Zobrazeno 1 - 9
of 9
pro vyhledávání: '"Hilde De Keyser"'
Autor:
Sevgi E. Fruytier, Lidewij Eva Vat, Rob Camp, François Houÿez, Hilde De Keyser, Denise Dunne, Davide Marchi, Laura McKeaveney, Richard H. Pitt, Carina A.C.M. Pittens, Meagan F. Vaughn, Elena Zhuravleva, Tjerk Jan Schuitmaker-Warnaar
Publikováno v:
Journal of Patient-Centered Research and Reviews, Vol 9, Iss 1, Pp 46-57 (2022)
Purpose: While patient engagement is becoming more customary in developing health products, its monitoring and evaluation to understand processes and enhance impact are challenging. This article describes a patient engagement monitoring and evaluatio
Externí odkaz:
https://doaj.org/article/a6e5425ccbb747c4adcf9681723a9554
Autor:
Maxime Hautrive, Veerle Bulteel, Kate Hayes, F. Chedevergne, Elise Lammertyn, Emmanuelle Bardin, D. Hubert, Muriel Le Bourgeois, Andreas Hager, Anna Fonts, Hilde de Keyser, Trudy Havermans, Dominique Grenet, Paola de Carli, Pierre-Régis Burgel, Jutta Bend, Claire Bresnihan, Véronique Bontemps, Anne Calvert, Rosa Coucke, Diana Hofmann, Maya Kirszenbaum, I. Honoré, Audrey Chansard, Clémence Martin, Isabelle Sermet-Gaudelus
Publikováno v:
Journal of Cystic Fibrosis. 20:e108-e113
Background People with cystic fibrosis (pwCF) are central in the development of patient-led assessment tools. Qualitative analysis of a frequently used CF-specific patient-reported outcome measure (PROM) sought patient recommendations for development
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::c970ce6c0d93366c178283db15a21924
https://doi.org/10.1016/j.jcf.2021.02.009
https://doi.org/10.1016/j.jcf.2021.02.009
Publikováno v:
Orphanet Journal of Rare Diseases. 6/2/2023, Vol. 18 Issue 1, p1-27. 27p.
Publikováno v:
Orphanet Journal of Rare Diseases. 9/16/2020, Vol. 15 Issue 1, p1-26. 26p.
Autor:
van Mourik, Peter, Michel, Sabine, Vonk, Annelotte M., Beekman, Jeffrey M., van der Ent, Cornelis K., on behalf of the HIT-CF consortium, De Keyser, Hilde, Lammertyn, Elise, van Koningsbruggen-Rietschel, Silke, Naehrlich, Lutz, Pool, Judith, van de Craen, Marc, Aguilera, Begoña, Pott, Johanna, Vries, Rob G. J., Boj, Sylvia F., De Boeck, Kris, Vermeulen, François, Ramalho, Anabela S., Silva, Iris A. L.
Publikováno v:
Translational Medicine Communications; 6/3/2020, Vol. 5 Issue 1, p1-8, 8p
Publikováno v:
Orphanet Journal of Rare Diseases. 9/28/2018 Supplement 2, Vol. 13 Issue 2, pN.PAG-N.PAG. 1p.
Autor:
Andrew Bush, Margarida D. Amaral, Jane C. Davies, Nicholas J. Simmonds, Jennifer L. Taylor-Cousar, Sarath C. Ranganathan
Cystic Fibrosis has seen dramatic advances in treatment since the last edition, including targeted cystic fibrosis transmembrane conductance regulator (CFTR) protein modulators for most CFTR gene abnormalities. This new fifth edition is an update and
Grundlage der vorliegenden Bibliographie sind die 29 Bände der Bibliographischen Berichte, die als universaler Nachweis von Bibliographien von 1959 bis 1987 erschienen sind. Ziel der Internationalen Bibliographie der Bibliographien 1959-1988 ist es,
Grundlage der vorliegenden Bibliographie sind die 29 Bände der Bibliographischen Berichte, die als universaler Nachweis von Bibliographien von 1959 bis 1987 erschienen sind. Ziel der Internationalen Bibliographie der Bibliographien 1959-1988 ist es,