Zobrazeno 1 - 10 of 42 pro vyhledávání: '"Hedy A van Oers"'
1
Akademický článek
Prevention of relapses with levamisole as adjuvant therapy in children with a first episode of idiopathic nephrotic syndrome: study protocol for a double blind, randomised placebo-controlled trial (the LEARNS study)
Autor: Lotte Haverman, Ron A A Mathôt, Floor Veltkamp, Djera H Khan, Christa Reefman, Susan Veissi, Hedy A van Oers, Elena Levtchenko, Sandrine Florquin, Joanna A E van Wijk, Michiel F Schreuder, Antonia H M Bouts
Publikováno v: BMJ Open, Vol 9, Iss 8 (2019)
Introduction Idiopathic nephrotic syndrome (INS) is characterised by a high relapse rate up to 80% after initial response to standard therapy with corticosteroids. Steroid toxicity is common and causes a great burden of disease that negatively influe
Externí odkaz: https://doaj.org/article/0050583e9b7849988fe7852140461b34
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2
Akademický článek
The challenges of classical galactosemia: HRQoL in pediatric and adult patients
Autor: Merel E. Hermans, Hedy A. van Oers, Gert J. Geurtsen, Lotte Haverman, Carla E. M. Hollak, M. Estela Rubio-Gozalbo, Annet M. Bosch
Publikováno v: Orphanet Journal of Rare Diseases, Vol 18, Iss 1, Pp 1-16 (2023)
Abstract Background Classical galactosemia (CG), an inborn error of galactose metabolism, results in long-term complications including cognitive impairment and movement disorders, despite early diagnosis and dietary treatment. Two decades ago, lower
Externí odkaz: https://doaj.org/article/1b8a6b840b9d4608bd5f0495820e0ce9
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3
Akademický článek
Pediatric patient engagement in clinical care, research and intervention development: a scoping review
Autor: Lorynn Teela, Lieke E. Verhagen, Hedy A. van Oers, Esmée E. W. Kramer, Joost G. Daams, Mariken P. Gruppen, Maria J. Santana, Martha A. Grootenhuis, Lotte Haverman
Publikováno v: Journal of Patient-Reported Outcomes, Vol 7, Iss 1, Pp 1-11 (2023)
Abstract Background In the last decades, pediatric patient engagement has received growing attention and its importance is increasingly acknowledged. Pediatric patient engagement in health care can be defined as the involvement of children and adoles
Externí odkaz: https://doaj.org/article/6d908fa11d9d41428095c89197c2a580
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4
Longitudinal Development of Health-related Quality of Life and Fatigue in Children on Home Parenteral Nutrition
Autor: Merit M. Tabbers, Barbara A. E. de Koning, Hedy A. van Oers, Lotte Haverman, Lotte E. Vlug, Sjoerd C.J. Nagelkerke, Marc A. Benninga
Publikováno v: Nagelkerke, S C J, van Oers, H A, Haverman, L, Vlug, L E, de Koning, B A E, Benninga, M A & Tabbers, M M 2022, ' Longitudinal Development of Health-related Quality of Life and Fatigue in Children on Home Parenteral Nutrition ', Journal of Pediatric Gastroenterology and Nutrition, vol. 74, no. 1, pp. 116-122 . https://doi.org/10.1097/MPG.0000000000003329
Journal of pediatric gastroenterology and nutrition, 74(1), 116-122. Lippincott Williams and Wilkins
Journal of Pediatric Gastroenterology and Nutrition
Journal of Pediatric Gastroenterology and Nutrition, 74(1), 116-122. Lippincott Williams & Wilkins
Journal of Pediatric Gastroenterology and Nutrition, 74(1), 116-122. Lippincott Williams and Wilkins
Objectives: The aim of the study was to describe the longitudinal development of health-related quality of life (HRQOL) and fatigue in children with chronic intestinal failure (CIF) on home parenteral nutrition (PN) and compare these children to the
Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::266aa49c399a28d4b5a38d87c7b6363f
http://www.scopus.com/inward/record.url?scp=85122744568&partnerID=8YFLogxK
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5
Patients’ and parents’ perspective on the implementation of Patient Reported Outcome Measures in pediatric clinical practice using the KLIK PROM portal
Autor: Lorynn Teela, Lotte Haverman, Hedy A. van Oers, Martha A. Grootenhuis, Johannes B. van Goudoever, Maud M. van Muilekom
Publikováno v: Quality of Life Research. Springer Netherlands
Quality of Life Research
van Muilekom, M M, Teela, L, van Oers, H A, van Goudoever, J B, Grootenhuis, M A & Haverman, L 2021, ' Patients’ and parents’ perspective on the implementation of Patient Reported Outcome Measures in pediatric clinical practice using the KLIK PROM portal ', Quality of Life Research . https://doi.org/10.1007/s11136-021-02950-x
Quality of life research, 31, 241-254. Springer Netherlands
Introduction The KLIK Patient Reported Outcome Measures (PROM) portal (www.hetklikt.nu) has been implemented since 2011 in clinical practice in over 20 Dutch hospitals. Patients and/or parents complete PROMs before the outpatient consultation and ans
Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::23c3f05cb7ba32666629757d8faf9e3a
https://doi.org/10.1007/s11136-021-02950-x
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7
Clinicians’ perspective on the implemented KLIK PROM portal in clinical practice
Autor: Hedy A. van Oers, Martha A. Grootenhuis, Lotte Haverman, Lieke H. Kooij, Maud M. van Muilekom, Anouk W. Gathier, Johannes B. van Goudoever, Lorynn Teela
Publikováno v: Quality of Life Research, 30(11), 3267-3277. Springer Netherlands
Quality of Life Research
Teela, L, van Muilekom, M M, Kooij, L H, Gathier, A W, van Goudoever, J B, Grootenhuis, M A, Haverman, L & van Oers, H A 2021, ' Clinicians’ perspective on the implemented KLIK PROM portal in clinical practice ', Quality of Life Research, vol. 30, no. 11, pp. 3267-3277 . https://doi.org/10.1007/s11136-020-02522-5
Quality of life research, 30(11), 3267-3277. Springer Netherlands
Purpose Since 2011, the evidence-based KLIK Patient Reported Outcome Measure (PROM) portal has been implemented in clinical practice in > 20 Dutch hospitals. Patients and/or parents complete PROMs on Health Related Quality of Life, symptoms and psych
Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::7f1855651849ce77ccfe9619928198bd
http://www.scopus.com/inward/record.url?scp=85085748301&partnerID=8YFLogxK
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8
The impact of lockdown during the COVID-19 pandemic on mental and social health of children and adolescents
Autor: Arne Popma, Michiel A. J. Luijten, Tinca J. C. Polderman, Caroline B. Terwee, Lorynn Teela, Lotte Haverman, Josjan Zijlmans, Hedy A. van Oers, Kim J. Oostrom, Maud M. van Muilekom, Leonie Klaufus
Publikováno v: Quality of Life Research, 30(10), 2795-2804. Springer Netherlands
Luijten, M A J, van Muilekom, M M, Teela, L, Polderman, T J C, Terwee, C B, Zijlmans, J, Klaufus, L, Popma, A, Oostrom, K J, van Oers, H A & Haverman, L 2021, ' The impact of lockdown during the COVID-19 pandemic on mental and social health of children and adolescents ', Quality of Life Research, vol. 30, no. 10, pp. 2795-2804 . https://doi.org/10.1007/s11136-021-02861-x
Quality of Life Research
Quality of life research, 30(10), 2795-2804. Springer Netherlands
Purpose During the COVID-19 pandemic in the Netherlands, governmental regulations resulted in a lockdown for adults as well as children/adolescents. Schools were closed and contact with other people was limited. In this cross-sectional, population-ba
Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::2620a75d51651a6c7b98a31c5ff1150d
https://research.vu.nl/en/publications/6508f949-e1ed-4316-a0f8-ddab39dac696
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9
Health-Related Quality of Life and Distress of Parents of Children With Avoidant Restrictive Food Intake Disorder
Autor: Liesbeth van der Sluijs Veer, Hilde Krom, Marc A. Benninga, Angelika Kindermann, Lotte Haverman, Hedy A. van Oers, Suzanne M.C. van Zundert, Marie-Anne G.M. Otten
Publikováno v: Journal of pediatric gastroenterology and nutrition, 73(1), 115-124. Lippincott Williams and Wilkins
OBJECTIVES: Health-related quality of life (HRQOL) of children with avoidant restrictive food intake disorder (ARFID) is impaired. AIM: To measure HRQOL and distress of parents of children with ARFID. METHODS: Cross-sectional cohort study. Parents of
Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::02f4c07d099d716c1bb279c0e647ef3d
https://doi.org/10.1097/mpg.0000000000003150
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