Pilot testing of the 'Haemo-QoL' quality of life questionnaire for haemophiliac children in six European countries

Autor: Krista Fischer, M. van den Berg, Corinna Petersen, Kate Khair, S. von Mackensen, Ulrike Ravens-Sieberer, Monika Bullinger, Angiola Rocino, J. M. Tusell, P. Sagnier, M. Vicariot

Publikováno v: Haemophilia. 8:47-54

In a multinational working group, an instrument (Haemo-QoL) to assess quality of life in children/adolescents with haemophilia and their parents has been developed. In co-operation with haemophilia treatment centres in six European countries, approxi

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::d8e1206ebe55df9f475a511ff28a1415
https://doi.org/10.1046/j.1351-8216.2001.114.doc.x

Treatment of children with haemophilia in Europe: a survey of 20 centres in 16 countries

Autor: K. Kurnik-Auberger, Ségolène Claeyssens, A. Glomstein, C. Van Geet, Owen P. Smith, Wolfgang Muntean, F. Hill, L. Rosado, E Scheibel, M. Siimes, Ian Hann, P Petrini, W. Kreuz, Hervé Chambost, Rolf Ljung, G. Mancuso, J. M. Tusell, Rainer Kobelt, S. Aronis-Vournas, M. van den Berg

Publikováno v: Haemophilia. 6:619-624

A survey was made of the current status of treatment of haemophilic boys at 20 centres in 16 European countries and includes approximately 1500 of the estimated 6500 haemophiliacs in the participating countries. Many mild haemophiliacs are not seen,

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_________::ebd4dc23d87cf7ac83f9123387cc612f
https://doi.org/10.1046/j.1365-2516.2000.00427.x

Time from HIV-1 seroconversion to AIDS and death before widespread use of highly-active antiretroviral therapy: a collaborative re-analysis

Autor: D Tobin, J M Tusell, C Marimoutou, Matthias Egger, Sheila M. Gore, S Darby, R Spooner, Robert J. Biggar, E Schoenbaum, J Learmont, J Rusnak, M.A.M.C. van den Berg, Mette Sannes, David A. Cooper, R Garner, Giota Touloumi, JH Darbyshire, S Hutchinson, F Garland, Roel A. Coutinho, Maria Prins, David S. Metzger, C.B. Pedersen, Andrew N. Phillips, D Kwart, S Melnick, James J. Goedert, P Cunningham, Anne Eskild, R Brettie, Barry Evans, P Rosenberg, D Osmond, Susan Buchbinder, L Kingsley, Laurence Meyer, M Hilgartner, E Gomperts, R Zangerle, Farewell, G. Rezza, Martin Rickenbach, P Giangrande, I Ruiz, Jeanette Vizzard, Mads Melbye, C Hawkes, Mark Winter, Nicholas E. Day, P Renzullo, C Altisent, Daniela De Angelis, Philippe Vanhems, C Lee, John M. Kaldor, Alessandro Cozzi Lepri, Olga Katsarou, J Wilde, Anastasia Karafoulidou, B Tindall, Faroudy Boufassa, A Babiker, George E. Woody, C Hendrix, AM Johnson, JI Lorenzo, Harold W. Jaffe, Ole Kirk, Johan N. Bruun, L Schrager, Eric Vittinghoff, P Pezzotti, O Berglund, Collaborative Grp Aids Incubation, W Winkelstein, CA Sabin, K Hoots, Patrick Francioli, J Mosley, A Downs, François Dabis, J Del Amo, Beryl A. Koblin, Osamah Hamouda, Noel Gill, S Donfield, E Operskalski, T Sharkey, A Moss, B van Benthem, David J. Goldberg, B Evatt, D Ewart, Kholoud Porter, M Schechter, Beral

Publikováno v: ResearcherID

Summary Background We used data from Europe, North America, and Australia to assess the effect of exposure category on the AIDS incubation period and HIV-1 survival and whether the effect of age at seroconversion varies with exposure category and wit

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::f66a777b7225fd20fe54e8dd2cf2bde8
https://doi.org/10.1016/s0140-6736(00)02061-4

Abstracts of posters

Autor: X. Fabregas, B. Garcia, G. Pappagallo, J. Frías, A. Horn, M. Battistin, D. Serraino, P. Viale, O. Chinot, I. Buggia, C. Rolle, A. Gavazzi, L. Lorente Mansilla, Roger Walker, J. C. Juárez, J. Török, P. Pasquin, P. Lonqhini, J. Pouget, L. Ferraro, G. Tognoni, L. Suffisseau, C. Marinai, G. Borselli, T. Casasin, T. Kart, I. Ferrer, R. Congedo, H. Herborg, R. Olivato, G. De Carli, J. L. Mainardi, L. Ponz, Chris Cairns, A. Märkel, M. Magnani, G. D'Albasio, B. Søndergaard, F. Arpinelli, M. Rinaldi, M. Viganô, J. A. Gómez, A. Wasieczko, B. Edouard, G. Ciccarone, M. B. Regazzi, M. Alós, Gimeno F. J. Abad, P. B. Goldhoorn, Yechiel A. Hekster, M. Posco, A. Olivieri, R. Da Cas, J. M. E. Quak, E. Echaniz, P. Marini, P. Drings, C. Goggi, Arnold B. Bakker, J. Huchet, N. Martinet, G. Carles, M. Ibars, M. M. Negredo González, A. Pedrini, D. Geeraerts, M. Letkovicova, R. Rampazzo, T. Requena, E. Fernández, E. Sevilla, D. Antier, M. Baraghini, F. Venturini, Robert T. M. van Dongen, S. Franceschi, G. Serratrice, J. Giráldez, R. A. van Lingen, M. Marino, B. Escribano, A. Roglan, R. Pujol, A. Corrado, L. T. W. de Jong-v.d. Berg, F. W. Goldstein, G. Scroccaro, F. G. M. Sessink, B. Russo, Ingrid M. M. v. Haelst, B. Frøkjær, C. Lacasa, A. Palozzo, A. R. Cervino, A. Crevat, M. Font, L. Berrino, J. J. Tortajada, Corrie Koppedraaijer, P. Schievano, Mary Venning, R. Luzzi, P. Galletti, C. Contaldi, M. Manzoli, H. Robays, M. C. Taugourdeau, E. Wyska, J. Bonal, F. Rossi, R. Banfi, C. Atañé, N. Martini, Hubert G. M. Leufkens, L. Martinelli, C. Manegold, J. Beney, J. M. Badia, A. Fraccaro, A. Daneri, Wim K. Scholten, A. Idoate, C. Desnuelle, J. W. F. van Mil, E. Markó, M. G. Troncon, E. Bidoli, R. Ferriols, H. Steckner, O. Blin, O. Delgado, A. Lazzaro, D. Besse, C. Soe-Agnie, P. Fabbiani, Alessandro Mannoni, Maria Vittoria Semmola, J. B. Montoro, W. J. Kollöffel, Piet C. M. Parel, G. Donini, M. Morgutti, J. M. Tusell, P. Rihet, M. Oliveras, E. Marrazzo, E. Gutiérrez, M. Sainz-Terreros, G. Fraga, R. Maserati, I. Iacona, F. J. Carrera-Hueso, C. Barroso, F. Benettolo, Milap C. Nahata, J. Grassin, F. G. W. H. M. Driessen, N. V. Jiménez, Marti I. Cantarinz, R. Silvano, R. Gabriel, J. L. Izquierdo, M. J. Cabañas, A. J. Kuizenga, A. Bonanomi, C. Altisent, F. Alberici, Melchor D. E. Casterá, F. T. J. Tromp, Medall M. D. Bellés, N. Tubiana, P. Longhini, G. Flores, J. Delorme, B. Piucci, P. Giner Boya, G. Bernadotte af Wisborg, C. Claesson, M. Faus, D. Braguer, M. Vezzani, A. H. P. Paes, A. Bermudez de Castro, Ph. Meunier, J. M. Ferrari, C. Hepler, J. Sánchez de Toledo, Sena Ma Marco, M. Moltempi, G. Laine, V. Murgia, D. Vigil, Ph. Larrouturou, P. Llopis, A. Clopés, M. Santa-Olalla, C. Marquina, C. Cattaruzzi, J. G. van Dam, E. Guarnone, V. Bascapē, A. B. Salmaso, C. La Guidara, G. Bardazzi, M. J. Aleixander, A. Spolaor, J. Szymura-Oleksiak, A. Benini, A. Torralba, M. Thorslund, A. Moreno, M. M. Cataldo, M. Berthet, J. P. Azulay, F. Bardelli, L. Wested, L. Magulova, J. T. Deinum, M. G. Matera, M. J. Tamés, A. Rizo, J. Pelletier, O. Lundberg, M. Dell'Aera, R. Raschatt, J. V. Real, M. Romero, E. Branger, J. Garcia, G. Recchia, J. W. Foppe van Mil, R. Di Pasquale, I. Font, C. De Wever, Firenzee Verona, M. V. Novi, T. Hellín, E. Barroso, G. Cajaraville, M. A. Moral, M. Rasmussen, C. Molins, C. Juste, E. Hidalgo, L. Mezzalira, G. Terrazzani, D. Gracia, A. Rossignoli, M. A. Mangues, J. M. Llop, S. Marty, J. Sirotiakova, F. A. Moraga, I. Reben, M. Molinaro, D. Almenar, O. Gagyi, M. Climente, J. C. Tejedor, O. Pezzi, J. Muñoz Agulló, M. Buck, A. Bergold, E. Ibañez, Saran Braybrook, C. Pistolesi, F. Bille, D. Guzzo, G. Traversa, Albert Bakker, G. Trallori, Luciana Pazzagli, M. T. Gurrera, L. Thurzó, R. Jardí, G. Ostino, J. Ph. Reymond, R. Bussi, B. Font, Ellen Frankfort, Isabelle Tersen, I. Badell, M. Osti, A. Herreros de Tejada, G. Albertone, A. Messori, C. Arpino, Eibert R. Heerdink, E. Bellotti, I. Galende, P. Villani, C. Agusti, G. Bilbao, C. Scuffi

Publikováno v: Pharmacy World & Science. 16:19-37

Glutamate synthase (NADH-GOGAT) is one of several proteins whose expression is either enhanced in, or specific to developing legume root nodules induced by (Brady)Rhizobium infection. This enzyme catalyzes the second committed step in the assimilatio

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_________::0a5c1a6b999ac4e743c08558a31716db
https://doi.org/10.1007/bf01876922

[Thrombophilia and Perthes' disease?]

Autor: J M, Tusell Puigbert, C, Aulesa Martínez, M, Aguirre Canyadell, I, Nicolau Fusté, P, Valentín Valentín, J J, Ortega Aramburu

Publikováno v: Anales espanoles de pediatria. 53(1)

It has been suggested that the cause of Perthes disease may be intravascular thrombosis induced by a potential congenital hemostatic disorder leading to conditions of thrombophilia or hyperfibrinolysis.Complete study of hemostasis with coagulation an

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=pmid________::f07357360c36ce31e86504c84a6c04f3
https://pubmed.ncbi.nlm.nih.gov/10998397