHISTA Project Working Group, Joanne Aitken, Leisa O’Neil, Monika Hack, Ruth Ladenstein, Elizabeth Van Eycken, Nancy Van Damme, Lindsay Frazier, Beatriz De Camargo, Marceli de Oliveira Santos, Zdravka Valerianova, Dobrin Konstantinov, Sumit Gupta, Jason D Pole, Mario Sekerija, Jan Stary, Jaroslav Sterba, Jeanette F Winther, Keiu Paapsi, Brigitte Lacour, Emmanuel Desandes, Jacqueline Clavel, Claire Poulalhon, Friederike Erdmann, Eleni T Petridou, Evdoxia Bouka, Michael Mian, Rocco Galasso, Giuseppe Sampietro, Francesco Vetrano, Milena M Maule, Carlotta Sacerdote, Paola Ballotari, Emilia De Santis, Margherita Ferrante, Rosalia Ragusa, Luca Boni, Magda Rognoni, Rosalba Amodio, Lorenza Boschetti, Francesco Cuccaro, Danila Bruno, Antonio G Russo, Federico Gervasi, Maria L Gambino, Elisabetta Borciani, Maria Michiara, Lucia Mangone, Gianbattista Spagnoli, Stefano Ferretti, Fabio Falcini, Eugenia Spata, Sonia Manasse, Paola Coccia, Francesca Bella, Adele Caldarella, Teresa Intrieri, Tiziana Scuderi, Roberto V Rizzello, Massimo Rugge, Stefano Guzzinati, Deirdre Murray, Tomohiro Matsuda, Kayo Nakata, Miriam J Azzopardi, Aina H Dahlen, Johannesen Tom Børge, Jerzy Kowalczyk, Monika Jedrzejczyk, Gabriela Caldas, Mihaela Bucurenci, Dana Coza, Vesna Zadnik, Arantza Lopez de Munain, Fernando Almela-Vich, Nieves Fuster-Camarena, Ra f a e l Marcos-Gragera, Maria José Sanchez, Nuria Aragones, Raquel Lopez, Maria Dolores Chirlaque, Marcela Guevara, Elena Pardo, Rafael Peris-Bonet, Marià Carulla, Päivi Lähteenmäki, Claudia E Kuehni, Shelagh M Redmond, Henrike Karim-Kos, Paul Stacey, Lucy Irvine, Anna Gavin, Deirdre Fitzpatrick, David S Morrison, Karen Smith, Dyfed Wyn Huws, Janet Warlow, Sandra Strauss, Simon Bailey, Adela Canete Nieto, Nathalie Gaspar, Filippo Spreafico, Angela Polanco, Riccardo Capocaccia, Andrea Di Cataldo, Meric Klein

Publikováno v: Frontiers in Oncology, Vol 13 (2023)

IntroductionVariation in stage at diagnosis of childhood cancers (CC) may explain differences in survival rates observed across geographical regions. The BENCHISTA project aims to understand these differences and to encourage the application of the T

Externí odkaz: https://doaj.org/article/399b6f215939447192dd0aa7bfe6f14a

Cohort profile: Risk and risk factors for female breast cancer after treatment for childhood and adolescent cancer: an internationally pooled cohort

Autor: Cecile M Ronckers, Leontien C M Kremer, Matthew J Ehrhardt, Rebecca M Howell, Louis S Constine, Leslie L Robison, Kevin C Oeffinger, Melissa M Hudson, Gregory T Armstrong, Mike Hawkins, Raoul Reulen, Nadia Haddy, Flora E van Leeuwen, Jop C Teepen, Claudia E Kuehni, Jeanette F Winther, Florent de Vathaire, Lene Mellemkjær, Miriam R Conces, Helena J H van der Pal, Daniel M Green, Chaya S Moskowitz, Nicolas Waespe, Yuehan Wang, Wendy Leisenring, Michael A Arnold, Charlotte Demoor-Goldschmidt, Ibrahima Diallo, Joseph P Neglia, Michael Schaapveld, Lucie M Turcotte, K Scott Baker, Amy Berrington de González, Tara O Henderson, Geert O Janssens

Publikováno v: BMJ Open, Vol 12, Iss 11 (2022)

Purpose The International Consortium for Pooled Studies on Subsequent Malignancies after Childhood and Adolescent Cancer was established in 2018 to address gaps in knowledge of risk and risk factors for breast cancer subsequent to childhood/adolescen

Externí odkaz: https://doaj.org/article/0dc81006204d415c964575a3004e10a7

Effects of early maternal cancer and fertility treatment on the risk of adverse birth outcomes

Autor: Cathrine Everhøj, Filippa Nyboe Norsker, Catherine Rechnitzer, Sofie de Fine Licht, Thomas T Nielsen, Susanne K. Kjær, Allan Jensen, Marie Hargreave, Jane Christensen, Federica Belmonte, Stine Kjaer Urhoj, Katrine Strandberg-Larsen, Jeanette F Winther, Line Kenborg

Publikováno v: EClinicalMedicine, Vol 46, Iss , Pp 101369- (2022)

Summary: Background: Early maternal cancer and fertility treatment each increase the risk for adverse birth outcomes, but the joint effect of these outcomes has not yet been reported. Thus, the aim was to assess the individual and joint effect of mat

Externí odkaz: https://doaj.org/article/a2f0221eafa849108abf82ac7cdd4ae2

Risk of severe esophageal stricture among childhood cancer survivors – A population-based case-cohort study within the Adult Life after Childhood Cancer in Scandinavia (ALiCCS)

Autor: Helena K. Hansen, Peter H. Asdahl, Jane Christensen, Camilla Pedersen, Anja Krøyer, Celina S. Pontoppidan, Anna S. Holmqvist, Lars Hjorth, Thomas Wiebe, Thorgerdur Gudmundsdottir, Sofie de fine Licht, Yasmin Lassen-Ramshad, Klaus Seiersen, Morten Jørgensen, Michael RT Laursen, Hilde Øfstaas, Päivi M. Lähteenmäki, Susan A. Smith, Rebecca Howell, Catherine Rechnitzer, Henrik Hasle, Jeanette F. Winther, Line Kenborg

Publikováno v: EJC Paediatric Oncology, Vol 4, Iss , Pp 100195- (2024)

Purpose: Due to limited data on treatment-related risk factors associated with esophageal stricture in childhood cancer survivors, this study aimed to assess such factors in long-term survivors. Methods: A case-cohort study was conducted involving 36

Externí odkaz: https://doaj.org/article/5ca42bec0cf6407f8215c1dbc49807c6

Employment, occupation, and income in adults with neurofibromatosis 1 in Denmark: a population- and register-based cohort study

Autor: Line Kenborg, Line E. Frederiksen, Michael Galanakis, Karoline Doser, Thomas T. Nielsen, Mia Aagaard Doherty, Hanne Hove, John R. Østergaard, Mette M. Handrup, Cecilie Ejerskov, John J. Mulvihill, Jeanette F. Winther

Publikováno v: Orphanet Journal of Rare Diseases, Vol 18, Iss 1, Pp 1-11 (2023)

Abstract Background Little is known about employment status, occupation, and disposable income in adults with NF1. Methods From the Danish National Patient Registry and database of two national Centers for Rare Diseases, we identified 1469 adults wit

Externí odkaz: https://doaj.org/article/622f791977e24adba434eacaebd11aa6