Zobrazeno 1 - 10
of 95
pro vyhledávání: '"Hedy A van Oers"'
Autor:
Merel E. Hermans, Hedy A. van Oers, Gert J. Geurtsen, Lotte Haverman, Carla E. M. Hollak, M. Estela Rubio-Gozalbo, Annet M. Bosch
Publikováno v:
Orphanet Journal of Rare Diseases, Vol 18, Iss 1, Pp 1-16 (2023)
Abstract Background Classical galactosemia (CG), an inborn error of galactose metabolism, results in long-term complications including cognitive impairment and movement disorders, despite early diagnosis and dietary treatment. Two decades ago, lower
Externí odkaz:
https://doaj.org/article/1b8a6b840b9d4608bd5f0495820e0ce9
Autor:
Lorynn Teela, Lieke E. Verhagen, Hedy A. van Oers, Esmée E. W. Kramer, Joost G. Daams, Mariken P. Gruppen, Maria J. Santana, Martha A. Grootenhuis, Lotte Haverman
Publikováno v:
Journal of Patient-Reported Outcomes, Vol 7, Iss 1, Pp 1-11 (2023)
Abstract Background In the last decades, pediatric patient engagement has received growing attention and its importance is increasingly acknowledged. Pediatric patient engagement in health care can be defined as the involvement of children and adoles
Externí odkaz:
https://doaj.org/article/6d908fa11d9d41428095c89197c2a580
Autor:
Alicia Furumaya, Lynn E. Nooijen, Martijn P. D. Haring, Hedy A. van Oers, Marlou van Beneden, Belle V. van Rosmalen, R. Bart Takkenberg, Geert Kazemier, Marc G. Besselink, Vincent E. de Meijer, Joris I. Erdmann, the Dutch Benign Liver Tumor Group
Publikováno v:
Journal of Patient-Reported Outcomes, Vol 6, Iss 1, Pp 1-11 (2022)
Abstract Background Patient reported outcome measures (PROMs) may be useful for patients with benign liver tumours and cysts (BLTC) to evaluate the impact of treatment and/or guide shared decision making. Yet, a set of PROMs relevant to patients with
Externí odkaz:
https://doaj.org/article/c9fe75a55b3940d7af45cf804804d78d
Autor:
Maud M. van Muilekom, Michiel A. J. Luijten, Hedy A. van Oers, Caroline B. Terwee, Raphaële R. L. van Litsenburg, Leo D. Roorda, Martha A. Grootenhuis, Lotte Haverman
Publikováno v:
Journal of Patient-Reported Outcomes, Vol 5, Iss 1, Pp 1-14 (2021)
Abstract Background To reduce the burden of completing Patient-Reported Outcome Measures (PROMs), PROMIS® Computerized Adaptive Tests (CATs) are being implemented in pediatric clinical practice. We aimed to develop recommendations for visual feedbac
Externí odkaz:
https://doaj.org/article/e2c4cb47a17748b3843e8820b92ab496
Autor:
Sumedh Bele, Lorynn Teela, Muning Zhang, Sarah Rabi, Sadia Ahmed, Hedy Aline van Oers, Elizabeth Gibbons, Nicole Dunnewold, Lotte Haverman, Maria J. Santana
Publikováno v:
Frontiers in Pediatrics, Vol 9 (2021)
Introduction: Patient-reported Experience Measures (PREMs) are validated questionnaires, that gather patients' and families' views of their experience receiving care and are commonly used to measure the quality of care, with the goal to make care mor
Externí odkaz:
https://doaj.org/article/e4407798392d416587c3642c56d70dc6
Autor:
Josjan Zijlmans, Lorynn Teela, Hanneke van Ewijk, Helen Klip, Malindi van der Mheen, Hyun Ruisch, Michiel A. J. Luijten, Maud M. van Muilekom, Kim J. Oostrom, Jan Buitelaar, Pieter J. Hoekstra, Ramón Lindauer, Arne Popma, Wouter Staal, Robert Vermeiren, Hedy A. van Oers, Lotte Haverman, Tinca J. C. Polderman
Publikováno v:
Frontiers in Psychiatry, Vol 12 (2021)
Background: The COVID-19 lockdown increases psychological problems in children and adolescents from the general population. Here we investigate the mental and social health during the COVID-19 lockdown in children and adolescents with pre-existing me
Externí odkaz:
https://doaj.org/article/af9c4a37b17a405b8a315d886b266f42
Autor:
Lotte Haverman, Ron A A Mathôt, Floor Veltkamp, Djera H Khan, Christa Reefman, Susan Veissi, Hedy A van Oers, Elena Levtchenko, Sandrine Florquin, Joanna A E van Wijk, Michiel F Schreuder, Antonia H M Bouts
Publikováno v:
BMJ Open, Vol 9, Iss 8 (2019)
IntroductionIdiopathic nephrotic syndrome (INS) is characterised by a high relapse rate up to 80% after initial response to standard therapy with corticosteroids. Steroid toxicity is common and causes a great burden of disease that negatively influen
Externí odkaz:
https://doaj.org/article/0050583e9b7849988fe7852140461b34
Autor:
Josjan Zijlmans, Jacintha M. Tieskens, Hedy A. van Oers, Hekmat Alrouh, Michiel A. J. Luijten, Rowdy de Groot, Daniël van der Doelen, Helen Klip, Rikkert M. van der Lans, Ronald de Meyer, Malindi van der Mheen, I. Hyun Ruisch, Germie van den Berg, Hilgo Bruining, Jan Buitelaar, Rachel van der Rijken, Pieter J. Hoekstra, Marloes Kleinjan, Ramón J. L. Lindauer, Kim J. Oostrom, Wouter Staal, Robert Vermeiren, Ronald Cornet, Lotte Haverman, Arne Popma, Meike Bartels, Tinca J. C. Polderman
Publikováno v:
JCPP Advances.
Publikováno v:
Pediatrics Week; 7/14/2023, p141-141, 1p
Autor:
Merit M. Tabbers, Barbara A. E. de Koning, Hedy A. van Oers, Lotte Haverman, Lotte E. Vlug, Sjoerd C.J. Nagelkerke, Marc A. Benninga
Publikováno v:
Nagelkerke, S C J, van Oers, H A, Haverman, L, Vlug, L E, de Koning, B A E, Benninga, M A & Tabbers, M M 2022, ' Longitudinal Development of Health-related Quality of Life and Fatigue in Children on Home Parenteral Nutrition ', Journal of Pediatric Gastroenterology and Nutrition, vol. 74, no. 1, pp. 116-122 . https://doi.org/10.1097/MPG.0000000000003329
Journal of pediatric gastroenterology and nutrition, 74(1), 116-122. Lippincott Williams and Wilkins
Journal of Pediatric Gastroenterology and Nutrition
Journal of Pediatric Gastroenterology and Nutrition, 74(1), 116-122. Lippincott Williams & Wilkins
Journal of Pediatric Gastroenterology and Nutrition, 74(1), 116-122. Lippincott Williams and Wilkins
Journal of pediatric gastroenterology and nutrition, 74(1), 116-122. Lippincott Williams and Wilkins
Journal of Pediatric Gastroenterology and Nutrition
Journal of Pediatric Gastroenterology and Nutrition, 74(1), 116-122. Lippincott Williams & Wilkins
Journal of Pediatric Gastroenterology and Nutrition, 74(1), 116-122. Lippincott Williams and Wilkins
Objectives: The aim of the study was to describe the longitudinal development of health-related quality of life (HRQOL) and fatigue in children with chronic intestinal failure (CIF) on home parenteral nutrition (PN) and compare these children to the