A novel electronic patient-reported outcome delivery system to implement health-related quality of life measures in routine clinical care: An analysis of 5 years of experience

Autor: Kathleen Tymms, Catherine O'Sullivan, Tegan Smith, Geoffrey Littlejohn, Tim Freeman, David Hoffman, Dana Segelov, Hedley Griffiths, Sabina Ciciriello, Peter Youssef, David Mathers, Claire T Deakin

Publikováno v: Frontiers in Digital Health, Vol 4 (2023)

ObjectiveTo develop a simple and secure technological solution to incorporate electronic patient-reported outcomes (ePROs) into routine clinical care.MethodsA novel ePRO questionnaire delivery system was developed by Software for Specialists (S4S) in

Externí odkaz: https://doaj.org/article/886b548348c94223968c9880b26271cb

The CEDAR Study: A Longitudinal Study of the Clinical Effects of Conventional DMARDs and Biologic DMARDs in Australian Rheumatology Practice

Autor: Lynden Roberts, Kathleen Tymms, Julien de Jager, Geoffrey Littlejohn, Hedley Griffiths, Dave Nicholls, Paul Bird, Jennifer Young, Julie Hill, Jane Zochling

Publikováno v: International Journal of Rheumatology, Vol 2017 (2017)

Objectives. To observe the choices of conventional disease modifying antirheumatic drugs (cDMARDs) and biologic DMARDs (bDMARDs) in the management of rheumatoid arthritis (RA) in Australian routine clinical practice, to assess treatment survival and

Externí odkaz: https://doaj.org/article/71eee8aced7546baae14907410b37f69

Retention of subcutaneous abatacept for the treatment of rheumatoid arthritis: real-world results from the ASCORE study: an international 2-year observational study

Autor: Rieke Alten, Xavier Mariette, René-Marc Flipo, Roberto Caporali, Maya H. Buch, Yusuf Patel, Sara Marsal, Raimon Sanmartí, Michael T. Nurmohamed, Hedley Griffiths, Peter Peichl, Bettina Bannert, Melanie Chartier, Sean E. Connolly, Karissa Lozenski, Christiane Rauch

Publikováno v: Clinical Rheumatology, 41(8), 2361-2373. Springer London
Alten, R, Mariette, X, Flipo, R-M, Caporali, R, Buch, M H, Patel, Y, Marsal, S, Sanmartí, R, Nurmohamed, M T, Griffiths, H, Peichl, P, Bannert, B, Chartier, M, Connolly, S E, Lozenski, K & Rauch, C 2022, ' Retention of subcutaneous abatacept for the treatment of rheumatoid arthritis : real-world results from the ASCORE study: an international 2-year observational study ', Clinical Rheumatology, vol. 41, no. 8, pp. 2361-2373 . https://doi.org/10.1007/s10067-022-06176-1

Objectives To evaluate retention, efficacy, and safety of subcutaneous (SC) abatacept over 2 years in patients with moderate-to-severe RA in the Abatacept SubCutaneOus in Routine clinical practicE (ASCORE) study. Methods Patients with RA who initiate

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::1fc06a03c891eaa34278cd818e783090
https://pubmed.ncbi.nlm.nih.gov/35536413

Three Multicenter, Randomized, Double-Blind, Placebo-Controlled Studies Evaluating the Efficacy and Safety of Ustekinumab in Axial Spondyloarthritis

Autor: Atul Deodhar, Lianne S. Gensler, Joachim Sieper, Michael Clark, Cesar Calderon, Yuhua Wang, Yiying Zhou, Jocelyn H. Leu, Kim Campbell, Kristen Sweet, Diane D. Harrison, Elizabeth C. Hsia, Désirée Heijde, Frederico Ariel, Cecilia Adma Asnal, Alberto Berman, Gustavo Citera, Graciela Rodriguez, Veronica Gabriela Savio, Paul Bird, Hedley Griffiths, David Nicholls, Maureen Rischmueller, Jane Zochling, Kurt De Vlam, Michel Malaise, Adrien Nzeusseu Toukap, Filip Van den Bosch, Johan Vanhoof, Rubens Bonfiglioli, Mauro Keiserman, Antonio Scafuto Scotton, Ricardo Xavier, Antonio Carlos Ximenes, Assen Atanasov, Ivan Goranov, Ivan Kazmin, Rodina Nestorova Licheva, Nikolay Nikolov, Boycho Oparanov, Rumen Stoilov, Louis Bessette, Jude Rodrigues, Ladislav Bortilik, Eva Dokoupilova, Zdenek Dvoarak, Dagmar Galatikova, Petr Nemec, Lucie Podrazilova, Gabriela Simkova, Zuzana Stejfova, Radka Moravcova, Petr Vitek, Alain Cantagrel, Athan Baillet, Beatrice Banneville, Bernard Combe, Maxime Breban, Minh Nguyen, Philippe Goupille, Juergen Braun, Andrea Everding, Joern Kekow, Ramona Koenig, Andrea Rubbert‐Roth, Torsten Witte, Attila Bartha, Edit Drescher, Kata Kerekes, Attila Kovacs, Judit Pulai, Bernadette Rojkovich, Sandor Szanto, Edit Toth, Hilario Avila, Igancio Garcia Torre, Fedra Irazoque, Marco Maradiaga, Cesar Pacheco, Marek Brzosko, Anna Dudek, Slawomir Jeka, Marek Krogulec, Brygida Kwiatkowska, Piotr Wiland, Rafal Wojciechowski, Agnieszka Zielinska, Helena Santos, Olga Bugrova, Valery Christyakov, Vladimir Gorbunov, Elena Ilivanova, Elena Zemerova, Rima Kamalova, Tatyana Kameneva, Galina Macievskaya, Irina Marusenko, Alexey Maslyansky, Svetlana Myasoedova, Leisan Myasoutova, Boris Nemtsov, Olga Nesmeyanova, Tatyana Plaksina, Tatyana Pokrovskaya, Svetlana Polyakova, Andrey Rebrov, Liudmila Savina, Svetlana Smakotina, Marina Stanislav, Olga Ukhanova, Irina Vinogradova, Elena Zonova, Han Joo Baek, Tae‐Hwan Kim, ChangKeun Lee, SangHeon Lee, Sang‐Hoon Lee, Shin‐Seok Lee, Sung‐Hwan Park, YeongWook Song, Chang‐Hee Suh, Juan Amarelo Ramos, Franciso Javier Blanco, Eduardo Collantes, Miguel Consuelo Diaz, Maria Luz Garcia Vivar, Jordi Gratacos, Xavier Juanola, Der‐Yuan Chen, Hsiang‐Cheng Chen, Kun‐Hung Chen, Ying‐Chou Chen, Ying‐Ming Chiu, Shue‐Fen Luo, Shih‐Tzu Tsai, Jui‐Cheng Tseng, Cheng‐Chung Wei, Meng‐Yu Weng, Orest Abrahamovych, Dmytro Reshotko, Oleksandr Golovchenko, Ihor Hospodarsky, Oleg Iaremenko, Olena Levchenko, Oleksandr Dudnyk, Olena Garmish, Olena Grishyna, Galyna Protsenko, Dmytro Rekalov, Svitlana Smiyan, Mykola Stanislavchuk, Svitlana Trypilka, Vira Tseluyko, Samvel Turianytsia, Viktoriya Vasylets, Nataliya Virstyuk, Yaroslav Kleban, Coziana Ciurtin, Karl Gaffney, Wiranthi Gunasekera, Kirsten Mackay, Jon Packham, Raj Sengupta, Hasan Tahir, Jacob Aelion, Ralph Bennett, Julio Gonzalez‐Paoli, Robert M. Griffin, Michael Grisanti, Jyothi Mallepalli, Eric Peters, Joy Schechtman, Atul Singhal

Publikováno v: Arthritis and Rheumatology, 71(2), 258-270. WILEY
Deodhar, A; Gensler, LS; Sieper, J; Clark, M; Calderon, C; Wang, Y; et al.(2018). Three Multicenter, Randomized, Double-Blind, Placebo-Controlled Studies Evaluating the Efficacy and Safety of Ustekinumab in Axial Spondyloarthritis.. Arthritis & rheumatology (Hoboken, N.J.). doi: 10.1002/art.40728. UCSF: Retrieved from: http://www.escholarship.org/uc/item/3x5990zb
Arthritis & rheumatology (Hoboken, N.J.), vol 71, iss 2

Author(s): Deodhar, Atul; Gensler, Lianne S; Sieper, Joachim; Clark, Michael; Calderon, Cesar; Wang, Yuhua; Zhou, Yiying; Leu, Jocelyn H; Campbell, Kim; Sweet, Kristen; Harrison, Diane D; Hsia, Elizabeth C; van der Heijde, Desiree | Abstract: Objecti

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::f232b4efcd4d46d6ba1ded5ac5cc76d0
https://doi.org/10.1002/art.40728

Effectiveness of biologics in Australian patients with rheumatoid arthritis: a large observational study: REAL

Autor: Dave, Nicholls, Rina, Barrett, Peter, Button, Matt, Truman, Paul, Bird, Lynden, Roberts, Kathleen, Tymms, Geoffrey, Littlejohn, Hedley, Griffiths

Publikováno v: Internal medicine journal. 48(10)

The comparative effectiveness of biologic treatment regimens in a real world Australian population is unknown.To assess the effectiveness of biological disease-modifying anti-rheumatic drugs (bDMARD) as monotherapy or in combination with methotrexate

Externí odkaz: https://explore.openaire.eu/search/publication?articleId=pmid________::ca226614dee4f473aa722cf394a8728c
https://pubmed.ncbi.nlm.nih.gov/29968400