Zobrazeno 1 - 4
of 4
pro vyhledávání: '"Jamie Gault"'
Autor:
Melodi Harfouche, Priya S. Kishnani, Eva Krusinska, Jamie Gault, Sheela Sitaraman, Amanda Sowinski, Irina Katz, Stephanie Austin, Margi Goldstein, Andrew E. Mulberg
Publikováno v:
Journal of Patient-Reported Outcomes, Vol 4, Iss 1, Pp 1-11 (2020)
Abstract Background Patient-Reported Outcomes provide an opportunity for patients to establish dialogue with pharmaceutical or biotechnology companies about their health conditions without interpretation by a clinician or anyone else. However, Patien
Externí odkaz:
https://doaj.org/article/326ca216a52b4ce896d73b2b3dc9ca1a
Autor:
Anna L. Bruckner, Michael Losow, Jayson Wisk, Nita Patel, Allen Reha, Hjalmar Lagast, Jamie Gault, Jayne Gershkowitz, Brett Kopelan, Michael Hund, Dedee F. Murrell
Publikováno v:
Orphanet Journal of Rare Diseases, Vol 15, Iss 1, Pp 1-14 (2020)
Abstract Background Little information is available regarding the burden of living with and managing epidermolysis bullosa, including the distinct challenges faced by patients with different disease types/subtypes. Methods A 90-question/item survey w
Externí odkaz:
https://doaj.org/article/966cbe75704c431bbb56ca4693a25b76
Autor:
Andrew E. Mulberg, Irina Katz, Sheela Sitaraman, Priya S. Kishnani, Eva Krusinska, Jamie Gault, Melodi Harfouche, Margi Goldstein, Stephanie Austin, Amanda Sowinski
Publikováno v:
Journal of Patient-Reported Outcomes
Journal of Patient-Reported Outcomes, Vol 4, Iss 1, Pp 1-11 (2020)
Journal of Patient-Reported Outcomes, Vol 4, Iss 1, Pp 1-11 (2020)
Background Patient-Reported Outcomes provide an opportunity for patients to establish dialogue with pharmaceutical or biotechnology companies about their health conditions without interpretation by a clinician or anyone else. However, Patient-Reporte
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::d26137045fddd76eba8a4737c4daad26
https://doi.org/10.1186/s41687-020-00245-2
https://doi.org/10.1186/s41687-020-00245-2
Autor:
Jayson Wisk, Michael Losow, Anna L. Bruckner, Hjalmar Lagast, Nita Patel, A. Reha, Dedee F. Murrell, Jamie Gault, Jayne Gershkowitz, Michael Hund, Brett Kopelan
Publikováno v:
Orphanet Journal of Rare Diseases
Orphanet Journal of Rare Diseases, Vol 15, Iss 1, Pp 1-14 (2020)
Orphanet Journal of Rare Diseases, Vol 15, Iss 1, Pp 1-14 (2020)
Background Little information is available regarding the burden of living with and managing epidermolysis bullosa, including the distinct challenges faced by patients with different disease types/subtypes. Methods A 90-question/item survey was develo
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::820654e3cff49f6bbad1d4d68b376a67
http://europepmc.org/articles/PMC6942340
http://europepmc.org/articles/PMC6942340