Zobrazeno 1 - 10
of 88
pro vyhledávání: '"Helen Kitchen"'
Autor:
Jane Abbott, Natalie V. J. Aldhouse, Helen Kitchen, Hannah C. Pegram, Fiona Brown, Malcolm Macartney, Angelina Villasis-Keever, Urbano Sbarigia, Tetsuro Ito, Eric K. H. Chan, Patrick T. Kennedy
Publikováno v:
Journal of Patient-Reported Outcomes, Vol 8, Iss 1, Pp 1-14 (2024)
Abstract Background There is increased emphasis on incorporating patient perspectives and patient-relevant endpoints in drug development. We developed a conceptual model of the impact of chronic hepatitis B (CHB) on patients’ lives and evaluated th
Externí odkaz:
https://doaj.org/article/7ad5c63517c34b14b4f4785d77c71fc3
Autor:
Mondher Toumi, Jack Wallace, Chari Cohen, Chris Marshall, Helen Kitchen, Jake Macey, Hannah Pegram, Ashley F. Slagle, Robert G. Gish, Qin Ning, Hiroshi Yatsuhashi, Markus Cornberg, Maurizia Brunetto, Florian van Bömmel, Qing Xie, Dee Lee, Noriyuki Habuka, Urbano Sbarigia, Maria Beumont-Mauviel, Angelina Villasis Keever, Yasushi Takahashi, Yiwei Lu, Ao Liu, Qiaoqiao Chen, Tetsuro Ito, Olaf Radunz, Anna Puggina, Gudrun Hilgard, Eric K.H. Chan, Su Wang
Publikováno v:
BMC Public Health, Vol 24, Iss 1, Pp 1-14 (2024)
Abstract Background People with chronic hepatitis B (CHB) commonly experience social and self-stigma. This study sought to understand the impacts of CHB-related stigma and a functional cure on stigma. Methods Adults with CHB with a wide range of age
Externí odkaz:
https://doaj.org/article/847717b9ff4f4e0e964d47ea63825fd7
Autor:
Natalie V. J. Aldhouse, Helen Kitchen, Chloe Johnson, Chris Marshall, Hannah Pegram, Sheryl Pease, Sam Collins, Christine L. Baker, Katherine Beaverson, Chandler Crews, Jill Massey, Kathleen W. Wyrwich
Publikováno v:
Orphanet Journal of Rare Diseases, Vol 17, Iss 1, Pp 1-14 (2022)
Abstract Background This study aimed to identify fit-for-purpose clinical outcome assessments (COAs) to evaluate physical function, as well as social and emotional well-being in clinical trials enrolling a pediatric population with achondroplasia. Qu
Externí odkaz:
https://doaj.org/article/082b4920445d4264a6524fa4fff1daae
Autor:
Helen Kitchen, Christian Seitz, Andrew Trigg, Natalie Aldhouse, Thomas Willgoss, Heinz Schmitz, Adam Gater, Christoph Gerlinger, Claudia Haberland
Publikováno v:
Health and Quality of Life Outcomes, Vol 19, Iss 1, Pp 1-14 (2021)
Abstract Background The Endometriosis Symptom Diary (ESD) and Endometriosis Impact Scale (EIS) are patient-reported outcome measures developed to evaluate efficacy in clinical trials and clinical practice. The ESD is a daily electronic diary assessin
Externí odkaz:
https://doaj.org/article/537b055f2bf94c98b692418f1ba4bdc2
Autor:
Natalie V. J. Aldhouse, Helen Kitchen, Sarah Knight, Jake Macey, Fabio P. Nunes, Yves Dutronc, Natasha Mesinkovska, Justin M. Ko, Brett A. King, Kathleen W. Wyrwich
Publikováno v:
Journal of Patient-Reported Outcomes, Vol 4, Iss 1, Pp 1-12 (2020)
Abstract Background Alopecia areata (AA) is characterized by hair loss that can affect the scalp and body. This study describes the psychosocial burden of AA. Methods Participants diagnosed with AA who had experienced ≥50% scalp hair loss according
Externí odkaz:
https://doaj.org/article/62e13393ca624abe952d13a7ebf07e94
Autor:
Arnold Degboe, Sarah L. Knight, Katarina Halling, Andrew Trigg, Tamara Al-Zubeidi, Natalie Aldhouse, Helen Kitchen, Lori Wirth, Simon N. Rogers
Publikováno v:
Journal of Patient-Reported Outcomes, Vol 2, Iss 1, Pp 1-13 (2018)
Abstract Background Head and neck squamous cell carcinoma (HNSCC) and its associated treatments may affect all aspects of patients’ health-related quality of life (HRQoL). Although the EORTC QLQ-H&N35 is regularly administered to patients with HNSC
Externí odkaz:
https://doaj.org/article/6103544924e1494caef20093781b4f82
Autor:
Louise Humphrey, Thomas Willgoss, Andrew Trigg, Stephanie Meysner, Mary Kane, Sally Dickinson, Helen Kitchen
Publikováno v:
Journal of Patient-Reported Outcomes, Vol 1, Iss 1, Pp 1-12 (2017)
Abstract Background The Food and Drug Administration patient-reported outcome (PRO) guidance provides standards for PRO development, but these standards bring scientific and logistical challenges which can result in a lengthy and expensive instrument
Externí odkaz:
https://doaj.org/article/4f78f7783ebe409094b205db41f8d6d7
Autor:
Galina Velikova, Jose M. Valderas, Caroline Potter, Laurie Batchelder, Christine A’Court, Matthew Baker, Jennifer Bostock, Angela Coulter, Ray Fitzpatrick, Julien Forder, Diane Fox, Louise Geneen, Elizabeth Gibbons, Crispin Jenkinson, Karen Jones, Laura Kelly, Michele Peters, Brendan Mulhern, Alexander Labeit, Donna Rowen, Keith Meadows, Jackie Elliott, John Brazier, Emma Knowles, Anju Keetharuth, Janice Connell, Jill Carlton, Lizzie Taylor Buck, Thomas Ricketts, Michael Barkham, Pushpendra Goswami, Sam Salek, Tatyana Ionova, Esther Oliva, Adele K. Fielding, Marina Karakantza, Saad Al-Ismail, Graham P. Collins, Stewart McConnell, Catherine Langton, Daniel M. Jennings, Roger Else, Jonathan Kell, Helen Ward, Sophie Day, Elizabeth Lumley, Patrick Phillips, Rosie Duncan, Helen Buckley-Woods, Ahmed Aber, Gerogina Jones, Jonathan Michaels, Ian Porter, Jaheeda Gangannagaripalli, Antoinette Davey, Ignacio Ricci-Cabello, Kirstie Haywood, Stine Thestrup Hansen, Jose Valderas, Deb Roberts, Anil Gumber, Bélène Podmore, Andrew Hutchings, Jan van der Meulen, Ajay Aggarwal, Sujith Konan, Andrew Price, William Jackson, Nick Bottomley, Michael Philiips, Toby Knightley-Day, David Beard, Joanne Greenhalgh, Kate Gooding, Chema Valderas, Judy Wright, Sonia Dalkin, David Meads, Nick Black, Carol Fawkes, Robert Froud, Dawn Carnes, Jonathan Cook, Helen Dakin, James Smith, Sujin Kang, The ACHE Study Team, Catrin Griffiths, Ella Guest, Diana Harcourt, Mairead Murphy, Sandra Hollinghurst, Chris Salisbury, Anqi Gao, Agnieszka Lemanska, Tao Chen, David P. Dearnaley, Rajesh Jena, Matthew Sydes, Sara Faithfull, A. E. Ades, Daphne Kounali, Guobing Lu, Ines Rombach, Alastair Gray, Oliver Rivero-Arias, Patricia Holch, Marie Holmes, Zoe Rodgers, Sarah Dickinson, Beverly Clayton, Susan Davidson, Jacqui Routledge, Julia Glennon, Ann M. Henry, Kevin Franks, Roma Maguire, Lisa McCann, Teresa Young, Jo Armes, Jenny Harris, Christine Miaskowski, Grigorios Kotronoulas, Morven Miller, Emma Ream, Elizabeth Patiraki, Alexander Geiger, Geir V. Berg, Adrian Flowerday, Peter Donnan, Paul McCrone, Kathi Apostolidis, Patricia Fox, Eileen Furlong, Nora Kearney, Chris Gibbons, Felix Fischer, Joel Coste, Jose Valderas Martinez, Matthias Rose, Alain Leplege, Sarah Shingler, Natalie Aldhouse, Tamara Al-Zubeidi, Andrew Trigg, Helen Kitchen, Colin Green, Joanna Coast, Sarah Smith, Jolijn Hendriks, Koonal Shah, Juan-Manuel Ramos-Goni, Simone Kreimeier, Mike Herdman, Nancy Devlin, Aureliano Paolo Finch, John E. Brazier, Clara Mukuria, Bernarda Zamora, David Parkin, Yan Feng, Andrew Bateman, Thomas Patton, Nils Gutacker
Publikováno v:
Health and Quality of Life Outcomes, Vol 15, Iss S1, Pp 1-12 (2017)
Externí odkaz:
https://doaj.org/article/6d25bc4e44af47719eddf53931531a73
Publikováno v:
Health and Quality of Life Outcomes, Vol 15, Iss 1, Pp 1-12 (2017)
Abstract Background Infertility has a negative impact on quality of life (QoL) and well-being of affected individuals and couples. A variety of patient-reported outcome (PRO) measures to assess infertility-related QoL are available; however, there is
Externí odkaz:
https://doaj.org/article/e7033b5a1e7941e38c437d147b755f90
Publikováno v:
Journal of Health Economics and Outcomes Research
**Background:** Hepatitis C virus (HCV) infection and its treatments are associated with significant symptoms, side effects and impact on patients functioning. The Hepatitis C Symptom and Impact Questionnaire version 4 (HCV-SIQv4) was developed accor
Externí odkaz:
https://doaj.org/article/8c781786a4f245f397713730ae3a6133