Zobrazeno 1 - 10
of 21
pro vyhledávání: '"Henrik Balle, Boysen"'
Autor:
Joan Mendivil, Ryan Murphy, Marie de la Cruz, Ellen Janssen, Henrik Balle Boysen, Gagan Jain, Emel Aygören-Pürsün, Ishan Hirji, Giovanna Devercelli
Publikováno v:
Orphanet Journal of Rare Diseases, Vol 16, Iss 1, Pp 1-13 (2021)
Abstract Background Hereditary angioedema (HAE) is a rare, debilitating, genetic disease characterized by unpredictable, recurrent, and potentially fatal swelling of the skin and mucous membranes. We conducted a noninterventional, cross-sectional, we
Externí odkaz:
https://doaj.org/article/de36c80d4ec44aae830757105b764738
Autor:
Marcus Maurer, MD, Markus Magerl, MD, Stephen Betschel, MD, Werner Aberer, MD, Ignacio J. Ansotegui, MD, PhD, Emel Aygören-Pürsün, MD, Aleena Banerji, MD, Noémi-Anna Bara, MD, Isabelle Boccon-Gibod, MD, Konrad Bork, MD, Laurence Bouillet, Pr, MD, PhD, Henrik Balle Boysen, Nicholas Brodszki, MD, PhD, Paula J. Busse, MD, Anette Bygum, MD, DMSci, Teresa Caballero, MD, PhD, Mauro Cancian, MD, PhD, Anthony J. Castaldo, Danny M. Cohn, MD, PhD, Dorottya Csuka, MD, Henriette Farkas, MD, PhD, DSc, Mark Gompels, MBBS, BSc, MD, Richard Gower, MD, Anete S. Grumach, MD, PhD, Guillermo Guidos-Fogelbach, MD, PhD, Michihiro Hide, MD, PhD, Hye-Ryun Kang, MD, PhD, Allen P. Kaplan, MD, Constance H. Katelaris, MBBS, PhD, Sorena Kiani-Alikhan, PhD, Wei-Te Lei, MD, Richard F. Lockey, MD, Hilary Longhurst, PhD, William Lumry, MD, Andrew MacGinnitie, MD, PhD, Alejandro Malbran, MD, PhD, Inmaculada Martinez Saguer, MD, Juan José Matta Campos, MD, Alexander Nast, MD, Dinh Nguyen, MD, PhD, Sandra A. Nieto-Martinez, MD, Ruby Pawankar, MD, PhD, Jonathan Peter, MB ChB, MMed, FCP (SA), PhD, Grzegorz Porebski, MD, Nieves Prior, MD, PhD, Avner Reshef, MD, Marc Riedl, MD, Bruce Ritchie, MD, Farrukh Rafique Sheikh, MBBS, William B. Smith, MBBS, PhD, Peter J. Spaeth, PhD, Marcin Stobiecki, MD, Elias Toubi, MD, Lilian Agnes Varga, PhD, Karsten Weller, MD, Andrea Zanichelli, MD, Yuxiang Zhi, MD, Bruce Zuraw, MD, Timothy Craig, MD
Publikováno v:
World Allergy Organization Journal, Vol 15, Iss 3, Pp 100627- (2022)
Hereditary Angioedema (HAE) is a rare and disabling disease for which early diagnosis and effective therapy are critical. This revision and update of the global WAO/EAACI guideline on the diagnosis and management of HAE provides up-to-date guidance f
Externí odkaz:
https://doaj.org/article/8b9e359b6d224c3ca799a778ade61235
Publikováno v:
Acta Dermato-Venereologica, Vol 101, Iss 5, p adv00456 (2021)
Angioedema and hereditary angioedema are characterized by swelling of the subcutaneous and/or submucosal tissue, resulting in localized oedema. The rarity, but also the diverse clinical presentation, of these conditions can be challenging regarding d
Externí odkaz:
https://doaj.org/article/dbdf425670ac4bb794f96fc20a19f956
Autor:
Anthony J. Castaldo, Anete Sevciovic Grumach, H. Henry Li, Paula J. Busse, Bruce L. Zuraw, Marc A. Riedl, Constance H. Katelaris, Inmaculada Martinez-Saguer, Yuxiang Zhi, Jonathan A. Bernstein, Anette Bygum, Henriette Farkas, Michihiro Hide, Teresa Caballero, W. Lumry, Marcus Maurer, Aleena Banerji, Emel Aygören-Pürsün, Timothy J. Craig, Markus Magerl, Hilary Longhurst, Henrik Balle Boysen, Sandra C. Christiansen
Publikováno v:
Maurer, M, Aygören-Pürsün, E, Banerji, A, Bernstein, J A, Boysen, H B, Busse, P J, Bygum, A, Caballero, T, Castaldo, A J, Christiansen, S C, Craig, T, Farkas, H, Grumach, A S, Hide, M, Katelaris, C H, Li, H H, Longhurst, H, Lumry, W R, Magerl, M, Martinez-Saguer, I, Riedl, M A, Zhi, Y & Zuraw, B 2021, ' Consensus on treatment goals in hereditary angioedema : a global Delphi initiative ', Journal of Allergy and Clinical Immunology, vol. 148, no. 6, pp. 1526-1532 . https://doi.org/10.1016/j.jaci.2021.05.016
Background: Hereditary angioedema (HAE) is a rare, life-threatening genetic disorder characterized by recurrent episodes of subcutaneous or submucosal angioedema. The ultimate goals of treatment for HAE remain ill-defined. Objectives: The aim of this
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::b7e99ab98a2671cb8786190dbd9aca26
https://findresearcher.sdu.dk:8443/ws/files/183133002/Maurer_HAE_Delphi_manuscript_resubmission_29Apr21_trackchanges.pdf
https://findresearcher.sdu.dk:8443/ws/files/183133002/Maurer_HAE_Delphi_manuscript_resubmission_29Apr21_trackchanges.pdf
Autor:
Anthony J. Castaldo, Henrik Balle Boysen, Christian Jervelund, Sandra C. Christiansen, Bruce L. Zuraw, Deborah Corcoran
Publikováno v:
Allergy Asthma Proc
Background: Novel subcutaneous (SC) prophylactic therapies are transforming the treatment landscape of hereditary angioedema (HAE). Although questions are being raised about their cost, little attention has been paid to the cost and quality of life (
Autor:
Marie de la Cruz, Ryan Murphy, Ellen M. Janssen, Gagan Jain, Giovanna Devercelli, Henrik Balle Boysen, Emel Aygören-Pürsün, Ishan Hirji, Joan Mendivil
Publikováno v:
Orphanet Journal of Rare Diseases
Orphanet Journal of Rare Diseases, Vol 16, Iss 1, Pp 1-13 (2021)
Orphanet Journal of Rare Diseases, Vol 16, Iss 1, Pp 1-13 (2021)
Background Hereditary angioedema (HAE) is a rare, debilitating, genetic disease characterized by unpredictable, recurrent, and potentially fatal swelling of the skin and mucous membranes. We conducted a noninterventional, cross-sectional, web-based s
Autor:
Kemal Özyurt, Teresa Caballero, Aharon Kessel, Andrew J. MacGinnitie, Solange Oliveira Rodrigues Valle, Anthony J. Castaldo, Markus Magerl, Regis A. Campos, Adam Reich, Heike Röckmann-Helmbach, R. Y. Meshkova, Mario Sánchez-Borges, Richard G. Gower, Anna Zalewska-Janowska, Daria Fomina, Célia Costa, Allen P. Kaplan, Marc A. Riedl, Naoko Inomata, Avner Reshef, Alejandro Malbrán, Aurélie Du-Thanh, N. Prior, Hilary Longhurst, Margarida Gonçalo, Kiran Godse, Rosana Câmara Agondi, Andreas Kleinheinz, Inmaculada Martinez-Saguer, Mona Al-Ahmad, Thilo Jakob, Luis Felipe Ensina, José Ignacio Larco Sousa, Anna Tagka, Chikako Nishigori, Nicola Wagner, Hye Ryun Kang, Michael Makris, Nicholas Brodszki, Ricardo Dario Zwiener, Jan Nicolay, Alicja Kasperska-Zając, Iris V Medina, Ignacio J. Ansotegui, Marcin Stobiecki, Alejandro Berardi, Danny M. Cohn, Claudio A S Parisi, Angèle Soria, Torsten Zuberbier, Dario O. Josviack, E Serra-Baldrich, Jonathan A. Bernstein, Anette Bygum, Isao Ohsawa, Henriette Farkas, Iman Nasr, Thomas Buttgereit, Jonathan Peter, Carsten Bindslev-Jensen, Paulo Ricardo Criado, Wolfgang Pfützner, Natalia Fili, Silvia Mariel Ferrucci, Petra Staubach, Peter Schmid-Grendelmeier, M. Gotua, Marcus Maurer, Jose Fabiani, Gordon Sussman, A. Marsland, Konrad Bork, Andrea Zanichelli, Simon Francis Thomsen, Isabelle Boccon-Gibod, Mauro Cancian, German D. Ramon, Zuotao Zhao, Nikolaos G. Papadopoulos, Martijn B. A. van Doorn, Andrea Bauer, Kanokvalai Kulthanan, Claudio Fantini, Henrik Balle Boysen, Lilian Varga, Dorota Krasowska, Ana Giménez-Arnau, Werner Aberer, Ivan Cherrez-Ojeda, Roberta F. Criado, Constance H. Katelaris, Martin Metz, Riccardo Asero, Mitja Košnik, Stephen Betschel, M Sendhil Kumaran, Sigurd Broesby-Olsen, Moshe Ben-Shoshan, Rand Arnaout, Regina Treudler, Laurence Bouillet, Natalia Ilina, Maryam Ali Al-Nesf, Emek Kocatürk, Emel Aygören-Pürsün, William R. Lumry, Guillermo Guidos-Fogelbach, Yuxiang Zhi, Mark Gompels, Andac Salman, Christina Weber-Chrysochoou, Michihiro Hide, Young Min Ye, Aslı Gelincik, William B Smith, Timothy J. Craig, Bruce Ritchie, Daniel O. Vázquez, Mojca Bizjak, Atsushi Fukunaga, Ragıp Ertaş, Urs C. Steiner, Faradiba Sarquis Serpa, Farrukh R. Sheikh, Michael Rudenko, Paula J. Busse, Luisa Karla de Paula Arruda, Liangchun Wang, Todor A. Popov, Anete Sevciovic Grumach, Joachim Dissemond, Dorottya Csuka, Ignasi Figueras-Nart, Aleena Banerji
Publikováno v:
Allergy, vol. 75, pp. 1-9, 2020.
Allergy: European Journal of Allergy and Clinical Immunology, 75(8):ALL14293. Wiley-Blackwell
Dipòsit Digital de la UB
Universidad de Barcelona
Allergy: European Journal of Allergy and Clinical Immunology, 75(8):All14293. Wiley-Blackwell Publishing Ltd
Maurer, M, Aberer, W, Agondi, R, Al-Ahmad, M, Al-Nesf, M A, Ansotegui, I, Arnaout, R, Arruda, L K, Asero, R, Aygören-Pürsü, E, Banerji, A, Bauer, A, Ben-Shoshan, M, Berardi, A, Bernstein, J A, Betschel, S, Bindslev-Jensen, C, Bizjak, M, Boccon-Gibod, I, Bork, K, Bouillet, L, Boysen, H B, Brodszki, N, Broesby-Olsen, S, Busse, P, Buttgereit, T, Bygum, A, Caballero, T, Campos, R A, Cancian, M, Cherrez-Ojeda, I, Cohn, D M, Costa, C, Craig, T, Criado, P R, Criado, R F, Csuka, D, Dissemond, J, Du-Thanh, A, Ensina, L F, Ertaş, R, Fabiani, J E, Fantini, C, Farkas, H, Ferrucci, S M, Figueras-Nart, I, Fili, N L, Fomina, D, Fukunaga, A, Gelincik, A, Giménez-Arnau, A, Godse, K, Gompels, M, Gonçalo, M, Gotua, M, Gower, R, Grumach, A S, Guidos-Fogelbach, G, Hide, M, Ilina, N, Inomata, N, Jakob, T, Josviack, D O, Kang, H R, Kaplan, A, Kasperska-Zając, A, Katelaris, C, Kessel, A, Kleinheinz, A, Kocatürk, E, Košnik, M, Krasowska, D, Kulthanan, K, Kumaran, M S, Larco Sousa, J I, Longhurst, H J, Lumry, W, MacGinnitie, A, Magerl, M, Makris, M P, Malbrán, A, Marsland, A, Martinez-Saguer, I, Medina, I V, Meshkova, R, Metz, M, Nasr, I, Nicolay, J, Nishigori, C, Ohsawa, I, Özyurt, K, Papadopoulos, N G, Parisi, C A S, Peter, J G, Pfützner, W, Popov, T, Prior, N, Ramon, G D, Reich, A, Reshef, A, Riedl, M A, Ritchie, B, Röckmann-Helmbach, H, Rudenko, M, Salman, A, Sanchez-Borges, M, Schmid-Grendelmeier, P, Serpa, F S, Serra-Baldrich, E, Sheikh, F R, Smith, W, Soria, A, Staubach, P, Steiner, U C, Stobiecki, M, Sussman, G, Tagka, A, Thomsen, S F, Treudler, R, Valle, S, van Doorn, M, Varga, L, Vázquez, D O, Wagner, N, Wang, L, Weber-Chrysochoou, C, Ye, Y M, Zalewska-Janowska, A, Zanichelli, A, Zhao, Z, Zhi, Y, Zuberbier, T, Zwiener, R D & Castaldo, A 2020, ' Definition, aims, and implementation of GA 2 LEN/HAEi Angioedema Centers of Reference and Excellence ', Allergy: European Journal of Allergy and Clinical Immunology, vol. 75, no. 8, 2115-2123 . https://doi.org/10.1111/all.14293
Allergy
ALLERGY
r-IIB SANT PAU. Repositorio Institucional de Producción Científica del Instituto de Investigación Biomédica Sant Pau
instname
Allergy: European Journal of Allergy and Clinical Immunology, 75(8):ALL14293. Wiley-Blackwell
Dipòsit Digital de la UB
Universidad de Barcelona
Allergy: European Journal of Allergy and Clinical Immunology, 75(8):All14293. Wiley-Blackwell Publishing Ltd
Maurer, M, Aberer, W, Agondi, R, Al-Ahmad, M, Al-Nesf, M A, Ansotegui, I, Arnaout, R, Arruda, L K, Asero, R, Aygören-Pürsü, E, Banerji, A, Bauer, A, Ben-Shoshan, M, Berardi, A, Bernstein, J A, Betschel, S, Bindslev-Jensen, C, Bizjak, M, Boccon-Gibod, I, Bork, K, Bouillet, L, Boysen, H B, Brodszki, N, Broesby-Olsen, S, Busse, P, Buttgereit, T, Bygum, A, Caballero, T, Campos, R A, Cancian, M, Cherrez-Ojeda, I, Cohn, D M, Costa, C, Craig, T, Criado, P R, Criado, R F, Csuka, D, Dissemond, J, Du-Thanh, A, Ensina, L F, Ertaş, R, Fabiani, J E, Fantini, C, Farkas, H, Ferrucci, S M, Figueras-Nart, I, Fili, N L, Fomina, D, Fukunaga, A, Gelincik, A, Giménez-Arnau, A, Godse, K, Gompels, M, Gonçalo, M, Gotua, M, Gower, R, Grumach, A S, Guidos-Fogelbach, G, Hide, M, Ilina, N, Inomata, N, Jakob, T, Josviack, D O, Kang, H R, Kaplan, A, Kasperska-Zając, A, Katelaris, C, Kessel, A, Kleinheinz, A, Kocatürk, E, Košnik, M, Krasowska, D, Kulthanan, K, Kumaran, M S, Larco Sousa, J I, Longhurst, H J, Lumry, W, MacGinnitie, A, Magerl, M, Makris, M P, Malbrán, A, Marsland, A, Martinez-Saguer, I, Medina, I V, Meshkova, R, Metz, M, Nasr, I, Nicolay, J, Nishigori, C, Ohsawa, I, Özyurt, K, Papadopoulos, N G, Parisi, C A S, Peter, J G, Pfützner, W, Popov, T, Prior, N, Ramon, G D, Reich, A, Reshef, A, Riedl, M A, Ritchie, B, Röckmann-Helmbach, H, Rudenko, M, Salman, A, Sanchez-Borges, M, Schmid-Grendelmeier, P, Serpa, F S, Serra-Baldrich, E, Sheikh, F R, Smith, W, Soria, A, Staubach, P, Steiner, U C, Stobiecki, M, Sussman, G, Tagka, A, Thomsen, S F, Treudler, R, Valle, S, van Doorn, M, Varga, L, Vázquez, D O, Wagner, N, Wang, L, Weber-Chrysochoou, C, Ye, Y M, Zalewska-Janowska, A, Zanichelli, A, Zhao, Z, Zhi, Y, Zuberbier, T, Zwiener, R D & Castaldo, A 2020, ' Definition, aims, and implementation of GA 2 LEN/HAEi Angioedema Centers of Reference and Excellence ', Allergy: European Journal of Allergy and Clinical Immunology, vol. 75, no. 8, 2115-2123 . https://doi.org/10.1111/all.14293
Allergy
ALLERGY
r-IIB SANT PAU. Repositorio Institucional de Producción Científica del Instituto de Investigación Biomédica Sant Pau
instname
This document summarizes the aims of GA2 LEN/HAEi Angioedema Centers of Reference and Excellence (ACAREs) and elaborates the requirements that ACAREs must fulfill to become certified. It also provides (see Appendix S1) background information on GA2LE
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::b6b35b441652e0fb1c965df05dd222b2
https://dirros.openscience.si/Dokument.php?id=14542&dn=
https://dirros.openscience.si/Dokument.php?id=14542&dn=
Autor:
Palinder Kamra, Ellie Tsai, Gina Lacuesta, Magdelena Berger, Lori Connors, Marco Cicardi, Anthony J. Castaldo, Hilary Longhurst, Amin Kanani, Man Chiu Poon, Timothy J. Craig, Andrew O'Keefe, Ibraheem Othman, Henrik Balle Boysen, Dawn Goodyear, Bill Moote, Jean Nicolas Boursiquot, Emel Aygören-Pürsün, Teresa Caballero, Susan Waserman, Harold Kim, Stephen Betschel, Paul K. Keith, Eric Leith, Rozita Borici-Mazi, Donald Stark, Jacquie Badiou, Kelly Lang-Robertson, Anete Sevciovic Grumach, Bill Yang, Alison Haynes, Lisa Fu, Bruce L. Zuraw, Charles St-Pierre, Jonathan A. Bernstein, Henriette Farkas, Marc A. Riedl, C. Katelaris, Bruce Ritchie, Christine McCusker, Karen Binkley, Konrad Bork, Hugo Chapdelaine, Jacques Hébert
Publikováno v:
Allergy, Asthma & Clinical Immunology, Vol 16, Iss 1, Pp 1-2 (2020)
An amendment to this paper has been published and can be accessed via the original article.
Autor:
Marcus, Maurer, Werner, Aberer, Rosana, Agondi, Mona, Al-Ahmad, Maryam Ali, Al-Nesf, Ignacio, Ansotegui, Rand, Arnaout, Luisa Karla, Arruda, Riccardo, Asero, Emel, Aygören-Pürsün, Aleena, Banerji, Andrea, Bauer, Moshe, Ben-Shoshan, Alejandro, Berardi, Jonathan A, Bernstein, Stephen, Betschel, Carsten, Bindslev-Jensen, Mojca, Bizjak, Isabelle, Boccon-Gibod, Konrad, Bork, Laurence, Bouillet, Henrik Balle, Boysen, Nicholas, Brodszki, Sigurd, Broesby-Olsen, Paula, Busse, Thomas, Buttgereit, Anette, Bygum, Teresa, Caballero, Régis A, Campos, Mauro, Cancian, Ivan, Cherrez-Ojeda, Danny M, Cohn, Célia, Costa, Timothy, Craig, Paulo Ricardo, Criado, Roberta F, Criado, Dorottya, Csuka, Joachim, Dissemond, Aurélie, Du-Thanh, Luis Felipe, Ensina, Ragıp, Ertaş, José E, Fabiani, Claudio, Fantini, Henriette, Farkas, Silvia Mariel, Ferrucci, Ignasi, Figueras-Nart, Natalia L, Fili, Daria, Fomina, Atsushi, Fukunaga, Asli, Gelincik, Ana, Giménez-Arnau, Kiran, Godse, Mark, Gompels, Margarida, Gonçalo, Maia, Gotua, Richard, Gower, Anete S, Grumach, Guillermo, Guidos-Fogelbach, Michihiro, Hide, Natalia, Ilina, Naoko, Inomata, Thilo, Jakob, Dario O, Josviack, Hye-Ryun, Kang, Allen, Kaplan, Alicja, Kasperska-Zając, Constance, Katelaris, Aharon, Kessel, Andreas, Kleinheinz, Emek, Kocatürk, Mitja, Košnik, Dorota, Krasowska, Kanokvalai, Kulthanan, M Sendhil, Kumaran, José Ignacio, Larco Sousa, Hilary J, Longhurst, William, Lumry, Andrew, MacGinnitie, Markus, Magerl, Michael P, Makris, Alejandro, Malbrán, Alexander, Marsland, Inmaculada, Martinez-Saguer, Iris V, Medina, Raisa, Meshkova, Martin, Metz, Iman, Nasr, Jan, Nicolay, Chikako, Nishigori, Isao, Ohsawa, Kemal, Özyurt, Nikolaos G, Papadopoulos, Claudio A S, Parisi, Jonathan Grant, Peter, Wolfgang, Pfützner, Todor, Popov, Nieves, Prior, German D, Ramon, Adam, Reich, Avner, Reshef, Marc A, Riedl, Bruce, Ritchie, Heike, Röckmann-Helmbach, Michael, Rudenko, Andaç, Salman, Mario, Sanchez-Borges, Peter, Schmid-Grendelmeier, Faradiba S, Serpa, Esther, Serra-Baldrich, Farrukh R, Sheikh, William, Smith, Angèle, Soria, Petra, Staubach, Urs C, Steiner, Marcin, Stobiecki, Gordon, Sussman, Anna, Tagka, Simon Francis, Thomsen, Regina, Treudler, Solange, Valle, Martijn, van Doorn, Lilian, Varga, Daniel O, Vázquez, Nicola, Wagner, Liangchun, Wang, Christina, Weber-Chrysochoou, Young-Min, Ye, Anna, Zalewska-Janowska, Andrea, Zanichelli, Zuotao, Zhao, Yuxiang, Zhi, Torsten, Zuberbier, Ricardo D, Zwiener, Anthony, Castaldo
Publikováno v:
Allergy. 75(8)
Autor:
Amin Kanani, Andrew O'Keefe, Henrik Balle Boysen, Man Chiu Poon, Bruce L. Zuraw, Hugo Chapdelaine, Lisa Fu, Charles St-Pierre, Lori Connors, Bill Moote, Susan Waserman, Paul K. Keith, Jacquie Badiou, Harold Kim, Eric Leith, Jean Nicolas Boursiquot, Bill Yang, Anete Sevciovic Grumach, Kelly Lang-Robertson, Stephen Betschel, Anthony J. Castaldo, Emel Aygören-Pürsün, Karen Binkley, Donald Stark, Palinder Kamra, Magdelena Berger, C. Katelaris, Marc A. Riedl, Konrad Bork, Jonathan A. Bernstein, Jacques Hébert, Henriette Farkas, Alison Haynes, Christine McCusker, Teresa Caballero, Hilary Longhurst, Dawn Goodyear, Bruce Ritchie, Rozita Borici-Mazi, Timothy J. Craig, Ibraheem Othman, Gina Lacuesta, Ellie Tsai, Marco Cicardi
Publikováno v:
Allergy, Asthma & Clinical Immunology, Vol 15, Iss 1, Pp 1-29 (2019)
Allergy, Asthma, and Clinical Immunology : Official Journal of the Canadian Society of Allergy and Clinical Immunology
Allergy, Asthma, and Clinical Immunology : Official Journal of the Canadian Society of Allergy and Clinical Immunology
This is an update to the 2014 Canadian Hereditary Angioedema Guideline with an expanded scope to include the management of hereditary angioedema (HAE) patients worldwide. It is a collaboration of Canadian and international HAE experts and patient gro