Zobrazeno 1 - 10
of 39
pro vyhledávání: '"Jackelyn Y, Boyden"'
Autor:
Jackelyn Y. Boyden, Chris Feudtner, Janet A. Deatrick, Kimberley Widger, Gwenn LaRagione, Blyth Lord, Mary Ersek
Publikováno v:
BMC Palliative Care, Vol 20, Iss 1, Pp 1-18 (2021)
Abstract Background Many children with serious illnesses are receiving palliative and end-of-life care from pediatric palliative and hospice care teams at home (PPHC@Home). Despite the growth in PPHC@Home, no standardized measures exist to evaluate w
Externí odkaz:
https://doaj.org/article/973f29289a084fe5a09bc142b9e13bd5
Publikováno v:
Children, Vol 9, Iss 8, p 1115 (2022)
Care for U.S. children living with serious illness and their families at home is a complex and patchwork system. Improving home-based care for children and families requires a comprehensive, multilevel approach that accounts for and examines relation
Externí odkaz:
https://doaj.org/article/6340286df95b4081aabfb82b35cc7ac4
Autor:
Jackelyn Y. Boyden, Jori F. Bogetz, Emily E. Johnston, Rachel Thienprayoon, Conrad S.P. Williams, Michael J. McNeil, Arika Patneaude, Kimberley A. Widger, Abby R. Rosenberg, Prasanna Ananth
Publikováno v:
Journal of Pain and Symptom Management. 65:e483-e495
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::24524c98414131a55b576b938668e19e
https://doi.org/10.1016/j.jpainsymman.2023.01.021
https://doi.org/10.1016/j.jpainsymman.2023.01.021
Autor:
Heather Coats, Katherine Doyon, Mary J. Isaacson, Djin Tay, William E. Rosa, Masako Mayahara, Jeannette Kates, Erica Frechman, Patricia Moyle Wright, Jackelyn Y. Boyden, Elizabeth G. Broden, Pamela S. Hinds, Richard James, Susan Keller, Susan E. Thrane, Kim Mooney-Doyle, Suzanne S. Sullivan, Jiayun Xu, Julie Tanner, Maria Natal
Publikováno v:
Journal of Hospice & Palliative Nursing. 25:55-74
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::3994b8518fa642df21acc7197cd8597c
https://doi.org/10.1097/njh.0000000000000935
https://doi.org/10.1097/njh.0000000000000935
Autor:
Prasanna Ananth, Meghan Lindsay, Sophia Mun, Sarah McCollum, Veronika Shabanova, Sophia de Oliveira, Sarah Pitafi, Rebecca Kirch, Xiaomei Ma, Cary P. Gross, Jackelyn Y. Boyden, Chris Feudtner, Joanne Wolfe
Publikováno v:
JAMA Network Open. 6:e2313503
ImportanceRobust quality measures to benchmark end-of-life care for children with cancer do not currently exist; 28 candidate patient-centered quality measures were previously developed.ObjectiveTo prioritize quality measures among parents who lost a
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::59b2905e0f62240cccfdb1df18d5b30c
https://doi.org/10.1001/jamanetworkopen.2023.13503
https://doi.org/10.1001/jamanetworkopen.2023.13503
Autor:
Wynne Morrison, Douglas L. Hill, Karen W. Carroll, Chris Feudtner, Jackelyn Y. Boyden, Victoria A. Miller
Publikováno v:
J Palliat Med
Background: Parenting a child with a serious life-threatening illness (SLTI) may impact parents' mental health. The protective association of social support with anxiety over time following an acute medical event has not been empirically tested in a
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::2dd79e81632d97b250a651ee25a25e86
https://doi.org/10.1089/jpm.2019.0387
https://doi.org/10.1089/jpm.2019.0387
Publikováno v:
Current Opinion in Psychology. 49:101513
Recent research shows the importance of hope in the context of life-threatening illness and the end of life for patients and their families. While some patients and family members continue to hope for a cure or extending life, others may develop more
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::d4383478cb5fd51be9c4c99bde29a2fc
https://doi.org/10.1016/j.copsyc.2022.101513
https://doi.org/10.1016/j.copsyc.2022.101513
Autor:
Russell T. Nye, Douglas L. Hill, Karen W. Carroll, Jackelyn Y. Boyden, Hannah Katcoff, Heather Griffis, Diego Campos, Matt Hall, Joanne Wolfe, Chris Feudtner
Publikováno v:
Journal of pain and symptom management. 64(1)
Prospective cohort studies of individuals with serious illness and their family members, such as children receiving palliative care and their parents, pose challenges regarding data management.To describe the design and lessons learned regarding the
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::7e5346140442dab3d349c0b95be57698
https://pubmed.ncbi.nlm.nih.gov/35339611
https://pubmed.ncbi.nlm.nih.gov/35339611
Autor:
Chris, Feudtner, Russell T, Nye, Jackelyn Y, Boyden, Katherine E, Schwartz, Emilie R, Korn, Aaron G, Dewitt, Amy T, Waldman, Lisa A, Schwartz, Yuming A, Shen, Michael, Manocchia, Rui, Xiao, Blyth T, Lord, Douglas L, Hill
Publikováno v:
JAMA Network Open
This cohort study examines whether family members of children with 1 of 4 types of life-threatening pediatric conditions have higher rates of health care encounters, diagnoses, and prescriptions compared with families of children without these condit
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::19b1ccc668f6e24552b5ffe10a2e65b4
http://europepmc.org/articles/PMC8689391
http://europepmc.org/articles/PMC8689391
Autor:
Emily E. Johnston, Russell T. Nye, Chris Feudtner, Matthew Hall, Douglas L. Hill, Joanne Wolfe, Kira Bona, Tammy I. Kang, Sarah Friebert, Ross M. Hays, Jackelyn Y. Boyden, Pamela S. Hinds
Publikováno v:
J Pain Symptom Manage
Context Parents of patients with a serious illness experience psychological distress, which impacts parents' wellbeing and, potentially, their ability to care for their children. Parent psychological distress may be influenced by children's symptom b
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::6ab8300eba5cf99b6f372ab1b1141359
https://europepmc.org/articles/PMC8816828/
https://europepmc.org/articles/PMC8816828/
