Zobrazeno 1 - 10
of 14
pro vyhledávání: '"Isabel Canfield"'
Autor:
Christi J. Guerrini, Jorge L. Contreras, Whitney Bash Brooks, Isabel Canfield, Meredith Trejo, Amy L. McGuire
Publikováno v:
New Genetics and Society, Vol 41, Iss 2, Pp 74-95 (2022)
The perspectives of genomic citizen scientists on ownership of research outputs are not well understood, yet they are useful for identifying alignment of participant expectations and project practices and can help guide efforts to develop innovative
Externí odkaz:
https://doaj.org/article/8e61be94618a47c2af2856fd74fa28f5
Autor:
Christi J. Guerrini, Sophie C. Schneider, Andrew G. Guzick, Gifty N. Amos Nwankwo, Isabel Canfield, Savitri Fedson, Amanda M. Gutierrez, Jessica C. Sheu, Amber Y. Song, Alexandra M. Villagran, Amy L. McGuire, Eric A. Storch
Publikováno v:
Frontiers in Psychiatry, Vol 12 (2021)
The COVID-19 pandemic is taking a significant global toll on emotional well-being, but evidence of mental health impacts in the United States remains limited. In April 2020, we conducted an exploratory survey of U.S. residents to understand prevalenc
Externí odkaz:
https://doaj.org/article/70f5faa0e9294b2ea1b44079dd2cf230
Autor:
Christi J. Guerrini, Meaganne Lewellyn, Mary A. Majumder, Meredith Trejo, Isabel Canfield, Amy L. McGuire
Publikováno v:
BMC Medical Ethics, Vol 20, Iss 1, Pp 1-13 (2019)
Abstract Background Citizen science is increasingly prevalent in the biomedical sciences, including the field of human genomics. Genomic citizen science initiatives present new opportunities to engage individuals in scientific discovery, but they als
Externí odkaz:
https://doaj.org/article/ad9a333493834239928a2c9c5f14b2a2
Publikováno v:
Citizen Science: Theory and Practice, Vol 6, Iss 1 (2021)
As biomedical citizen science initiatives become more prevalent, the unique ethical issues that they raise are attracting policy attention. One issue identified as a significant concern is the ethical oversight of bottom-up biomedical citizen science
Externí odkaz:
https://doaj.org/article/79158777369f442ca9c8026d67c58465
Publikováno v:
BioSocieties.
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::42992b6d1c8b8e78b97db4e5bb1b03b6
https://doi.org/10.1057/s41292-023-00298-8
https://doi.org/10.1057/s41292-023-00298-8
Autor:
Amanda M. Gutierrez, Jill O. Robinson, Robin Raesz-Martinez, Isabel Canfield, Mary A. Majumder, Sarah Scollon, Lauren R. Desrosiers, Rebecca L. Hsu, Wendy Allen-Rhoades, D. Williams Parsons, Sharon E. Plon, Amy L. McGuire, Janet Malek
Publikováno v:
Journal of adolescent and young adult oncology.
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::5e4e7f289b1094ded36a3e943bb72a54
https://pubmed.ncbi.nlm.nih.gov/36595372
https://pubmed.ncbi.nlm.nih.gov/36595372
Autor:
Hadley Stevens Smith, Stephanie R. Morain, Jill Oliver Robinson, Isabel Canfield, Janet Malek, Caryn Kseniya Rubanovich, Cinnamon S. Bloss, Sara L. Ackerman, Barbara Biesecker, Kyle B. Brothers, Crispin N. Goytia, Carol R. Horowitz, Sara J. Knight, Barbara Koenig, Stephanie A. Kraft, Simon Outram, Christine Rini, Kelly J. Shipman, Margaret Waltz, Benjamin Wilfond, Amy L. McGuire
Publikováno v:
The patient, vol 15, iss 3
Patient
Patient
BACKGROUND AND OBJECTIVES: Successful clinical integration of genomic sequencing (GS) requires evidence of its utility. While GS potentially has benefits (utilities) or harms (disutilities) across multiple domains of life for both patients and their
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::325dd09837edcbb6b73f3ebff3fddaeb
https://escholarship.org/uc/item/2zw0x7fb
https://escholarship.org/uc/item/2zw0x7fb
Publikováno v:
Biosocieties
Genomic citizen science initiatives that promote public involvement in the study or manipulation of genetic information are flourishing. These initiatives are diverse and range from data donation studies, to biological experimentation conducted in ho
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::97b1c8cdfcbc3b8af24759275d679822
https://doi.org/10.1057/s41292-020-00208-2
https://doi.org/10.1057/s41292-020-00208-2
Publikováno v:
AJOB Empir Bioeth
As citizen science continues to grow in popularity, there remains disagreement about what terms should be used to describe citizen science activities and participants. The question of how to self-identify has important ethical, political, and practic
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::c5678c82ae8025ba8eaeed7e90bd2b9c
https://doi.org/10.1080/23294515.2020.1825139
https://doi.org/10.1080/23294515.2020.1825139
Autor:
Amanda M. Gutierrez, Sophie C. Schneider, Rubaiya Islam, Jill O. Robinson, Rebecca L. Hsu, Isabel Canfield, Christi J. Guerrini
Publikováno v:
Stigma and Health.
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::2b26fd1cf07ade34c4aa1db24e674218
https://doi.org/10.1037/sah0000354
https://doi.org/10.1037/sah0000354