Protocol for the development of a Core Outcome Set (COS) for Adolescents and Young Adults (AYAs) with cancer.

Autor: Husson, Olga^1,2,3 (AUTHOR), Janssen, Silvie H. M.^1,3 (AUTHOR), Reeve, Bryce B.^4,5 (AUTHOR), Sodergren, Samantha C.⁶ (AUTHOR), Cheung, Christabel K.⁷ (AUTHOR), McCabe, Martin G.^8,9 (AUTHOR), Salsman, John M.¹⁰ (AUTHOR), van der Graaf, Winette T. A.^1,11 (AUTHOR), Darlington, Anne-Sophie⁶ (AUTHOR) A.Darlington@soton.ac.uk

Publikováno v: BMC Cancer. Dec2024, Vol. 24 Issue 1, p1-12. 12p.

Learning from long‐term adolescent and young adult (AYA) cancer survivors regarding their age‐specific care needs to improve current AYA care programs.

Autor: Janssen, Silvie H. M.^1,2 (AUTHOR), Vlooswijk, Carla³ (AUTHOR), Manten‐Horst, Eveliene⁴ (AUTHOR), Sleeman, Sophia H. E.⁴ (AUTHOR), Bijlsma, Rhodé M.⁵ (AUTHOR), Kaal, Suzanne E. J.⁶ (AUTHOR), Kerst, Jan Martijn² (AUTHOR), Tromp, Jacqueline M.⁷ (AUTHOR), Bos, Monique E. M. M.⁸ (AUTHOR), van der Hulle, Tom⁹ (AUTHOR), Lalisang, Roy I.¹⁰ (AUTHOR), Nuver, Janine¹¹ (AUTHOR), Kouwenhoven, Mathilde C. M.¹² (AUTHOR), van der Graaf, Winette T. A.^2,8 (AUTHOR), Husson, Olga^1,2,13 (AUTHOR) o.husson@nki.nl

Publikováno v: Cancer Medicine. Jun2023, Vol. 12 Issue 12, p13712-13731. 20p.

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Health-related quality of life of Adolescent and Young Adult Cancer Survivors before and during the COVID-19 pandemic: longitudinal improvements on social functioning and fatigue.

Autor: Vlooswijk, Carla, Janssen, Silvie H. M., van de Poll-Franse, Lonneke V., Bijlsma, Rhodé, Kaal, Suzanne E. J., Kerst, J. Martijn, Tromp, Jacqueline M., Bos, Monique E. M. M., Lalisang, Roy I., Nuver, Janine, Kouwenhoven, Mathilde C. M., van der Graaf, Winette T. A., Husson, Olga

Publikováno v: Journal of Patient-Reported Outcomes; 11/20/2023, Vol. 7 Issue 1, p1-10, 10p