Zobrazeno 1 - 10 of 12 pro vyhledávání: '"Hepke F. Grupstra"'
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Akademický článek
Advance care planning in progressive neurological diseases: lessons from ALS
Autor: Antje A. Seeber, A. Jeannette Pols, Albert Hijdra, Hepke F. Grupstra, Dick L. Willems, Marianne de Visser
Publikováno v: BMC Palliative Care, Vol 18, Iss 1, Pp 1-10 (2019)
Abstract Background There is increasing awareness of the need for an integrated palliative care approach in chronic progressive neurological diseases. Advance care planning (ACP) is an integral part of this approach. As a systematically organized and
Externí odkaz: https://doaj.org/article/3a3b849428b441539c471600de87ccad
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2
Aerobic Exercise Therapy in Ambulatory Patients With ALS
Autor: Johanna M A Visser-Meily, Leonard H. van den Berg, Marga Tepper, Ruben P A van Eijk, Reinout O van Vliet, Esther T. Kruitwagen-van Reenen, Annerieke C. van Groenestijn, Carin D. Schröder, Jan H. Veldink, Jan T. Groothuis, Hepke F Grupstra
Publikováno v: Neurorehabilitation and Neural Repair, 33(2), 153. SAGE Publications Inc.
Neurorehabilitation and neural repair, 33(2), 153-164. SAGE Publications Inc.
Neurorehabilitation and Neural Repair, 33, 2, pp. 153-164
Neurorehabilitation and Neural Repair, 33, 153-164
Background: Weakness caused by motor neuron degeneration in amyotrophic lateral sclerosis (ALS) may result in avoidance of physical activity, resulting in deconditioning and reduced health-related quality of life (HRQoL). Objective: To study the effe
Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::5f57dd0b48735467e1898dea6b43e608
https://doi.org/10.1177/1545968319826051
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3
Experiences and reflections of patients with motor neuron disease on breaking the news in a two-tiered appointment: a qualitative study
Autor: Hepke F Grupstra, Dick L. Willems, Antje A. Seeber, A. Hijdra, A. Jeannette Pols, Marianne de Visser
Publikováno v: BMJ supportive & palliative care, 9(1):e8. BMJ Publishing Group
BackgroundBreaking bad news should be fine-tuned to the individual patient, contain intelligible information, include emotional support and offer a tailor-made treatment plan. To achieve this goal in motor neuron disease (MND), neurologists of the am
Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::c088d5ce480b42f13e4a17be648d1822
https://doi.org/10.1136/bmjspcare-2015-000977
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4
Advance care planning in progressive neurological diseases: Lessons from ALS
Autor: Marianne de Visser, Dick L. Willems, Hepke F Grupstra, A. Jeannette Pols, Antje A. Seeber, A. Hijdra
Publikováno v: BMC Palliative Care
BMC palliative care, 18(1):50. BioMed Central
BMC Palliative Care, Vol 18, Iss 1, Pp 1-10 (2019)
Background There is increasing awareness of the need for an integrated palliative care approach in chronic progressive neurological diseases. Advance care planning (ACP) is an integral part of this approach. As a systematically organized and ongoing
Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::cbaadd69087243fa186befd8081e072c
https://doi.org/10.1186/s12904-019-0433-6
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6
Need and value of case management in multidisciplinary ALS care: A qualitative study on the perspectives of patients, spousal caregivers and professionals
Autor: Frans Nollet, Karen Schipper, Anita Beelen, Minne Bakker, Hepke F Grupstra, Tineke A. Abma, Huub Creemers
Publikováno v: Bakker, M, Creemers, H, Schipper, K, Beelen, A, Grupstra, H, Nollet, F & Abma, T 2015, ' Need and value of case management in multidisciplinary ALS care: A qualitative study on the perspectives of patients, spousal caregivers and professionals ', Amyotrophic lateral sclerosis and frontotemporal degeneration, vol. 16, no. 3-4, pp. 180-186 . https://doi.org/10.3109/21678421.2014.971811
Amyotrophic lateral sclerosis and frontotemporal degeneration, 16(3-4), 180-186. Informa Healthcare
Our objective was to explore the needs and value of case management according to patients with amyotrophic lateral sclerosis (ALS), their spousal caregivers, and health care professionals in the context of multidisciplinary ALS care. We undertook sem
Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::eda820272c5b07507f4f7ff1252a1d60
https://doi.org/10.3109/21678421.2014.971811
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7
The provision of assistive devices and home adaptations to patients with ALS in the Netherlands: Patients’ perspectives
Autor: Hepke F Grupstra, Anita Beelen, Huub Creemers, Leonard H. van den Berg, Frans Nollet
Publikováno v: Amyotrophic lateral sclerosis and frontotemporal degeneration, 15(5-6), 420-425. Informa Healthcare
The timely provision of assistive devices and home adaptations (ADHA) is crucial in the management of patients with amyotrophic lateral sclerosis (ALS) in order to maintain their independence and relieve their caregivers. Our objective was to study t
Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::2c92fa144d99edd397418692f162b7a9
https://doi.org/10.3109/21678421.2014.920031
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8
Cluster RCT of case management on patients' quality of life and caregiver strain in ALS
Autor: Huub Creemers, Hepke F Grupstra, Leonard H. van den Berg, Jan H. Veldink, Anita Beelen, Frans Nollet
Publikováno v: Neurology, 82(1), 23-31. Lippincott Williams and Wilkins
Objectives:To study the effect of case management on quality of life, caregiver strain, and perceived quality of care (QOC) in patients with amyotrophic lateral sclerosis (ALS) and their caregivers.Methods:We conducted a multicenter cluster randomize
Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::ab0db02e163189f11ad3076f0a108049
https://doi.org/10.1212/01.wnl.0000438227.48470.62
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9
The ALS-FTD-Q A new screening tool for behavioral disturbances in ALS
Autor: R.J. de Haan, Joris J. Berkhout, M. de Visser, L. H. van den Berg, J. C. van Swieten, Joost Raaphorst, Janne M. Papma, Emma Beeldman, Helenius J. Schelhaas, Janneke G. Weikamp, Hepke F Grupstra, Yolande A.L. Pijnenburg, Ben Schmand, W. H. J. P. Linssen
Publikováno v: Neurology, 79(13), 1377-1383. Lippincott Williams & Wilkins
Neurology, 79(13), 1377-1383. Lippincott Williams and Wilkins
Raaphorst, J, Beeldman, E, Schmand, B, Berkhout, J, Linssen, W H J P, Van den Berg, L H, Pijnenburg, Y A L, Grupstra, H F, Weikamp, J G, Schelhaas, H J, Papma, J M, van Swieten, J C, de Visser, M & de Haan, R J 2012, ' The ALS-FTD-Q: A new screening tool for behavioral disturbances in ALS ', Neurology, vol. 79, no. 13, pp. 1377-1383 . https://doi.org/10.1212/WNL.0b013e31826c1aa1
Neurology, 79(13), 1377-1383. American Academy of Neurology
Neurology, 79, 13, pp. 1377-83
Neurology, 79, 1377-83
Objective: The assessment of behavioral disturbances in amyotrophic lateral sclerosis (ALS) is important because of the overlap with the behavioral variant of frontotemporal dementia (ALS-bvFTD). Motor symptoms and dysarthria are not taken into accou
Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::e0bd862f0ddcfd4a85ccfef20303ce74
https://pure.eur.nl/en/publications/f74cf928-cae8-4316-8dea-d34b5746ff1d
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10
Prognostic factors for the course of functional status of patients with ALS: a systematic review
Autor: Hepke F Grupstra, Frans Nollet, Anita Beelen, Huub Creemers, Leonard H. van den Berg
Publikováno v: Journal of neurology. 262(6)
The progressive course of amyotrophic lateral sclerosis (ALS) results in an ever-changing spectrum of the care needs of patients with ALS. Knowledge of prognostic factors for the functional course of ALS may enhance clinical prediction and improve th
Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::b4312dcbfa96232bf1881c3c74368aca
https://pubmed.ncbi.nlm.nih.gov/25385051
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