Zobrazeno 1 - 3
of 3
pro vyhledávání: '"Jayne Gershkowitz"'
Autor:
Anna L. Bruckner, Michael Losow, Jayson Wisk, Nita Patel, Allen Reha, Hjalmar Lagast, Jamie Gault, Jayne Gershkowitz, Brett Kopelan, Michael Hund, Dedee F. Murrell
Publikováno v:
Orphanet Journal of Rare Diseases, Vol 15, Iss 1, Pp 1-14 (2020)
Abstract Background Little information is available regarding the burden of living with and managing epidermolysis bullosa, including the distinct challenges faced by patients with different disease types/subtypes. Methods A 90-question/item survey w
Externí odkaz:
https://doaj.org/article/966cbe75704c431bbb56ca4693a25b76
Publikováno v:
Lysosomal Storage Disorders. :299-307
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::c89dcbbdd785d51e5cd8c2e838c69a5e
https://doi.org/10.1002/9781119697312.ch28
https://doi.org/10.1002/9781119697312.ch28
Autor:
Jayson Wisk, Michael Losow, Anna L. Bruckner, Hjalmar Lagast, Nita Patel, A. Reha, Dedee F. Murrell, Jamie Gault, Jayne Gershkowitz, Michael Hund, Brett Kopelan
Publikováno v:
Orphanet Journal of Rare Diseases
Orphanet Journal of Rare Diseases, Vol 15, Iss 1, Pp 1-14 (2020)
Orphanet Journal of Rare Diseases, Vol 15, Iss 1, Pp 1-14 (2020)
Background Little information is available regarding the burden of living with and managing epidermolysis bullosa, including the distinct challenges faced by patients with different disease types/subtypes. Methods A 90-question/item survey was develo
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::820654e3cff49f6bbad1d4d68b376a67
http://europepmc.org/articles/PMC6942340
http://europepmc.org/articles/PMC6942340