Zobrazeno 1 - 10
of 23
pro vyhledávání: '"Janika Bloemeke"'
Autor:
Candan Kendir, Michael van den Berg, Janika Bloemeke-Cammin, Oliver Groene, Frederico Guanais, Andree Rochfort, Jose M. Valderas, Niek Klazinga
Publikováno v:
Health Research Policy and Systems, Vol 22, Iss 1, Pp 1-12 (2024)
Abstract Healthcare professionals have first-hand experience with patients in clinical practice and the dynamics in the healthcare system, which can be of great value in the design, implementation, data analysis and dissemination of research study re
Externí odkaz:
https://doaj.org/article/c6c8755d72f0485082ca8b2904bac2a4
Autor:
Gokce B. Laleci Erturkmen, Natassia Kamilla Juul, Irati Erreguerena Redondo, Ana Ortega Gil, Dolores Verdoy Berastegui, Esteban de Manuel, Mustafa Yuksel, Bunyamin Sarigul, Gokhan Yilmaz, Sarah N. L. I. M. Choi Keung, Theodoros N. Arvanitis, Thea Damkjaer Syse, Janika Bloemeke-Cammin, Rachelle Kaye, Anne Dichmann Sorknæs, on behalf of the ADLIFE study group
Publikováno v:
BMC Medical Informatics and Decision Making, Vol 24, Iss 1, Pp 1-21 (2024)
Abstract Introduction This paper outlines the design, implementation, and usability study results of the patient empowerment process for chronic disease management, using Patient Reported Outcome Measurements and Shared Decision-Making Processes. Bac
Externí odkaz:
https://doaj.org/article/b92b76b5493b47bc80afa9e4e11f4988
Autor:
Janika Bloemeke-Cammin, Oliver Groene, Marta Ballester, Frederico Guanais, Peter Groenewegen, Candan Kendir, Ian Porter, Amun Rehsi, Mieke Rijken, Peter Spreeuwenberg, Rosa Suñol, Jose Maria Valderas, Rachel Williams, Michael van den Berg
Publikováno v:
BMC Primary Care, Vol 25, Iss 1, Pp 1-16 (2024)
Abstract Background The PaRIS survey, an initiative of the Organisation for Economic Co-operation and Development (OECD), aims to assess health systems performance in delivering primary care by measuring the care experiences and outcomes of people ov
Externí odkaz:
https://doaj.org/article/ce472592864e4188bcbbf0127dc192a3
Autor:
Clemens Moll, Fritz Arndt, Theodoros N. Arvanitis, Nerea Gonzàlez, Oliver Groene, Ana Ortega-Gil, Dolores Verdoy, Janika Bloemeke
Publikováno v:
Digital Health, Vol 9 (2023)
Objective Integrated care and digital health technology interventions are promising approaches to coordinate services for people living with chronic conditions, across different care settings and providers. The EU-funded ADLIFE project intends to pro
Externí odkaz:
https://doaj.org/article/e3583f0d0c594c4b894c7cecedfbd243
Autor:
Stefanie Witt, Kaja Kristensen, Silke Wiegand-Grefe, Johannes Boettcher, Janika Bloemeke, Christina Wingartz, Monika Bullinger, Julia Quitmann, und die CARE-FAM-NET Studiengruppe
Publikováno v:
Orphanet Journal of Rare Diseases, Vol 16, Iss 1, Pp 1-12 (2021)
Abstract Background Rare diseases occur in early childhood and have a major impact on the quality of life of the affected children and their families. Their need for psychosocial support is considerable, but psychosocial care in Germany is still far
Externí odkaz:
https://doaj.org/article/57d1d142b62c4890ac5adbd2cfdaed75
Autor:
Peter Groenewegen, Jose Maria Valderas, Oliver Groene, Rosa Sunol, Marta Ballester, Rachel Williams, Niek Klazinga, Laura Thomas, Mieke Rijken, Dolf de Boer, Michael van den Berg, Janika Bloemeke, Wienke Boerma, Katherine de Bienassis, Candan Kendir, Ian Porter
Publikováno v:
BMJ Open, Vol 12, Iss 9 (2022)
Introduction In view of growing populations with chronic conditions, many countries are redesigning their health systems. However, little information is available about how health systems perform from the perspective of people living with chronic con
Externí odkaz:
https://doaj.org/article/94cee4648ca8406daa486902913ab21c
Autor:
Stefanie Witt, Janika Bloemeke, Monika Bullinger, Jens Dingemann, Michaela Dellenmark-Blom, Julia Quitmann
Publikováno v:
BMC Pediatrics, Vol 19, Iss 1, Pp 1-9 (2019)
Abstract Background Esophageal atresia (EA) is a rare congenital malformation, which is characterized by the discontinuity of the esophagus. We investigated the agreement between mothers’, fathers’, and children’s’ ratings on health-related q
Externí odkaz:
https://doaj.org/article/21ac03139d944761a5346ae21499f2db
Publikováno v:
Orphanet Journal of Rare Diseases, Vol 14, Iss 1, Pp 1-9 (2019)
Abstract Background Achondroplasia is the most common form of disproportionate short stature and might affect not only the quality of life of the affected child but also that of the parents. Objectives We aimed to investigate the quality of life of c
Externí odkaz:
https://doaj.org/article/2c4f4c68d9a946469bfef54f944f96a4
Autor:
Janika Bloemeke, Neuza Silva, Monika Bullinger, Stefanie Witt, Helmuth-Günther Dörr, Julia Quitmann
Publikováno v:
Health and Quality of Life Outcomes, Vol 17, Iss 1, Pp 1-15 (2019)
Abstract Background The Quality of Life of Short Stature Youth (QoLISSY) questionnaire is a patient- and parent-reported outcome measure assessing health-related quality of life (HRQOL) in short stature youth. This study evaluates the psychometric pr
Externí odkaz:
https://doaj.org/article/75bfc35abdbc40e584a8ec557045956b
Autor:
Julia Quitmann, Janika Bloemeke, Neuza Silva, Monika Bullinger, Stefanie Witt, Ilker Akkurt, Desiree Dunstheimer, Christian Vogel, Volker Böttcher, Ursula Kuhnle Krahl, Markus Bettendorf, Eckhard Schönau, Susanne Fricke-Otto, Alexandra Keller, Klaus Mohnike, Helmuth-Günther Dörr
Publikováno v:
Frontiers in Pediatrics, Vol 7 (2019)
Aside from clinical endpoints like height gain, health-related quality of life has also become an important outcome indicator in the medical field. However, the data on short stature and health-related quality of life is inconsistent. Therefore, we e
Externí odkaz:
https://doaj.org/article/cb362cac78f54cf7a52805cc392c3141