Heart Failure and Patient‐Reported Outcomes in Adults With Congenital Heart Disease from 15 Countries

Autor: Chun‐Wei Lu, Jou‐Kou Wang, Hsiao‐Ling Yang, Adrienne H. Kovacs, Koen Luyckx, Francisco Javier Ruperti‐Repilado, Alexander Van De Bruaene, Junko Enomoto, Maayke A. Sluman, Jamie L. Jackson, Paul Khairy, Stephen C. Cook, Shanthi Chidambarathanu, Luis Alday, Erwin Oechslin, Katrine Eriksen, Mikael Dellborg, Malin Berghammer, Bengt Johansson, Andrew S. Mackie, Samuel Menahem, Maryanne Caruana, Gruschen Veldtman, Alexandra Soufi, Susan M. Fernandes, Kamila White, Edward Callus, Shelby Kutty, Silke Apers, Philip Moons

Publikováno v: Journal of the American Heart Association: Cardiovascular and Cerebrovascular Disease, Vol 11, Iss 9 (2022)

Background Heart failure (HF) is the leading cause of mortality and associated with significant morbidity in adults with congenital heart disease. We sought to assess the association between HF and patient‐report outcomes in adults with congenital

Externí odkaz: https://doaj.org/article/181547168d4349f8a07baafe3968d22f

Patient-reported outcomes in the aging population of adults with congenital heart disease : results from APPROACH-IS

Autor: Philip, Moons, Koen, Luyckx, Corina, Thomet, Werner, Budts, Junko, Enomoto, Maayke A, Sluman, Hsiao Ling, Yang, Jamie L, Jackson, Paul, Khairy, Stephen C, Cook, Shanthi, Chidambarathanu, Luis, Alday, Erwin, Oechslin, Katrine, Eriksen, Mikael, Dellborg, Malin, Berghammer, Bengt, Johansson, Andrew S, Mackie, Samuel, Menahem, Maryanne, Caruana, Gruschen, Veldtman, Alexandra, Soufi, Susan M, Fernandes, Kamila, White, Edward, Callus, Shelby, Kutty, Adrienne H, Kovacs, Kirstie, MacMillen

Publikováno v: Moons, Philip; Luyckx, Koen; Thomet, Corina; Budts, Werner; Enomoto, Junko; Sluman, Maayke A; Yang, Hsiao Ling; Jackson, Jamie L; Khairy, Paul; Cook, Stephen C; Chidambarathanu, Shanthi; Alday, Luis; Oechslin, Erwin; Eriksen, Katrine; Dellborg, Mikael; Berghammer, Malin; Johansson, Bengt; Mackie, Andrew S; Menahem, Samuel; Caruana, Maryanne; ... (2023). Patient-reported outcomes in the aging population of adults with congenital heart disease: results from APPROACH-IS. European journal of cardiovascular nursing, 22(4), pp. 339-344. Oxford University Press 10.1093/eurjcn/zvac057

The congenital heart disease (CHD) population now comprises an increasing number of older persons in their 6th decade of life and beyond. We cross-sectionally evaluated patient-reported outcomes (PROs) in persons with CHD aged 60 years or older, and

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::dfc36166227590ef0cd84dbc9e18eba7
http://urn.kb.se/resolve?urn=urn:nbn:se:umu:diva-209880

Screen Time Exposure and Altered Sleep in Young Children With Epilepsy

Autor: Suh-Fang Jeng, Shao Yu Tsai, Wen-Chin Weng, Chien-Chang Lee, Ying-Ying Lin, Wang-Tso Lee, Hsiao-Ling Yang

Publikováno v: Journal of Nursing Scholarship. 52:352-359

To examine the association between daily screen time exposure and both sleep patterns (sleep onset, sleep offset, and nighttime, and daily sleep durations) and sleep disturbances among a clinical sample of children with epilepsy.A cross-sectional act

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::078140cc5b04f26ed4a81beac7eb6bfc
https://doi.org/10.1111/jnu.12558

[Associations Between Daytime Physical Activity and Sleep Patterns in Children With Epilepsy]

Autor: Ying-Ying, Lin, Wang-Tso, Lee, Hsiao-Ling, Yang, Wen-Chin, Weng, Shao-Yu, Tsai

Publikováno v: Hu li za zhi The journal of nursing. 68(4)

Epilepsy is one of the most common chronic neurological diseases in children. Sleep disorders tend to increase the risk of seizures, and research has found that moderate physical activity may improve the quantity and quality of sleep in adults. Howev

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=pmid________::54032e565eb5dd2b509de5b981ed70ce
https://pubmed.ncbi.nlm.nih.gov/34337703

Transition to adulthood and transfer to adult care of adolescents with congenital heart disease : a global consensus statement of the ESC Association of Cardiovascular Nursing and Allied Professions (ACNAP), the ESC Working Group on Adult Congenital Heart Disease (WG ACHD), the Association for European Paediatric and Congenital Cardiology (AEPC), the Pan-African Society of Cardiology (PASCAR), the Asia-Pacific Pediatric Cardiac Society (APPCS), the Inter-American Society of Cardiology (IASC), the Cardiac Society of Australia and New Zealand (CSANZ), the International Society for Adult Congenital Heart Disease (ISACHD), the World Heart Federation (WHF), the European Congenital Heart Disease Organisation (ECHDO), and the Global Alliance for Rheumatic and Congenital Hearts (Global ARCH)

Autor: Philip Moons, Ewa-Lena Bratt, Julie De Backer, Eva Goossens, Tim Hornung, Oktay Tutarel, Liesl Zühlke, John Jairo Araujo, Edward Callus, Harald Gabriel, Nauman Shahid, Karen Sliwa, Amy Verstappen, Hsiao-Ling Yang, Corina Thomet

Publikováno v: EUROPEAN HEART JOURNAL
European Heart Journal
European heart journal

The vast majority of children with congenital heart disease (CHD) in high-income countries survive into adulthood. Further, paediatric cardiac services have expanded in middle-income countries. Both evolutions have resulted in an increasing number of

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::d369bca035c25803159a3a31e01bf98b
https://hdl.handle.net/1854/LU-8716357