Výsledky vyhledávání - "Jane, Bernal"

Hidden lives and deaths: the last months of life of people with intellectual disabilities living in long‐term, generic care settings in the UK

Autor: Kate Hunt, Mary McCarron, Rhian Worth, Sarah Brearley, Stuart Todd, Jane Bernal, Julia Shearn

Publikováno v: Journal of Applied Research in Intellectual Disabilities. 34:1489-1498

Rationale This paper concerns mortality and needs for end-of-life care in a population of adults with ID living in generic care homes. Methods Various sampling strategies were used to identify a difficult to find a population of people with ID in gen

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::e75ea5cc080b3e3ee7e61853f91692c5
https://doi.org/10.1111/jar.12891

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Maximising engagement and participation of intellectual disability staff in research: Insights from conducting a UK-wide survey

Autor: Stuart Todd, Irene Tuffrey-Wijne, Janet Finlayson, Annette Boaz, Laurence Taggart, Claire Kar Kei Lam, Jane Bernal

Publikováno v: Journal of Intellectual Disabilities

Aim: This article explores ways of maximising engagement of intellectual disability staff as research participants, research advisers and research implementers. Method: The authors describe and reflect on a three-phased strategy in recruiting front-l

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::1d8b2a937c0d4c487b3a646666d309aa
https://doi.org/10.1177/1744629520924141

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End-of-life care in intellectual disability:A retrospective cross-sectional study

Autor: Rhian Worth, Mary McCarron, Sue Read, Phil Madden, Jane Bernal, Owen Barr, Stuart Todd, Thilo Kroll, Paul Jarvis, Julia Shearn, Kathy Lowe, Rachel Forrester-Jones, Kate Hunt, Edwin Jones

Publikováno v: Hunt, K, Bernal, J, Worth, R, Shearn, J, Jarvis, P, Jones, E, Lowe, K, Madden, P, Barr, O, Forrester-Jones, R, Kroll, T, McCarron, M, Read, S & Todd, S 2020, ' End-of-life care in intellectual disability : A retrospective cross-sectional study ', BMJ Supportive and Palliative Care, vol. 10, no. 4, pp. 469-477 . https://doi.org/10.1136/bmjspcare-2019-001985

BackgroundAdults with intellectual disability (ID) experience inequality in access to healthcare that is considered to extend to end-of-life care. Their experiences of healthcare at the end of life and how these compare with the general population ar

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::541c186df681467815098b07a9a4e433
https://purehost.bath.ac.uk/ws/files/205295583/revisedEnd_of_life_care_for_people_with_intellectual_disabilityversion2.pdf

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Expecting the unexpected: measures, outcomes and dying trajectories for expected and unexpected death in adults with intellectual disabilities in social care settings in the UK

Autor: Stuart Todd, Kathy Lowe, Edwin Jones, Jane Bernal, Rhian Worth, Julia Shearn, Kate Hunt

Publikováno v: Journal of applied research in intellectual disabilities : JARIDREFERENCES. 34(2)

Background: considerable attention is rightly paid to preventable deaths in adults with intellectual disabilities. The pattern of these deaths and the implications for services have been less considered.Method: this paper forms part of a larger cross

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::5390b91c80e8abb0e617147dd0651779
https://pubmed.ncbi.nlm.nih.gov/33258299

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Place of death of people with intellectual disabilities: An exploratory study of death and dying within community disability service settings

Autor: Sharon Brandford, Stuart Todd, Julia Shearn, Jane Bernal, Rhian Worth

Publikováno v: Journal of intellectual disabilities : JOID. 25(3)

This article describes an exploratory study of deaths of people with intellectual disabilities (IDs) that had occurred in group homes managed by an ID service provider in Australasia. Such settings are increasingly recognised as places for both livin

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::213082cbefe354df8ea0af0bd4556311
https://pubmed.ncbi.nlm.nih.gov/31714176

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Communicating about death and dying with adults with intellectual disabilities who are terminally ill or bereaved: A UK-wide survey of intellectual disability support staff

Autor: Laurence Taggart, Jane Bernal, Irene Tuffrey-Wijne, Stuart Todd, Claire Kar Kei Lam, Janet Finlayson

Publikováno v: Journal of applied research in intellectual disabilities : JARIDREFERENCES. 33(5)

Background Illness and death are part of life for everyone, including people with intellectual disabilities. This study investigated the extent to which staff communicate about death with people with intellectual disability facing terminal illness or

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::d5bc313275a620673150aa742ab1cfd3
https://pubmed.ncbi.nlm.nih.gov/32072726

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Last months of life of people with intellectual disabilities: A UK population-based study of death and dying in intellectual disability community services

Autor: Sue Read, Kate Hunt, Jane Bernal, Julia Shearn, Rhian Worth, Mary McCarron, Rachel Forrester Jones, Thilo Kroll, Owen Barr, Stuart Todd, Kathy Lowe, Paul Jarvis, Phil Madden, Edwin Jones

Publikováno v: Journal of applied research in intellectual disabilities : JARIDREFERENCES. 33(6)

Background: population‐based data are presented on the nature of dying in intellectual disability services.Methods: a retrospective survey was conducted over 18 months with a sample of UK‐based intellectual disability service providers that suppo

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::c90c7cbf6b2e2bc1a7d7d2159b9b155a
https://pubmed.ncbi.nlm.nih.gov/32476240

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Nursing care at end of life: a UK-based survey of the deaths of people living in care settings for people with intellectual disability

Autor: Julia Shearn, Ruth Northway, Rhian Worth, Kate Hunt, Jane Bernal, P. Hopes, Rachel Morgan, Stuart Todd

Publikováno v: J Res Nurs

Background People with intellectual disability are believed to be at risk of receiving poor end-of-life care. Nurses, given their advocacy role and duty to provide compassionate end-of-life care, have the potential to change this situation but resear

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::0dc28022b81399cbb29fcf250ca1119f
https://europepmc.org/articles/PMC7932259/

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