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pro vyhledávání: '"Jackie McBrien"'
Autor:
A J Ward, Daniel Murphy, Rita Marron, V McGrath, M Bolz-Johnson, Walter Cullen, Avril Daly, Orla Hardiman, A Lawlor, Sally Ann Lynch, Mac MacLachlan, Jackie McBrien, James O'Byrne, Jacqueline Turner, Susan O'Connell, Eileen P Treacy
Background: Rare diseases (RDs) are often complex, serious, chronic and multi-systemic conditions, associated with physical, sensory and intellectual disability. Patients require follow-up management from multiple medical specialists and health and s
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::60d6f769dc2083a29a9e5bbdf5eea002
https://doi.org/10.21203/rs.3.rs-1225286/v1
https://doi.org/10.21203/rs.3.rs-1225286/v1
