Pediatric palliative care for metabolic diseases: 20‐year epidemiological survey of outpatients at a Brazilian quaternary hospital

Autor: Gustavo Marquezani Spolador, Clarissa Bueno, Rita Tiziana Verardo Polastrini, Ivete Zoboli, Ana Cristina Henrique, Elaine Freitas, Andréa Gislene doNascimento, Camila Pugliese, Fernando Kok, Silvia Maria de Macedo Barbosa

Publikováno v: JIMD Reports, Vol 65, Iss 3, Pp 182-187 (2024)

Abstract The interface between pediatric palliative care (PPC) and inborn metabolic diseases (IMD) remains incipient, though these conditions fill the state of art of complex chronic diseases, eligible to this health approach. We analyzed the medical

Externí odkaz: https://doaj.org/article/86d3a597d8da4846aa490bd2d48b6642

ANÁLISE DOS ÓBITOS E CUIDADOS PALIATIVOS EM UMA UNIDADE DE TERAPIA INTENSIVA NEONATAL

Autor: Ligia Marçola, Silvia Maria Macedo de Barbosa, Ivete Zoboli, Rita Tiziana Verardo Polastrini, Maria Esther Jurfest Ceccon

Publikováno v: Revista Paulista de Pediatria, Vol 35, Iss 2, Pp 125-129

RESUMO Objetivo: Caracterizar as crianças admitidas na Unidade de Terapia Intensiva Neonatal de um hospital universitário terciário que foram a óbito no período de 1.º/01/2012 a 31/07/2014 e que necessitavam de cuidados paliativos e/ou para as

Externí odkaz: https://doaj.org/article/311c31190be24eb49af351ac733dcab9

Severe irritability in a critically ill preterm infant: a case of delirium at the neonatal intensive care unit

Autor: Lucas Hirano Arruda Moraes, Vanessa Lisbethe Bezerra Maropo, Ivete Zoboli, Mário Cícero Falcão, Werther Brunow de Carvalho

Publikováno v: Dementia & Neuropsychologia. 17

Delirium is a common disorder in intensive care units, being associated with greater morbidity and mortality. However, in neonatal intensive care units, delirium is rarely diagnosed, due to the low familiarity of the neonatologist with the subject an

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_________::b93744bfe13ff1aa02a9fa22a841e644
https://doi.org/10.1590/1980-5764-dn-2022-0046

COMUNICAÇÃO DE MÁS NOTÍCIAS EM UMA UNIDADE DE TERAPIA INTENSIVA NEONATAL: A AVALIAÇÃO FEITA PELOS PAIS

Autor: Silvia Maria Macedo de Barbosa, Ivete Zoboli, Rita Tiziana Verardo Polastrini, Ligia Marçola

Publikováno v: Revista Paulista de Pediatria, Vol 38
Revista Paulista de Pediatria, Volume: 38, Article number: e2019092, Published: 22 MAY 2020
Revista Paulista de Pediatria v.38 2020
Revista Paulista de Pediatria (Ed. Português. Online)
Sociedade de Pediatria de São Paulo (SPSP)
instacron:SPSP
Revista Paulista de Pediatria

Objective: To describe the reports of parents of newborns (NB) with congenital malformations hospitalized in a Neonatal Intensive Care Unit (NICU) who received bad news, in order to identify the issues related to the perception of bad news given adeq

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::f8f2199ab028f8709cbaad44ebd8b6a1
http://www.scielo.br/scielo.php?script=sci_arttext&pid=S0103-05822020000100444&lng=en&tlng=en