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A novel Interactive Health Communication Application (IHCA) for parents of children with long-term conditions: Development, implementation and feasibility assessment

Autor: Andrew Hall, Malcolm Campbell, Trish Smith, Veronica Swallow, Melanie Harper-Jones, Ian Carolan, Noreen Hanif, Sheila Judge Santacroce, Kathleen A. Knafl, Nicholas J. A. Webb

Publikováno v: Informatics for Health and Social Care. 41:20-46

Few evidence-based, on-line resources exist to support home-based care of childhood long-term conditions.In a feasibility study, children with stages 3, 4, or 5 chronic kidney disease, parents and professionals collaboratively developed a novel Onlin

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::a84ef49bc6da310804eaa1ad02b749c4
https://doi.org/10.3109/17538157.2014.948174

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An Interactive Health Communication Application for Supporting Parents Managing Childhood Long-Term Conditions: Outcomes of a Randomized Controlled Feasibility Trial

Autor: Sheila Judge Santacroce, Andrew Hall, Malcolm Campbell, Trish Smith, Ian Carolan, Veronica Swallow, Kathleen A. Knafl

Publikováno v: JMIR Research Protocols, Vol 3, Iss 4, p e69 (2014)
JMIR Research Protocols

BackgroundFamilies living with chronic or long-term conditions such as chronic kidney disease (CKD), stages 3-5, face multiple challenges and respond to these challenges in various ways. Some families adapt well while others struggle, and family resp

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::cfc785f9fe0ce3b2752148c6d327091b
http://www.researchprotocols.org/2014/4/e69/

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Designing a web-application to support home-based care of childhood CKD stages 3-5: Qualitative study of family and professional preferences

Autor: Sheila Judge Santacroce, Ian Carolan, Trish Smith, Noreen Hanif, Veronica Swallow, Andrew Hall, Nicholas J. A. Webb

Publikováno v: BMC Nephrology

Background: There is a lack of online, evidence-based information and resources to support home-based care of childhood CKD stages 3-5. Methods. Qualitative interviews were undertaken with parents, patients and professionals to explore their views on

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::8b79c272a332c0edfb632f8a8bebc223

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O-219 Developing And Evaluating An On Line Parent Information And Support Application To Facilitate Home-based Care By Parents Of Long-term Conditions: A Feasibility Rct

Autor: Sheila Judge Santacroce, M Harper-Jones, Ian Carolan, Kathleen A. Knafl, Veronica Swallow, Malcolm Campbell, Trish Smith, N. J. A. Webb, Andrew Hall

Publikováno v: Archives of Disease in Childhood. 99:A108.2-A109

Background/aims We developed a novel, long-term condition-specific Interactive Health Communication Application, the on- line parent information and support (OPIS) to promote parents’ home-based management ability. We aimed to assess feasibility of

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_________::904d35c3e46fb7a85525f536fcfcc00b
https://doi.org/10.1136/archdischild-2014-307384.289

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Emerging communities of child-healthcare practice in the management of long-term conditions such as chronic kidney disease: qualitative study of parents’ accounts

Autor: Ian Carolan, Andrew Hall, Veronica Swallow, Trish Smith

Publikováno v: BMC Health Services Research

Background: Parents of children and young people with long-term conditions who need to deliver clinical care to their child at home with remote support from hospital-based professionals, often search the internet for care-giving information. However,

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::40c5ff57f9bd55ea3ce2aea2fa8b1f79

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