Performance of the EULAR Systemic sclerosis Impact of Disease (ScleroID) questionnaire as a patient-reported outcome measure for patients with diffuse systemic sclerosis.

Autor: Dobrota R; Department of Rheumatology, University Hospital Zurich, Zurich, Switzerland.; Center of Experimental Rheumatology, University of Zurich, Zurich, Switzerland., Garaiman A; Department of Rheumatology, University Hospital Zurich, Zurich, Switzerland., Fligelstone K; Federation of European Scleroderma Associations (FESCA), London, UK., Tyrrell Kennedy A; Federation of European Scleroderma Associations (FESCA), Tournai, Belgium., Roennow A; Federation of European Scleroderma Associations (FESCA), Aalborg, Denmark., Allanore Y; Department of Rheumatology A, Universite Paris Descartes, APHP and Cochin Hospital, Paris, France., Carreira PE; Department of Rheumatology, Hospital Universitario Doce de Octubre, Madrid, Spain., Czirják L; Department of Rheumatology and Immunology, Medical School, University of Pécs, Pécs, Hungary., Denton C; Centre for Rheumatology, University College London, London, UK.; Royal Free Hospital, London, UK., Hesselstrand R; Department of Rheumatology, Lund University, Lund, Sweden., Sandqvist G; Department of Rheumatology, Lund University, Lund, Sweden., Kowal-Bielecka O; Rheumatology and Internal Medicine, Medical University of Bialystok, Bialystok, Poland., Bruni C; Department of Rheumatology, University Hospital Zurich, Zurich, Switzerland.; Department of Experimental and Clinical Medicine, Division of Rheumatology AOUC, University of Florence, Florence, Italy., Matucci-Cerinic M; Department of Experimental and Clinical Medicine, Division of Rheumatology AOUC, University of Florence, Florence, Italy.; IRCCS San Raffaele Hospital, Unit of Immunology, Rheumatology, Allergy and Rare diseases (UnIRAR), Milan, Italy., Mihai C; Department of Rheumatology, University Hospital Zurich, Zurich, Switzerland., Gherghe AM; Department of Internal Medicine and Rheumatology, Carol Davila University of Medicine and Pharmacy, Cantacuzino Hospital, Bucharest, Romania., Mueller-Ladner U; Department of Rheumatology and Clinical Immunology, Justus Liebig University Giessen, Campus Kerckhoff, Bad Nauheim, Germany., Kvien T; Center for Treatment of Rheumatic and Musculoskeletal Diseases (REMEDY), Diakonhjemmet Hospital, Oslo, Norway.; Faculty of Medicine, University of Oslo, Oslo, Norway., Heiberg T; Regional Research Support, Oslo University Hospital, Oslo, Norway., Distler O; Department of Rheumatology, University Hospital Zurich, Zurich, Switzerland.; Center of Experimental Rheumatology, University of Zurich, Zurich, Switzerland., Becker MO; Department of Rheumatology, University Hospital Zurich, Zurich, Switzerland MikeOliver.Becker@usz.ch.; Center of Experimental Rheumatology, University of Zurich, Zurich, Switzerland.

Publikováno v: RMD open [RMD Open] 2024 Nov 27; Vol. 10 (4). Date of Electronic Publication: 2024 Nov 27.

Development and validation of a patient-reported outcome measure for systemic sclerosis: the EULAR Systemic Sclerosis Impact of Disease (ScleroID) questionnaire.

Autor: Becker MO; Department of Rheumatology, University Hospital of Zurich, Zurich, Switzerland., Dobrota R; Department of Rheumatology, University Hospital of Zurich, Zurich, Switzerland., Garaiman A; Department of Rheumatology, University Hospital of Zurich, Zurich, Switzerland., Debelak R; Department of Psychology, Psychological Methods, Evaluation and Statistics, University of Zurich, Zurich, Switzerland.; Department of Psychology, Psychological Methodology, University of Leipzig, Leipzig, Germany., Fligelstone K; Scleroderma and Raynaud's UK, London, UK., Tyrrell Kennedy A; Federation of the European Scleroderma Associations (FESCA) aisbl, Tournai, Belgium., Roennow A; Federation of European Scleroderma Associations (FESCA), Saint Maur, Belgium., Allanore Y; Department of Rheumatology A, Descartes University, APHP, Cochin Hospital, Paris, France., Carreira PE; Department of Rheumatology, Hospital Universitario 12 de Octubre, Madrid, Spain., Czirják L; Department of Rheumatology and Immunology, University of Pécs, Pécs, Hungary., Denton CP; Centre for Rheumatology, University College London, Royal Free Campus, London, UK., Hesselstrand R; Department of Rheumatology, Lund University, Lund, Sweden., Sandqvist G; Department of Rheumatology, Lund University, Lund, Sweden., Kowal-Bielecka O; Department of Rheumatology and Internal Medicine, Medical University of Bialystok, Bialystok, Poland., Bruni C; Department of Experimental and Clinical Medicine, Division of Rheumatology AOUC, University of Florence, Florence, Italy., Matucci-Cerinic M; Department of Experimental and Clinical Medicine, Division of Rheumatology AOUC, University of Florence, Florence, Italy.; IRCCS San Raffaele Hospital, Unit of Immunology, Rheumatology, Allergy and Rare diseases (UnIRAR), Milan, Italy., Mihai C; Department of Rheumatology, University Hospital of Zurich, Zurich, Switzerland.; Department of Internal Medicine and Rheumatology, Cantacuzino Hospital, Carol Davila University of Medicine and Pharmacy, Bucharest, Romania., Gheorghiu AM; Department of Internal Medicine and Rheumatology, Cantacuzino Hospital, Carol Davila University of Medicine and Pharmacy, Bucharest, Romania., Mueller-Ladner U; Department of Rheumatology and Clinical Immunology, Justus-Liebig University Giessen, Campus Kerckhoff, Bad Nauheim, Germany., Sexton J; Division of Rheumatology and Research, Diakonhjemmet Hospital, Oslo, Norway., Kvien TK; Division of Rheumatology and Research, Diakonhjemmet Hospital, Oslo, Norway., Heiberg T; Regional Research Support, Oslo University Hospital, Oslo, Norway., Distler O; Department of Rheumatology, University Hospital of Zurich, Zurich, Switzerland oliver.distler@usz.ch.

Publikováno v: Annals of the rheumatic diseases [Ann Rheum Dis] 2022 Apr; Vol. 81 (4), pp. 507-515. Date of Electronic Publication: 2021 Nov 25.

The I-OPTA Questionnaire: A National Assessment of Patients with Neovascular Age-Related Macular Degeneration.

Autor: Thinggaard, Benjamin Sommer^1,2,3 (AUTHOR) benjamin.sommer.thinggaard@rsyd.dk, Hansen, Kasper^1,2 (AUTHOR), Dinesen, Freja^1,2 (AUTHOR), Pedersen, Maria Kjøller⁴ (AUTHOR), Morsø, Lars^2,3 (AUTHOR), Subhi, Yousif^2,5 (AUTHOR), Grauslund, Jakob^1,2 (AUTHOR), Stokholm, Lonny^2,3 (AUTHOR)

Publikováno v: Ophthalmology & Therapy. Dec2024, Vol. 13 Issue 12, p3035-3046. 12p.

The Patient Experienced Symptom State (PESS): a patient-reported global outcome measure that may better reflect disease remission status.

Autor: Duarte C; Department of Rheumatology, Centro Hospitalar e Universitário de Coimbra, Coimbra.; Coimbra Institute for Clinical and Biomedical Research - Faculty of Medicine, University of Coimbra, Coimbra., Santos E; Department of Rheumatology, Centro Hospitalar e Universitário de Coimbra, Coimbra.; Instituto de Ciências Biomédicas Abel Salazar, Universidade do Porto, Porto.; Health Sciences Research Unit: Nursing, Nursing School of Coimbra, Coimbra, Portugal., da Silva JAP; Department of Rheumatology, Centro Hospitalar e Universitário de Coimbra, Coimbra.; Coimbra Institute for Clinical and Biomedical Research - Faculty of Medicine, University of Coimbra, Coimbra., Kristianslund EK; Department of Rheumatology, Diakonhjemmet Hospital, Oslo, Norway., Kvien TK; Department of Rheumatology, Diakonhjemmet Hospital, Oslo, Norway., Dougados M; Université de Paris, Paris.; Department of Rheumatology, Hôpital Cochin, Assistance Publique-Hôpitaux de Paris, Paris.; INSERM (U1153): Clinical Epidemiology and Biostatistics, PRES Sorbonne Paris-Cité, Paris, France., de Wit M; Patient Research Partner, Amsterdam, The Netherlands., Gossec L; INSERM, Institut Pierre Louis d'Epidémiologie et de Santé Publique, Sorbonne Université, Paris.; Rheumatology Department, Pitié Salpêtrière Hospital, Sorbone Univeristé-AP-HP, Paris, France., Heiberg T; Faculty of Health and Welfare, Østfold University College, Halden.; Regional Research Support, Oslo University Hospital, Oslo, Norway.

Publikováno v: Rheumatology (Oxford, England) [Rheumatology (Oxford)] 2020 Nov 01; Vol. 59 (11), pp. 3458-3467.

Does the Change of Weather Influence Disease Activity in Rheumatoid Arthritis Patients: Patients' Self-Assessment via WebApp.

Autor: Poller, Martin¹ (AUTHOR) diego.kyburz@usb.ch, Schulz, Martin M. P.² (AUTHOR) martin.schulz@abbvie.com, Schulze-Koops, Hendrik³ (AUTHOR) hendrik.schulze-koops@med.uni-muenchen.de, Kyburz, Diego¹ (AUTHOR), von Kempis, Johannes⁴ (AUTHOR) johannes.vonkempis@kssg.ch, Mueller, Ruediger B.⁵ (AUTHOR) martin.poller84@gmail.com

Publikováno v: Journal of Clinical Medicine. Sep2024, Vol. 13 Issue 17, p5336. 9p.