Childhood interstitial lung disease survivors in adulthood: a European collaborative study.

Autor: Manali ED; 2nd Pulmonary Medicine Department, General University Hospital 'Attikon', Medical School, National and Kapodistrian University of Athens, Greece., Griese M; Department of Pediatric Pneumology, Dr von Hauner Children's Hospital, Ludwig-Maximilians-University, German Center for Lung Research., Nathan N; Service de Pneumologie Pédiatrique, Assistance Publique Hôpitaux de Paris, Sorbonne Université, Centre National de Référence des Maladies Respiratoires Rares RespiRare, Hôpital Armand Trousseau, Paris France.; Childhood genetic diseases laboratory, UMR_S933, Inserm, Sorbonne Université, Hôpital Armand Trousseau, Paris France.; Equally contributed to this work., Uzunhan Y; Centre de Référence Constitutif des Maladies Pulmonaires Rares, Service de Pneumologie, Hôpital Avicenne, APHP, Bobigny, France.; Equally contributed to this work., Borie R; Université de Paris, INSERM UMR 1152, Paris, France, APHP, Hôpital Bichat, Service de Pneumologie A, FHU APOLLO, Centre de Référence des maladies Pulmonaires rares, Paris, France., Michel K; Department of Pediatric Pneumology, Dr von Hauner Children's Hospital, Ludwig-Maximilians-University, German Center for Lung Research., Schwerk N; Clinic for Pediatric Pneumology, Allergology, and Neonatology, Hannover Medical School, Hannover, Germany., Fijolek J; 3rd Department of Lung Diseases and Oncology, National Tuberculosis and Lung Diseases Research Institute, Warsaw, Poland., Radzikowska E; 3rd Department of Lung Diseases and Oncology, National Tuberculosis and Lung Diseases Research Institute, Warsaw, Poland., Chua F; Royal Brompton and Harefield Clinical Group, Guy's and St Thomas' NHS Foundation Trust, London, UK; Margaret Turner Warwick Centre for Fibrosing Lung Disease, National Heart and Lung Institute, Imperial College London, London, UK., Pabary R; Pediatrics and Pediatrics Respirology, Imperial College, UK; Imperial Centre for Pediatrics and Child Health, UK, Royal Brompton Harefield NHS Foundation Trust, UK., Mogulkoc N; Department of Pulmonology, Ege University Hospital, Bornova, Izmir, Turkey., McCarthy C; University College Dublin School of Medicine Education and Research Centre, St. Vincent's University Hospital, Elm Park, Dublin 4, Ireland., Kallieri M; 2nd Pulmonary Medicine Department, General University Hospital 'Attikon', Medical School, National and Kapodistrian University of Athens, Greece., Papaioannou AI; 1st University Department of Respiratory Medicine, National and Kapodistrian University of Athens, Athens, , Greece., Kiper N; Pediatric Pulmonology Hacettepe University, Faculty of Medicine, Ankara, Turkey., Koziar Vasakova M; Department of Respiratory Medicine, First Faculty of Medicine, Charles University and Thomayer University Hospital, Thomayer University Hospital, Prague 4, Czech Republic., Lacina L; Department of Respiratory Medicine, First Faculty of Medicine, Charles University and Thomayer University Hospital, Thomayer University Hospital, Prague 4, Czech Republic., Molina-Molina M; Multidisciplinary Unit Hospital Universitari de Bellvitge-IDIBELL, L'Hospitalet del Llobreg at, Barcelona, Spain., Torrent-Vernetta A; Pediatric Pulmonology, Mitera Pediatric Hospital, Athens, Greece., Tsiligiannis T; Pediatric Pulmonology, Mitera Pediatric Hospital, Athens, Greece., Karadag B; Division of Pediatric Pulmonology, Marmara University School of Medicine, Istanbul, Turkey., Kokosi M; Interstitial Lung Disease Unit, Royal Brompton Hospital & Harefield NHS Foundation Trust, Interstitial Lung Disease Unit, Guy's and St Thomas' Hospital NHS Foundation Trust, London., Renzoni EA; Royal Brompton and Harefield Clinical Group, Guy's and St Thomas' NHS Foundation Trust, London, UK; Margaret Turner Warwick Centre for Fibrosing Lung Disease, National Heart and Lung Institute, Imperial College London, London, UK., Hm van Moorsel C; ERN-lung Interstitial Lung Disease Center of Excellence, Department of Pulmonology, St. Antonius Hospital, Nieuwegein, The Netherlands; Division of Heart and Lungs, University Medical Center Utrecht, Utrecht, The Netherlands., Campo I; Laboratorio di Biochimica e Genetica, U.O.C. Pneumologia, Fondazione IRCCS Policlinico San Matteo viale Golgi -Pavia, Italy., Bendstrup E; Department of Respiratory Diseases and Allergy, Aarhus University Hospital, Denmark., Skovhus Prior T; Department of Respiratory Diseases and Allergy, Aarhus University Hospital, Denmark., Prasse A; ILD Clinic & Research, Hannover Medical School, Hannover, Germany., Bonella F; Center for Interstitial and Rare Lung Diseases, Pneumology Department, Ruhrlandklinik, University Hospital, University of Essen, Essen, Germany; European Reference Network (ERN)-LUNG, ILD Core Net, Francesco., Cottin V; Service de pneumologie, Centre national coordinateur de référence des maladies pulmonaires rares, Hôpital Louis Pradel, Hospices Civils de Lyon, Université de Lyon, Université Claude Bernard Lyon 1, UMR754 INRA, IVPC, Lyon, France., Diesler R; Service de pneumologie, Centre national coordinateur de référence des maladies pulmonaires rares, Hôpital Louis Pradel, Hospices Civils de Lyon, Université de Lyon, Université Claude Bernard Lyon 1, UMR754 INRA, IVPC, Lyon, France., Froidure A; Pulmonology Department, Cliniques Universitaires Saint-Luc, Université Catholique de Louvain, Brussels, Institut de Recherche Expérimentale et Clinique (IREC), Université Catholique de Louvain, Belgium., Kolilekas L; 7th Pulmonary Department, Athens Chest Hospital 'Sotiria', Athens, Greece., Fotis L; Third Department of Paediatrics, General University Hospital 'Attikon', Medical School, National and Kapodistrian University of Athens, Greece., Douros K; Third Department of Paediatrics, General University Hospital 'Attikon', Medical School, National and Kapodistrian University of Athens, Greece., Kaditis AG; First Department of Paediatrics, Agia Sophia Children's Hospital, Medical School, National and Kapodistrian University of Athens, Athens, Greece., Jeny F; Centre de Référence Constitutif des Maladies Pulmonaires Rares, Service de Pneumologie, Hôpital Avicenne, APHP, Bobigny, France., Chauveau S; Centre de Référence Constitutif des Maladies Pulmonaires Rares, Service de Pneumologie, Hôpital Avicenne, APHP, Bobigny, France., Nunes H; Centre de Référence Constitutif des Maladies Pulmonaires Rares, Service de Pneumologie, Hôpital Avicenne, APHP, Bobigny, France., Dahbia A; Université de Paris, INSERM UMR 1152, Paris, France, APHP, Hôpital Bichat, Service de Pneumologie A, FHU APOLLO, Centre de Référence des maladies Pulmonaires rares, Paris, France., Mariani F; Laboratorio di Biochimica e Genetica, U.O.C. Pneumologia, Fondazione IRCCS Policlinico San Matteo viale Golgi -Pavia, Italy., van der Vis JJ; ERN-lung Interstitial Lung Disease Center of Excellence, Department of Pulmonology, St. Antonius Hospital, Nieuwegein, The Netherlands; Division of Heart and Lungs, University Medical Center Utrecht, Utrecht, The Netherlands., Groen K; ERN-lung Interstitial Lung Disease Center of Excellence, Department of Pulmonology, St. Antonius Hospital, Nieuwegein, The Netherlands; Division of Heart and Lungs, University Medical Center Utrecht, Utrecht, The Netherlands., Erdem Eralp E; Division of Pediatric Pulmonology, Marmara University School of Medicine, Istanbul, Turkey., Gokdemir Y; Division of Pediatric Pulmonology, Marmara University School of Medicine, Istanbul, Turkey., Kocakaya D; Division of Adult Pulmonology, Marmara University School of Medicine, Istanbul, Turkey., Olgun Yildizeli S; Division of Adult Pulmonology, Marmara University School of Medicine, Istanbul, Turkey., Yalçın E; Pediatric Pulmonology Hacettepe University, Faculty of Medicine, Ankara, Turkey., Emiralioğlu N; Pediatric Pulmonology Hacettepe University, Faculty of Medicine, Ankara, Turkey., Nayir Buyuksahin H; Pediatric Pulmonology Hacettepe University, Faculty of Medicine, Ankara, Turkey., O'Brien H; University College Dublin School of Medicine Education and Research Centre, St. Vincent's University Hospital, Elm Park, Dublin 4, Ireland., Karcıoglu O; Hacettepe University, Faculty of Medicine, Ankara., Can D; Division of Pediatric Allergy and Clinical Immunology, Dr. BehcetUz Children's Hospital, University of Health Sciences, Izmir., Ezircan A; Department of Pulmonology, Ege University Hospital, Bornova, Izmir, Turkey., Kartal Ozturk G; Division of Pulmonology, Department of Pediatrics, Ege University Hospital, Bornova, Izmir, Turkey., Ocal N; Department of Pulmonology, Gulhane Faculty of Medicine, Ankara, Turkey., Yuksel H; Department of Pulmonology, Celal Bayar University Hospital, Manisa, Turkey., Narin Tongal S; Department of Pulmonology, Celal Bayar University Hospital, Manisa, Turkey., Safrankova M; Department of Respiratory Medicine, First Faculty of Medicine, Charles University and Thomayer University Hospital, Thomayer University Hospital, Prague 4, Czech Republic., Kourtesi K; Third Department of Paediatrics, General University Hospital 'Attikon', Medical School, National and Kapodistrian University of Athens, Greece., Louvrier C; Childhood genetic diseases laboratory, UMR_S933, Inserm, Sorbonne Université, Hôpital Armand Trousseau, Paris France., Kannengiesser C; Département de Génétique, APHP Hôpital Bichat, Université de Paris, Paris, France; INSERM UMR 1152, Université de Paris, Paris, France., Fabre A; University College Dublin School of Medicine, St Vincent's University Hospital, Dublin 4., Legendre M; Childhood genetic diseases laboratory, UMR_S933, Inserm, Sorbonne Université, Hôpital Armand Trousseau, Paris France., Crestani B; Université de Paris, INSERM UMR 1152, Paris, France, APHP, Hôpital Bichat, Service de Pneumologie A, FHU APOLLO, Centre de Référence des maladies Pulmonaires rares, Paris, France., Pohunek P; Department of Pediatrics, 2nd Faculty of Medicine, Charles University and University Hospital Motol, Prague, Czech Republic., Bush A; Pediatrics and Pediatrics Respirology, Imperial College, UK; Imperial Centre for Pediatrics and Child Health, UK, Royal Brompton Harefield NHS Foundation Trust, UK.; Equally contributed to this work., Papiris SA; 2nd Pulmonary Medicine Department, General University Hospital 'Attikon', Medical School, National and Kapodistrian University of Athens, Greece.; Equally contributed to this work.

Publikováno v: The European respiratory journal [Eur Respir J] 2024 Dec 05. Date of Electronic Publication: 2024 Dec 05.