Zobrazeno 1 - 10
of 150
pro vyhledávání: '"Jantina de, Vries"'
Publikováno v:
BMC Medical Ethics, Vol 25, Iss 1, Pp 1-11 (2024)
Abstract Background Genetic research can yield information that is unrelated to the study’s objectives but may be of clinical or personal interest to study participants. There is an emerging but controversial responsibility to return some genetic r
Externí odkaz:
https://doaj.org/article/6071c807e9ce4ad092c77d7195ec198c
Autor:
Olivia P. Matshabane, Anna Hartford, Cornelius O. Ewuoso, Andrea C. Palk, Laura M. Koehly, Dan J. Stein, Jantina de Vries
Publikováno v:
South African Journal of Science, Vol 120, Iss 5/6 (2024)
Externí odkaz:
https://doaj.org/article/78768f5ef0564eb9b7ac97cdeb739baf
Autor:
Dimpho Ralefala, Mary Kasule, Olivia P. Matshabane, Ambroise Wonkam, Mogomotsi Matshaba, Jantina de Vries
Publikováno v:
Global Bioethics, Vol 34, Iss 1, Pp 1-14 (2023)
ABSTRACTKey to discussions around feedback of individual results from genomics research are practical questions on how such results should be fed back, by who and when. However, there has been virtually no work investigating these practical considera
Externí odkaz:
https://doaj.org/article/063ea713ff6b4977a72efd0a620761e5
Autor:
Susan Bull, Michael Parker, Joseph Ali, Monique Jonas, Vasantha Muthuswamy, Carla Saenz, Maxwell J. Smith, Teck Chuan Voo, Katharine Wright, Jantina de Vries
This open access casebook addresses complex and important ethical challenges arising when health-related research in conducted in the context of epidemics and pandemics. This book provides contextually-rich real-world case studies illustrating resear
Publikováno v:
BMC Medical Ethics, Vol 24, Iss 1, Pp 1-10 (2023)
Abstract Purpose We explored the views of Botswana stakeholders involved in developing, implementing and applying ethical standards for return of individual study results from genomic research. This allowed for mapping opportunities and challenges re
Externí odkaz:
https://doaj.org/article/3fcc201483944e22866de0e976523ab8
Autor:
Elsa du Bruyn, Cari Stek, Remi Daroowala, Qonita Said-Hartley, Marvin Hsiao, Georgia Schafer, Rene T. Goliath, Fatima Abrahams, Amanda Jackson, Sean Wasserman, Brian W. Allwood, Angharad G. Davis, Rachel P.-J. Lai, Anna K. Coussens, Katalin A. Wilkinson, Jantina de Vries, Nicki Tiffin, Maddalena Cerrone, Ntobeko A. B. Ntusi, HIATUS consortium, Catherine Riou, Robert J. Wilkinson
Publikováno v:
Nature Communications, Vol 14, Iss 1, Pp 1-13 (2023)
Here the authors describe outcomes of SARS-CoV-2 infection in an African setting of high HIV-1 and tuberculosis prevalence. They find that tuberculosis is a common co-morbidity in patients admitted to hospital with COVID-19 and that the immune respon
Externí odkaz:
https://doaj.org/article/d34350d162f94a06b08193aa90938e4d
Publikováno v:
Global Bioethics, Vol 33, Iss 1, Pp 122-132 (2022)
This article draws on key normative principles grounded in important values – solidarity, partiality and friendliness – in African philosophy to think critically and deeply about the ethical challenges around returning individual genetic research
Externí odkaz:
https://doaj.org/article/3ab08548889e4e76be14bb8b0a01abf4
Publikováno v:
BMC Medical Ethics, Vol 22, Iss 1, Pp 1-16 (2021)
Abstract Background Despite the rapid global growth of biobanking over the last few decades, and their potential for the advancement of health research, considerations specific to the sharing of benefits that accrue from biobanks have received little
Externí odkaz:
https://doaj.org/article/5f47994dc2144e48b5f4bce43e51529b
Publikováno v:
Frontiers in Genetics, Vol 13 (2022)
The use of whole exome sequencing (WES) in medical research is increasing in South Africa (SA), raising important questions about whether and which individual genetic research results, particularly incidental findings, should be returned to patients.
Externí odkaz:
https://doaj.org/article/d05553b9ceb645e5b029780ec23b20ea
Publikováno v:
International Journal for Equity in Health, Vol 20, Iss 1, Pp 1-13 (2021)
Abstract Background Whilst global health research often involves international collaborations, achieving or promoting equity within collaborations remains a key challenge, despite established conceptual approaches and the development of frameworks an
Externí odkaz:
https://doaj.org/article/099ce11f9b284302883069f0afe9b5a6