Zobrazeno 1 - 10
of 41
pro vyhledávání: '"Hilary H. Colwell"'
Autor:
Susan D. Mathias, Laurie Burke, Hilary H. Colwell, George Mensing, Will Savage, Hetanshi Naik
Publikováno v:
Journal of Patient-Reported Outcomes, Vol 7, Iss 1, Pp 1-5 (2023)
Abstract Background Erythropoietic protoporphyria is a rare, inherited disorder presenting in early childhood with severe, painful phototoxicity. EPP has significant impacts on health-related quality of life, though there is variable disease severity
Externí odkaz:
https://doaj.org/article/20f2b0c0d6104290bb583cef8097cc05
Autor:
Susan D. Mathias, Steven I. Blum, Vanja Sikirica, Kirsten L. Johansen, Hilary H. Colwell, Tony Okoro
Publikováno v:
Journal of Patient-Reported Outcomes, Vol 4, Iss 1, Pp 1-10 (2020)
Abstract Background Anemia is a frequent complication of chronic kidney disease (CKD) that negatively affects patients’ health-related quality of life. Methods We conducted qualitative concept elicitation (CE) and cognitive debriefing (CD) intervie
Externí odkaz:
https://doaj.org/article/69988b7109314a80b3ca4f61a7c7433f
Autor:
Marcia K. Horn, JD, Kevin Liu, PharmD, Susan D. Mathias, MPH, Hilary H. Colwell, MPH, Tracy Li, PhD, Parthiv Mahadevia, MD, Renee F. Pierson, MBA
Publikováno v:
JTO Clinical and Research Reports, Vol 2, Iss 8, Pp 100198- (2021)
Introduction: NSCLCs account for most lung cancers; approximately 30% involve a mutation in the EGFR gene. This study sought to identify one or more patient-reported outcome (PRO) measures relevant for use in clinical trials to assess symptoms and he
Externí odkaz:
https://doaj.org/article/007f08dcb59b4e358b3f323f0d033ab7
Autor:
Steven R. Feldman, Susan D. Mathias, Brad Schenkel, Hilary H. Colwell, Kelly McQuarrie, Bruce Randazzo, Chenglong Han
Publikováno v:
Journal of Dermatology and Dermatologic Surgery, Vol 20, Iss 1, Pp 19-26 (2016)
Background: Patients with psoriasis (PsO) suffer from a variety of symptoms. Tools are needed to assess PsO symptoms and signs from the patient’s perspective. Objective: To develop a patient-reported outcome (PRO) measure to assess symptoms and sig
Externí odkaz:
https://doaj.org/article/630efae5bd8f4e09afdc20c7b2f9638b
Autor:
Elena Muslimova, Julie Hoover-Fong, Susan D Mathias, Ravi Savarirayan, Chandler Crews, Inês Alves, Susana Noval Iruretagoyena, Amer Haider, Terry Cho, Anne Lee, Hilary H Colwell
Publikováno v:
Journal of the Endocrine Society. 6:A631-A632
Background Achondroplasia (ACH) is the most common form of non-lethal skeletal dysplasia affecting 1 in 25,000 live births. Individuals with ACH experience various medical symptoms/complications and impacts during their lifetime. Qualitative research
Autor:
Elena Muslimova, Julie Hoover-Fong, Susan D Mathias, Ravi Savarirayan, Chandler Crews, Inês Alves, Veterinary Medicine, Susana Noval Iruretagoyena, Amer Haider, Terry Cho, Anne Lee, Hilary H Colwell
Publikováno v:
Journal of the Endocrine Society. 6:A630-A631
Background Achondroplasia (ACH) is the most common non-lethal form of skeletal dysplasia affecting 1 in 25,000 live births. Individuals with ACH experience various medical, emotional, and functional challenges during their lifetime. Qualitative resea
Autor:
Katie Pascoe, D. J. Chang, Anca D. Askanase, J. De Vries, Susan D. Mathias, Hilary H. Colwell, Pamela Berry
Publikováno v:
Journal of Patient-Reported Outcomes, Vol 2, Iss 1, Pp 1-12 (2018)
Journal of Patient-Reported Outcomes
Journal of Patient-Reported Outcomes
Background Comprehensive assessment of systemic lupus erythematosus (SLE) and its treatment requires patient-reported outcome (PRO) measures to capture impacts and fluctuating symptoms. The objective of this study was to develop PROs, in accordance w
Autor:
Michael Song, Sarah Baradaran, Chenglong Han, Susan D. Mathias, Iltefat H. Hamzavi, Hilary H. Colwell, Afsaneh Alavi
Publikováno v:
Journal of the American Academy of Dermatology. 85:AB157
Autor:
Hilary H. Colwell, Tracy Li, Kevin Liu, Marcia K. Horn, Susan D. Mathias, P. Mahadevia, Renee Pierson
Publikováno v:
JTO Clinical and Research Reports, Vol 2, Iss 8, Pp 100198-(2021)
Introduction NSCLCs account for most lung cancers; approximately 30% involve a mutation in the EGFR gene. This study sought to identify one or more patient-reported outcome (PRO) measures relevant for use in clinical trials to assess symptoms and hea
Autor:
R Villacorta, C. Han, R Slowik, Afsaneh Alavi, Iltefat H. Hamzavi, Sarah Baradaran, N Li, Susan D. Mathias, Hilary H. Colwell, Michael Song
Publikováno v:
Value in Health. 24:S209