Zobrazeno 1 - 10
of 21
pro vyhledávání: '"Helena Bradley"'
Autor:
Helena Bradley, Claire Trennery, Amy M. Jones, Aoife Lydon, Frances White, Rebecca Williams-Hall, Rob Arbuckle, Erin Tomaszewski, Vivian H. Shih, John Haughney, Amanda Eisen, Tonya Winders, Stephen Joel Coons, Sonya Eremenco, the Patient-Reported Outcome Consortium’s Pediatric Asthma Working Group
Publikováno v:
Journal of Patient-Reported Outcomes, Vol 7, Iss 1, Pp 1-16 (2023)
Abstract Background Pediatric asthma has been identified by regulators, clinicians, clinical trial sponsors, and caregivers as an area in need of novel fit-for-purpose clinical outcome assessments (COAs) developed in accordance with the U.S. Food and
Externí odkaz:
https://doaj.org/article/a06b4cc6786e4c27bb658d71af0d8d5d
Autor:
Christine Kay, Isabelle Audo, Christel Naujoks, Claudio Spera, M. Dominik Fischer, Jane Green, Todd Durham, Nicola Williamson, Helena Bradley, Melissa Barclay, Joel Sims, Judit Banhazi, Francesco Patalano
Publikováno v:
Journal of Patient-Reported Outcomes, Vol 7, Iss 1, Pp 1-12 (2023)
Abstract Background Retinitis Pigmentosa (RP) and Leber Congenital Amaurosis (LCA) are rare inherited retinal degenerative disorders. The associated visual impairments have significant impacts on patients’ vision-dependent activities of daily livin
Externí odkaz:
https://doaj.org/article/0447fb61b9ba40a29704261a29e65ea4
Autor:
Isabelle Audo, Francesco Patalano, Christel Naujoks, Claudio Spera, M. Dominik Fischer, Jane Green, Christine Kay, Todd Durham, Nicola Williamson, Helena Bradley, Melissa Barclay, Kieran Boparai, Judit Banhazi
Publikováno v:
Ophthalmology and Therapy, Vol 12, Iss 4, Pp 2069-2085 (2023)
Abstract Introduction Retinitis pigmentosa (RP) and Leber congenital amaurosis (LCA) are rare inherited retinal degenerative disorders resulting in visual impairments and impacts on patients’ vision-dependent activities of daily living (ADL), mobil
Externí odkaz:
https://doaj.org/article/b7961033a6cd4deeb8df0cd4f0d46538
Autor:
Adam Gater, Chloe Tolley, Rebecca Williams‐Hall, Claire Trennery, Helena Bradley, Mirko V. Sikirica, Linda Nelsen, Ana R. Sousa, Daniel J. Bratton, Robert Chan, Robyn vonMaltzahn
Publikováno v:
OTO Open, Vol 7, Iss 4, Pp n/a-n/a (2023)
Abstract Objective To date, no patient‐reported outcome measures have been specifically developed to assess pharmacological treatment effect in participants with severe chronic rhinosinusitis (CRS) with recurrent bilateral nasal polyps (NP). These
Externí odkaz:
https://doaj.org/article/a07764f2f4a24a06871016cfabfa7a30
Autor:
M. Dominik Fischer, Francesco Patalano, Christel Naujoks, Judit Banhazi, Christine Bouchet, Paul O’Brien, Christine Kay, Jane Green, Todd Durham, Helena Bradley, Nicola Williamson, Melissa Barclay, Joel Sims, Isabelle Audo
Publikováno v:
Ophthalmology and Therapy, Vol 12, Iss 2, Pp 1359-1386 (2023)
Abstract Introduction Retinitis Pigmentosa (RP) and Leber Congenital Amaurosis (LCA) are rare inherited retinal degenerative disorders. The Visual Symptom and Impact Outcomes patient-reported outcome (ViSIO-PRO) and observer-reported outcome (ViSIO-O
Externí odkaz:
https://doaj.org/article/7c3f230672a3494a88761b7cda32cbbc
Autor:
Kate Sully, Nicola Bonner, Helena Bradley, Robyn von Maltzahn, Rob Arbuckle, Louise Walker-Nthenda, Aoife Mahon, Brandon Becker, Louise O’Hara, Katherine B. Bevans, Mark Kosinski, Robert S. Zeiger, Ross Mackenzie, Linda Nelsen
Publikováno v:
Journal of Patient-Reported Outcomes, Vol 5, Iss 1, Pp 1-16 (2021)
Plain English summary Accurate monitoring of the symptoms associated with pediatric asthma is important when managing the condition. The CHILDHOOD ASTHMA CONTROL TEST (C-ACT) is a questionnaire widely used to measure asthma severity in young children
Externí odkaz:
https://doaj.org/article/3f4bb5e336a1400198490fc01d8e4b22
Autor:
Vibeke Strand, Anna Roberts, Zahi Touma, Amy Ward, Pamela Berry, Rebecca Williams-Hall, Nicola Williamson, Melissa Barclay, Adam Gater, Chloe Tolley, Helena Bradley, Elizabeth Hsia, Qing Zuraw, Patricia DeLong
Publikováno v:
Lupus Science and Medicine, Vol 9, Iss 1 (2022)
Objective SLE and lupus nephritis (LN) have significant impacts on the health-related quality of life of patients living with the condition, which are important to capture from the patient’s perspective using patient-reported outcomes (PROs). The o
Externí odkaz:
https://doaj.org/article/33bdf04cbb65401e8d8256ef52de699a
Autor:
Louise Walker-Nthenda, Helena Bradley, Ross Mackenzie, Robyn von Maltzahn, Rob Arbuckle, Kate Sully, Brandon D. Becker, Linda M. Nelsen, Louise O'Hara, Katherine B. Bevans, Nicola Bonner, Robert S. Zeiger, Aoife Mahon, Mark Kosinski
Publikováno v:
Journal of Patient-Reported Outcomes, Vol 5, Iss 1, Pp 1-16 (2021)
Journal of Patient-Reported Outcomes
Journal of Patient-Reported Outcomes
Background Accurate symptom monitoring is vital when managing pediatric asthma, providing an opportunity to improve control and relieve associated burden. The CHILDHOOD ASTHMA CONTROL TEST (C-ACT) has been validated for asthma control assessment in c
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::e0cdbe3b867885d76ea41e5f0127ae8a
https://doaj.org/article/3f4bb5e336a1400198490fc01d8e4b22
https://doaj.org/article/3f4bb5e336a1400198490fc01d8e4b22
Autor:
Rebecca Williams-Hall, Pamela Berry, Nicola Williamson, Melissa Barclay, Anna Roberts, Adam Gater, Chloe Tolley, Helena Bradley, Amy Ward, Elizabeth Hsia, Qing Zuraw, Patricia DeLong, Zahi Touma, Vibeke Strand
Publikováno v:
Lupus sciencemedicine. 9(1)
ObjectiveSLE and lupus nephritis (LN) have significant impacts on the health-related quality of life of patients living with the condition, which are important to capture from the patient’s perspective using patient-reported outcomes (PROs). The ob
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_dedup___::6892ffec1ee5e5b6c5d4303dd1ac78ad
https://pubmed.ncbi.nlm.nih.gov/36007978
https://pubmed.ncbi.nlm.nih.gov/36007978
Autor:
D. Viriato, N. Williamson, J. Banhazi, Helena Bradley, M. Barclay, F. Patalano, J. Sims, Rob Arbuckle, Jane Green, C. Spera, C. Naujoks
Publikováno v:
Value in Health. 24:S222-S223
Externí odkaz:
https://explore.openaire.eu/search/publication?articleId=doi_________::25d88449ee91e17e514c40e0bd15fa35
https://doi.org/10.1016/j.jval.2021.04.1115
https://doi.org/10.1016/j.jval.2021.04.1115