Zobrazeno 1 - 8
of 8
pro vyhledávání: '"Ingrid Nielssen"'
Autor:
Marcia Bruce, Eliana Castillo, Laija Beaulieu, Barbara Tiedemann, Rabea Chishti, Iqmat Iyiola, Sarah Penny, Caroline Leroux, Ingrid Nielssen, Maria Jose Santana
Publikováno v:
BMJ Paediatrics Open, Vol 8, Iss 1 (2024)
Objective To understand parental perspectives regarding universal newborn screening (UNS) for congenital cytomegalovirus (cCMV) in Canada.Design A qualitative, patient-led study using the Patient and Community Engagement Research approach consisting
Externí odkaz:
https://doaj.org/article/75dbeac3d5c44c52ae346fcf9ab9d614
Autor:
Hanna Sutherland, Samantha Sutherland, Raeanne Rondeau, George Minde, Ingrid Nielssen, Kristin Flemons
Publikováno v:
Spectrum, Iss 13 (2024)
Indigenous Life Promotion and strengths-based approaches to mental wellness and suicide prevention are important strategies that promote sovereignty, holistic wellness, and healing at the individual, family, and community levels. As part of the Patie
Externí odkaz:
https://doaj.org/article/79ef19ef3acf4c849897c598e19da357
Autor:
Ingrid Nielssen, Maria Santana, Surakshya Pokharel, Kimberly Strain, Veronika Kiryanova, Sandra Zelinsky, Zoha Khawaja, Prachi Khanna, Anni Rychtera, Anshula Ambasta
Publikováno v:
Health Expectations, Vol 27, Iss 1, Pp n/a-n/a (2024)
Abstract Background Inclusiveness, Support, Mutual Respect and Co‐Build are the four pillars of patient engagement according to the Strategy for Patient‐Oriented Research (SPOR). The aim of this manuscript is to describe the operationalization of
Externí odkaz:
https://doaj.org/article/870cf24947f845c2bcd8c386ff129414
Autor:
Stella Babatunde, Sadia Ahmed, Maria Jose Santana, Ingrid Nielssen, Sandra Zelinsky, Anshula Ambasta
Publikováno v:
Research Involvement and Engagement, Vol 9, Iss 1, Pp 1-13 (2023)
Abstract Background In patient-oriented research (POR), patients contribute their valuable knowledge and lived-experiences to work together as active research partners at all stages of the health research cycle. However, research looking to understan
Externí odkaz:
https://doaj.org/article/1facc9ce07ac4eadbfa5b9d54912e991
Publikováno v:
Health Expectations, Vol 26, Iss 4, Pp 1584-1595 (2023)
Abstract Introduction Patient engagement in patient‐oriented research (POR) is described as patients collaborating as active and equal research team members (patient research partners [PRPs]) on the health research projects and activities that matt
Externí odkaz:
https://doaj.org/article/2c75f45d720c4220a4b95ebafb15b80d
Autor:
Maria J. Santana, D’Arcy Duquette, Paul Fairie, Ingrid Nielssen, Sumedh Bele, Sadia Ahmed, Tiffany Barbosa, Sandra Zelinsky
Publikováno v:
Research Involvement and Engagement, Vol 8, Iss 1, Pp 1-5 (2022)
Plain English summary Albertans4HealthResearch, supported by the Alberta Strategy for Patient-Oriented Research (AbSPORU) Patient Engagement Team, hosted a virtual round table discussion to develop a list of considerations for successful partnerships
Externí odkaz:
https://doaj.org/article/4a87efa01fbf4a77b815fd285958d6d6
Autor:
Alessandra Paolucci, Ingrid Nielssen, Karen L. Tang, Aynharan Sinnarajah, Jessica E. Simon, Maria J. Santana
Publikováno v:
Palliative Care and Social Practice, Vol 16 (2022)
Background: Palliative care (PC) is an added layer of support provided concurrently with cancer care and serves to improve wellbeing and sustain quality of life. Understanding what is meaningful and a priority to patients, their families, and caregiv
Externí odkaz:
https://doaj.org/article/057ad126f84c46adba23dfbb4dc62749
Autor:
Jananee Rasiah MN, RN, Elizabeth Manafò MHSc, Kiara Krawec BA, Ingrid Nielssen BA, Israel Amirav MD, Emily CM Macphail BHSc, Lise-Anne Lavigne, Sheila Asis
Publikováno v:
Journal of Patient Experience, Vol 7 (2020)
The patient engagement (PE) platform staff of Alberta Strategy for Patient Oriented Research Support for People and Patient Oriented Research Trials Unit developed a patient-powered PE network called Albertans for Health Research Network (AB4HR); an
Externí odkaz:
https://doaj.org/article/6ce1f5a78a5c4c7a902dc9dbba2c7440