Zobrazeno 1 - 10
of 17
pro vyhledávání: '"Ivana F. Audhya"'
Autor:
Ivana F. Audhya, Shelagh M. Szabo, Andrea Bever, Fiona O’Sullivan, Daniel C. Malone, David Feeny, Peter Neumann, Susan T. Iannaccone, P. Jayasinghe, Katherine L. Gooch
Publikováno v:
Journal of Patient-Reported Outcomes, Vol 7, Iss 1, Pp 1-12 (2023)
Abstract Background The progression of Duchenne muscular dystrophy (DMD) is characterized by loss of ambulation, respiratory insufficiency, cardiomyopathy, and early mortality. DMD profoundly impacts health-related quality-of-life (HRQoL). However, f
Externí odkaz:
https://doaj.org/article/56e8e0813bd14337a96c803b7f7fba68
Publikováno v:
Health and Quality of Life Outcomes, Vol 20, Iss 1, Pp 1-10 (2022)
Abstract Background Data on health state utility in Duchenne muscular dystrophy (DMD) are few. This study estimated mean utility values by age, ambulatory status and over time, and investigated which aspects of health-related quality-of-life (HRQoL)
Externí odkaz:
https://doaj.org/article/bafa14080e3b4effb5d8eda726d48656
Publikováno v:
Journal of Patient-Reported Outcomes, Vol 6, Iss 1, Pp 1-11 (2022)
Abstract Background Providing caregiving support to people with Duchenne muscular dystrophy (DMD) is challenging, beginning in early childhood, and continuing through the progression of multidimensional disability. This study addressed the interplay
Externí odkaz:
https://doaj.org/article/c603f69d0f27404f83592706e9ce783c
Autor:
Shelagh M. Szabo, Ivana F. Audhya, David Feeny, Peter Neumann, Daniel C. Malone, Katherine L. Gooch
Publikováno v:
Journal of Patient-Reported Outcomes, Vol 6, Iss 1, Pp 1-13 (2022)
Abstract Purpose Under a societal perspective, disease and treatment attributes that the general public deem important should be considered within value frameworks. The objective was to investigate how members of the general public value attributes b
Externí odkaz:
https://doaj.org/article/edf8f44d398a4072a7144e57cfb682ad
Autor:
Carolyn E. Schwartz, Roland B. Stark, David Cella, Katrina Borowiec, Katherine L. Gooch, Ivana F. Audhya
Publikováno v:
Orphanet Journal of Rare Diseases, Vol 16, Iss 1, Pp 1-14 (2021)
Abstract Background Person-reported outcomes measurement development for rare diseases has lagged behind that of more common diseases. In studies of caregivers of patients with rare diseases, one relies on proxy report to characterize this disability
Externí odkaz:
https://doaj.org/article/5adabc4ef23b4480bcb66f6b4683aadc
Publikováno v:
Journal of Patient-Reported Outcomes, Vol 5, Iss 1, Pp 1-16 (2021)
Abstract Background This study examined the impact of Duchenne muscular dystrophy (DMD) on family-member caregivers in terms of quality of life, life stress, and indirect costs, as compared to a stratified comparison group of parents of similar-age c
Externí odkaz:
https://doaj.org/article/bc2b7f86292f48379b318d9bf5310196
Autor:
Ivana F. Audhya, Antoinette Cheung, Shelagh M. Szabo, Emma Flint, Conrad C. Weihl, Katherine L. Gooch
Publikováno v:
Journal of Neuromuscular Diseases. 9:477-492
Background The impact of age at autosomal recessive limb girdle muscular dystrophy (LGMDR) onset on progression to loss of ambulation (LOA) has not been well established, particularly by subtype. Objectives: To describe the characteristics of patient
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::30ac79b364aff9ccd8eb0d2dd929d85e
https://doi.org/10.3233/jnd-210771
https://doi.org/10.3233/jnd-210771
Publikováno v:
Journal of Medical Economics. 25:888-893
This research aimed to review the theoretical and methodological aspects of the quality-adjusted life year (QALY) which give rise to potential for bias against certain patient populations, including those with problems with walking or an inability to
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::b29692d9e4606a110b1f4e9cd1815869
https://doi.org/10.1080/13696998.2022.2090152
https://doi.org/10.1080/13696998.2022.2090152
Autor:
David Cella, Katherine Gooch, Carolyn E. Schwartz, Ivana F. Audhya, Roland B. Stark, Katrina Borowiec
Publikováno v:
Orphanet Journal of Rare Diseases, Vol 16, Iss 1, Pp 1-14 (2021)
Orphanet Journal of Rare Diseases
Orphanet Journal of Rare Diseases
Background Person-reported outcomes measurement development for rare diseases has lagged behind that of more common diseases. In studies of caregivers of patients with rare diseases, one relies on proxy report to characterize this disability. It is i
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::aae1ce32e88e0395f4e75a46b1d0a431
https://doaj.org/article/5adabc4ef23b4480bcb66f6b4683aadc
https://doaj.org/article/5adabc4ef23b4480bcb66f6b4683aadc
Publikováno v:
Journal of patient-reported outcomes. 6(1)
Providing caregiving support to people with Duchenne muscular dystrophy (DMD) is challenging, beginning in early childhood, and continuing through the progression of multidimensional disability. This study addressed the interplay between caregiver im
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=pmid________::0540f4ebf579933a52c22b35fa338658
https://pubmed.ncbi.nlm.nih.gov/35267108
https://pubmed.ncbi.nlm.nih.gov/35267108